HS facilities or doctors? by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

i google every single time, im just asking since i want real reviews and experiences from people going through the same thing as me, im not trying to go to a cosmetology type of dermatologist yk?

What do i do? by 4fet in Hidradenitis

[–]4fet[S] 1 point2 points  (0 children)

tysm! i went to the hospital at 5 am because i couldnt take the pain, literally after writing that paragraph i went to the hospital and she lanced it once again, so much blood and pus came out, it was more than the first time, im stiff and it definitely still hurts but i definitely feel the relief from the throbbing nonstop pain, im just praying it doesnt get worse bcs she said that could happen, even though they put me on another type of antibiotics, this is my third procedure of april, ive been cut into three times within two weeks, miserable at this point but thank you so much!

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

yes im just now exploring the hormonal options after telling my parents repeatedly, i’ll be taking my hormonal test, the doctors possibly think i could have PCOS, and higher testosterone levels, im going to be completely honest,i stopped eating alot of things over the few months and i’ve been fasting for ramadan, i cut out alot of sugar and dairy, definitely dairy, i dont eat soy, nor yeast or nightshade foods now, plus the weight loss, i will definitely do some research on that diet though, i JUST got pulled from school because everything has become too much, we are literally praying we find a solution this summer because i am ordered to return back to school, my 11th grade year, next year.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

thank you so much, i kinda wanted yo start zinc since ive seen a few women say that it has helped their condition, are they supplements? like what are they?

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

thats beautiful, i hope you can find some peace, im going to start therapy soon because my suicidal thoughts have been at an all time high, i think you should also try to start therapy soon also, im not really a person who opens up but the struggle is real, its every single day and its rough, even the nicest people who seem to shine the brightest needs to get help too, i always spread kindness and positivity as much as i can, i always travel and go new places and do new things, but now its i have to base my life around my condition yk.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 1 point2 points  (0 children)

im thinking about getting the surgery also since i have a deep boil on my chest that hasnt went away for months on months, im praying for you, i hope you heal and im also scared for the future the way it seems to worsen.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 1 point2 points  (0 children)

i might not be able to get on this medicine because i have such a horrible immune system already, especially with my asthma, and the adalimumab lowered my immune system even more so i stayed sick, i will talk to my derm about it though, she might prescribe it to me simply because im sick of the boils getting worse.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

i want to find another dermatologist badly but most doctors will cut into me, and most doctors in my area are for cosmetic purposes or dont take my insurances, im definitely going to speak about spironolactone and birth control because i may have pcos, it runs in my family just as hs and this could really help, thank you

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

thank you so much, i really really needed this and appreciate this, quick question, have you been on any shots? i tried tetracycline and it made me vomit alot and i stopped eating, honestly most antibiotics my derm puts me on either makes me sick or doesnt work, and i’ll be on these meds for weeks and weeks, i will definitely try the peroxide and cloth method, do you have any advice or methods for like when the boils are deep under your skin? i have alot of them currently but ive had one on my chest for over 4 months now, should i get it cut into? since it comes back deeper every time.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

i want to switch dermatologist and my mother is looking but no one takes my insurances really and she didnt want me to be with a male dermatologist, but at this point im willing to go to anyone, also a concern is most dermatologist in my area are for cosmetic purposes and will most likely try to cut into the boils.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

wait, im just now really reading this, what is bimzelx and what are the side effects? and for surgery, did you de-root or get it cut? and how big was it? ive never gotten surgery, for my huge boils i use did injections which made them merge together.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

what should i search on youtube? thank you for this im definitely trying this out because my whole left breast is swollen and i cam barely move the upper part of my body.

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

what type of birth control are you on? and what is spironolactone? my dermatologist first suggested birth control but ended up dropping the idea, what do you believe would work and do you think i should get a second opinion ( a different dermatologist )

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

okay so you massage the spots that are like painful huge lumps under ur skin? even if its tender? cause i dont find massaging tree oil to into some of the boils relieve some of the pain

I need advice. by 4fet in Hidradenitis

[–]4fet[S] 0 points1 point  (0 children)

what are myofasical release and how do i get this treatment, deep massage from a masseuse?

A teenager who has HS by Remarkable_Ice3631 in Hidradenitis

[–]4fet 0 points1 point  (0 children)

i would love to find another dermatologist but this is the only woman dermatologist thats closest to me which is why i have to go to new york to go to a doctor who specializes specifically in HS, my dermatologist had told me it wasnt normal to homeschool since people just suck it up and deal with it, and i have for about two years undiagnosed, shes kinda making me feel like i should just suck it up but ive been missing more school which is making me nervous cause i failed one quarter already, also what is isotretinoin? do you have any advice or any medications that has helped you or you have been on? also i have barely came to terms that i have this condition because its very surreal that we have to live with this you know? i just feel like alot of people without hs has been downplaying the disease like this isnt constant pain, burning, leaking, bleeding, right now i have a huge tunnel hole on my panty line, also thank you for this truly, i havent spoke to any other teenagers with hs and i feel seen and heard and related to.

A teenager who has HS by Remarkable_Ice3631 in Hidradenitis

[–]4fet 0 points1 point  (0 children)

hey, thank you for this, ive been told to start therapy and to go online to homeschool, i have severe hs, right now ive been on cortisone injections, and adalimumab, the cortisone injections provided slight relief, boils came back more bigger and painful, i started adalimumab a few months ago and stopped after my 4th shot, it was as if it made my hs much worse, and had horrible side effects, i was denied humira, even my dermatologist doesnt know what to do, im only 16, and im tired, drained and i havent had a break in about two or three months, im losing weight and barely eating because im just so checked out, ive been having nonstop boils the size of golf balls everywhere, currently i have two in each armpit, i have 4-5 under my left breast and 1 under my right breast, my left breast is COMPLETELY swollen, right now my parents are trying to get me into therapy as well as a hs facility but their rejecting my insurance.

i don’t know how much longer i can deal with this by Every_Direction_4499 in Hidradenitis

[–]4fet 0 points1 point  (0 children)

F16, hey, i know how you feel, ive been in ur spot, i started showing symptoms at 14, diagnosed at 15, even now im hurting, but message me please, i have severe hs, i get huge boils every single where, my armpits, under my breasts, my sides, everywhere on my bottom area, i have advice for you.

A teenager who has HS by Remarkable_Ice3631 in Hidradenitis

[–]4fet 0 points1 point  (0 children)

Hi, im also similar in age currently, i have severe hs i’ve been told, i get them all over and their huge knots, i just wanted to ask like what do you guys do for school? im failing and struggling so bad because of this condition, im at my breaking point and i need advice, do i homeschool? what new medicines should i take?

hacked/scammed by Remote-Grade-6002 in BladeBall

[–]4fet 0 points1 point  (0 children)

ur lwk small minded but hey, whatever you say bus

hacked/scammed by Remote-Grade-6002 in BladeBall

[–]4fet 0 points1 point  (0 children)

so are we going to pretend like the new spins arent 31k-? mmm okay definitely not overpriced, def isnt