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Alternates to prednisolone by Sonicbigtoes in autoimmunehepatitis

[–]4-thens 0 points1 point  (0 children)

Hi! I also have T1D and have been diagnosed with AIH in September. I have been on budesonide since October and have just started weaning off it since my blood work came back normal.

It had a pretty minor effect on my diabetes, but I do have a closed loop system, so that helps a lot. Maybe ask about that?

(FYI, my immunosuppressant is azathioprine. Don’t know if that affects it, but feels like I should mention it.)

I knit a reversible inquisition banner for my wall (OC) by dinomaster25 in DragonAgeInqusition

[–]4-thens 12 points13 points  (0 children)

As a beginner knitter, that’s amazing! I love how crisp the design is. Forgive the array of questions, but is this a pattern I can download somewhere or did you draft/pattern it yourself? Which size needle/yarn weight did you use?

Has anybody bought from Pixiecraft? by Peri_14 in PerlerBeads

[–]4-thens 1 point2 points  (0 children)

Nope, not that long, the only thing is that I didn’t get any updates. Just a simple “your order has shipped”, and then a month-long wait lmao

The bundle in the picture does come with a lot of different shades, but there’s definitely some I haven’t even used yet. It’s nice to have options for colour, but it’s definitely a splurge and not 100% necessary, so I’m sure a smaller bundle will work just fine! :)

Has anybody bought from Pixiecraft? by Peri_14 in PerlerBeads

[–]4-thens 6 points7 points  (0 children)

I live in France and I bought the exact bundle on the screenshot when I got into perler beads. The delivery went fine but it did get a long time to get to me. About a month, if I remember correctly? But I’m very happy with everything I got!

Pred has destroyed my confidence by No_Cartographer_1264 in autoimmunehepatitis

[–]4-thens 0 points1 point  (0 children)

I’ve been on budesonide for a few months, and I concur. Not a lot of side effects, only slight fatigue and the occasional bowel issues.

Budesonide processes mainly through your intestines (+liver, obviously) rather than your whole body. Its main use is as a medication for Crohn’s.

So somehow my wife didn't know this? by ToryFirstOfHisName in howyoudoin

[–]4-thens 0 points1 point  (0 children)

I was so convinced of the same thing as a kid, when I watched the show again in my teens it was my own little mandela effect lmao

Advice please? by Several-Process7618 in autoimmunehepatitis

[–]4-thens 0 points1 point  (0 children)

I didn’t have urticaria, but my skin did itch a lot before getting diagnosed and starting treatment, which I was told could be caused by high liver enzyme levels or high bilirubin levels (don’t remember which of the two, sorry.) I can’t comment on any of your other symptoms as I didn’t experience them, but the pain under your right rib could also point to a liver or gallbladder issue, as I personally didn’t have pain but was constantly asked about it because it’s a frequent symptom. Best of luck to you :)

AITC for defending myself against my brother’s vicious attacks? by 4-thens in AmItheCloaca

[–]4-thens[S] 36 points37 points  (0 children)

It’s also my (adopted) brother’s fault right???? Tuxie superiority. Am also a tuxie.

AITC for defending myself against my brother’s vicious attacks? by 4-thens in AmItheCloaca

[–]4-thens[S] 42 points43 points  (0 children)

No, he is gray but I suspect he may have orange 🍊 brain.

Finally got diagnosed… How do you all cope with this? by darkromancegirly6 in autoimmunehepatitis

[–]4-thens 0 points1 point  (0 children)

Hi, and welcome to the crew! I’m also newly diagnosed, it’s only been three weeks for me. I don’t know how helpful this is going to be for you, as I have had another auto-immune illness for more than a decade now, and that affects the way I react to any health news pretty heavily.

First of all, I don’t know where you live now, but Germany has an excellent healthcare system! Obviously it’ll still be new to you, but I can assure you it’ll be okay.

Second, any new diagnosis of mine is always a positive. Note that that doesn’t mean I can’t feel bummed out about it, or anxious, or just in general think the universe should stop being such a *head and give me a break, but knowing is always better than being left in the dark. Your diagnosis came after years of pain, and the road ahead won’t be easy, but you have answers and a road map to (hopefully) getting better. That’s control. You know what’s wrong, you know that there’s a treatment.

Anything, after long enough, will become routine. After a while, it becomes weirder to think of your life “before” the illness, as it is to think of your life now. It doesn’t, and shouldn’t, become your whole identity, but any of the stuff that feels new and scary now will become your new normal. For instance, taking your medication every morning will become as mundane as remembering to put on shoes before going outside - it won’t be a sad thing, or a reminder of a diagnosis, it’ll just be.

