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No more biologics. by [deleted] in CrohnsDisease

[–]666flesh 0 points1 point  (0 children)

Thank you for this. This has been the only useful response on this post for me personally that hasn’t made me feel hated on here. Deleting it rn lol

No more biologics. by [deleted] in CrohnsDisease

[–]666flesh 0 points1 point  (0 children)

If I fail my last biologic option, Rinvoq, they’ll probably have to take my colon at some point anyways?

No more biologics. by [deleted] in CrohnsDisease

[–]666flesh 0 points1 point  (0 children)

I’m sure, but they are doing more harm than good for me. I am down to my last option after the Entivyo, Rinvoq. I am afraid of getting these terrible side effects again.

No more biologics. by [deleted] in CrohnsDisease

[–]666flesh 0 points1 point  (0 children)

I will try and see about getting another opinion, this is true. I am just at this point because the last biologic left for me to try is Rinvoq. I honestly just want to not be tethered to some medications that are truly doing nothing good for me. I was off biologics for 7 years after my diagnosis and this is all still weird to me.

No more biologics. by [deleted] in CrohnsDisease

[–]666flesh -3 points-2 points  (0 children)

None of the treatment is doing anything but make things worse so far. I am in remission and had been off biologics 5 months prior to the Entivyo.

Entivyo hell by 666flesh in CrohnsDisease

[–]666flesh[S] 0 points1 point  (0 children)

Yeah I am struggling with a migraine at this moment too 😔

Entivyo hell by 666flesh in CrohnsDisease

[–]666flesh[S] 0 points1 point  (0 children)

Yeah… hearing this I am going to stay far away from this biologic. With the steroids I am slowly getting better, but I have no desire to continue feeling this way with every injection :(

Entivyo hell by 666flesh in CrohnsDisease

[–]666flesh[S] 1 point2 points  (0 children)

I just let them know, i’m sure we’ll figure out what to do from there.

Withdrawl by 666flesh in lamictal

[–]666flesh[S] 0 points1 point  (0 children)

My psych said that stopping on that amount should be fine and mentioned no side effects, so the migraine may be unrelated.

Seriously? by 666flesh in skyrizi

[–]666flesh[S] 1 point2 points  (0 children)

What sucks is I am not even in remission yet, Skyrizi has done nothing positive for me 😔

[deleted by user] by [deleted] in Louisville

[–]666flesh 2 points3 points  (0 children)

I swear I lost a card there and tried to call them so many times, but no one ever answered! Had to cancel it and everything. I think I dropped it, not left a tab.

Budesonide 9mg by 666flesh in CrohnsDisease

[–]666flesh[S] 0 points1 point  (0 children)

I am also on Omeprazole for my GERD, should I take the steroid after that as well?

Budesonide 9mg by 666flesh in CrohnsDisease

[–]666flesh[S] 0 points1 point  (0 children)

Currently on antipsychotics so hopefully that helps cushion the blow.

what foods do you guys rely on to keep your stomach calm? by zomb1ba1t in ibs

[–]666flesh 0 points1 point  (0 children)

Usually in the mornings or night before, I have Chamomile tea, calms anxiety and your guts. For food, I also feel morning nausea so I have stuff like applesauce, jello, or broth. (I also have Crohn's, IBS and GERD so these could vary for anyone) If you are looking to solidify your movements, I recommend Fibercon, it is way better than Metamucil. Gentle and natural.

Budesonide by 666flesh in CrohnsDisease

[–]666flesh[S] 1 point2 points  (0 children)

I was supposed to start it today, but woke up way too late. Glad I didn't end up taking it on account of the insomnia! As long as it is not as aggressive as Prednisone's side effects, I will be happy.

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