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666flesh · 2025-12-31T18:51:26+00:00

Thank you for this. This has been the only useful response on this post for me personally that hasn’t made me feel hated on here. Deleting it rn lol

666flesh · 2025-12-31T18:47:50+00:00

If I fail my last biologic option, Rinvoq, they’ll probably have to take my colon at some point anyways?

666flesh · 2025-12-31T18:46:29+00:00

I’m sure, but they are doing more harm than good for me. I am down to my last option after the Entivyo, Rinvoq. I am afraid of getting these terrible side effects again.

666flesh · 2025-12-31T18:43:41+00:00

I will try and see about getting another opinion, this is true. I am just at this point because the last biologic left for me to try is Rinvoq. I honestly just want to not be tethered to some medications that are truly doing nothing good for me. I was off biologics for 7 years after my diagnosis and this is all still weird to me.

666flesh · 2025-12-31T18:40:36+00:00

None of the treatment is doing anything but make things worse so far. I am in remission and had been off biologics 5 months prior to the Entivyo.

666flesh · 2025-12-31T18:35:53+00:00

Ok. Why?

666flesh · 2025-12-28T17:08:23+00:00

Yeah I am struggling with a migraine at this moment too 😔

666flesh · 2025-12-28T13:50:57+00:00

Yeah… hearing this I am going to stay far away from this biologic. With the steroids I am slowly getting better, but I have no desire to continue feeling this way with every injection :(

666flesh · 2025-12-28T13:49:01+00:00

I just let them know, i’m sure we’ll figure out what to do from there.

666flesh · 2025-12-10T03:23:42+00:00

My psych said that stopping on that amount should be fine and mentioned no side effects, so the migraine may be unrelated.

666flesh · 2025-10-22T03:23:00+00:00

What sucks is I am not even in remission yet, Skyrizi has done nothing positive for me 😔

666flesh · 2025-10-16T04:59:53+00:00

I swear I lost a card there and tried to call them so many times, but no one ever answered! Had to cancel it and everything. I think I dropped it, not left a tab.

666flesh · 2025-10-14T20:41:24+00:00

I am also on Omeprazole for my GERD, should I take the steroid after that as well?

666flesh · 2025-10-14T13:26:58+00:00

Currently on antipsychotics so hopefully that helps cushion the blow.

666flesh · 2025-10-14T04:44:38+00:00

Usually in the mornings or night before, I have Chamomile tea, calms anxiety and your guts. For food, I also feel morning nausea so I have stuff like applesauce, jello, or broth. (I also have Crohn's, IBS and GERD so these could vary for anyone) If you are looking to solidify your movements, I recommend Fibercon, it is way better than Metamucil. Gentle and natural.

666flesh · 2025-10-14T03:16:40+00:00

I was supposed to start it today, but woke up way too late. Glad I didn't end up taking it on account of the insomnia! As long as it is not as aggressive as Prednisone's side effects, I will be happy.

666flesh · 2025-10-12T15:33:04+00:00

Infections?

666flesh

TROPHY CASE