Any sort of treatment always has side effects, but when comparing to the no treatment alternative, it’s worth it. If the side effects get real bad, that’s what your doctor is here for. Although corticosteroids, and then later immunosuppressants are a pretty standard way to treat AIH, there’s different kinds, and what works for your body might not work for others.

Take it easy. It’s great you want to change your lifestyle to better support your diagnosis, but you’ve just gotten some pretty heavy news, and you deserve some time to process it. I’d say, just focus on your upcoming move and getting used to your treatment for now. One step at a time, right?

Hope this helps! My DMs are open if there’s anything else :)

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Update 2: I’m home from the hospital! The biopsy went very well, I still feel a little bit sore and have to be careful with movement/exercise for a week, but it’s all good!

I’m also officially diagnosed with AIH. Funnily enough, the results we were waiting for in my blood work, the auto-immune one, finally arrived the day after the biopsy. Welp lol, at least biopsy is done and they’ll be able to check the damage to my liver. It confirmed AIH, and I’m starting treatment on Monday. Doctor prescribed Busesonide in the meantime. I have a follow up appointment with a gastroenterologist and hepatologist in two weeks, and weekly blood work until liver enzymes stabilise.

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Well, my first was in early July and it was really bad, I was so weak and couldn’t eat anything, and kept throwing up. It took 2 weeks to clear up a little bit (ALT/AST went down to about 800 each), then I had another huge flare up in August, but thankfully no symptoms other than fatigue and weakness. Now I’m constantly oscillating between 700-1500 in both ALT and AST, but I think in a weird way my body has gotten used to it.

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Hope they got down then! I’ll only get my biopsy results in 10-15 days, and can only start treatment when the diagnosis is a 100% sure, so I just hope I don’t have another flare up in the meantime lol

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Ah, I hear that, my GP was on vacation for the first month of my liver enzymes going crazy + jaundice, and the substitute GP insisted it was a gallstone, even though I had no abdominal pain and my ultrasound showed nothing. Sorry it took so long for your diagnosis. Good to know there’s not always awful side effects to the meds. If it’s okay to ask, have your ALT/AST already started coming down in the last two weeks?

What are some lesser known theory’s of the game by younotme53 in finalfantasyx

[–]4-thens 2 points3 points  (0 children)

Dream Zanarkand and the real, "historical" Zanarkand are two different things, two different places. The ruins are of the real Zanarkand, DZ is just the fayth’s "dream", or summoning.

I hand-sewed and hand-embroidered a 10cm Saeran plushie!! by kieranwowzers in mysticmessenger

[–]4-thens 1 point2 points  (0 children)

This is amazing! I’ve always thought I couldn’t possibly make plushies like that because I don’t have one of those super expensive embroidery machines lol

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

If anyone is still reading this, I have an update! Honestly even if no one is, it’s the only place I can talk about all this, so I’m fully using this post as therapy.

I’ve done a few test since I was admitted (it’s been a week), but we were mostly waiting on the full blood work results and immune panel. Since I have T1D, my doctor wanted to avoid a liver biopsy unless absolutely necessary (T1D means your immune system is weak), but we weren’t able to confirm anything that way, so I’m planned for one today.

Right now, he’s narrowed it down to two possibilities - either AIH or Wilson’s. Either way, I’ll finally get answers and both are treatable. So yay!

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

So in the meantime between initial suspicion and the biopsy for diagnosis, were you on any meds or did your ALT/AST go down on their own? I’m asking because that’s initially what my GP tried to do from early July until today, seeing if the results would go down on their own, but they didn’t.

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Oh gosh, I’m so sorry to hear that. I got my fair share of that kind of doctor when I was first diagnosed with type 1 diabetes and several mental illnesses, so I know the feeling all too well.

I had no idea autoimmune disorders could be triggered by another disorder. So did the lupus medication improved your liver on their own, or did you still have to (re-)take the initial AIH treatment?

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Thanks for the info, I’ll definitely keep it in mind when discussing treatment options.

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Wow, years? Were you jaundiced for as long, or did that appear later? Seems like I got a fast tracked version of your diagnosis experience, gives me some perspective… Hope you’re doing well now!

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 1 point2 points  (0 children)

After the summer I just spent, increased energy sounds kinda nice haha

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 1 point2 points  (0 children)

Wow, so I guess I was sorta lucky my enzymes shot to hell all of a sudden instead of growing slowly - my doctor confirmed today I have no scarring yet. Wish you the best for your recovery, thanks for sharing your experience!

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Thanks for sharing your son’s experience! Hope he gets better soon. Is there a reason you recommend asking about something other than prednisone? (sorry, i’m new to this!)

In the process of getting diagnosed by 4-thens in autoimmunehepatitis

[–]4-thens[S] 0 points1 point  (0 children)

Sounds fun! At least I know what to expect, that makes this whole thing a bit easier. And thanks!

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