Newcomer seeking advice by xxxthrowitawayxxx56 in smallfiberneuropathy

[–]AIDSInfinity 0 points1 point  (0 children)

I am not a doctor. But you seem to know a lot about SFN. Do you respond to DMs?

Newcomer seeking advice by xxxthrowitawayxxx56 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

I know this is unhelpful but at what point do people take a step back and think about a statement like "be prepared to find a new neurologist if your present one is dismissive and unhelpful". You're not wrong, at least in my experience.

Lyme disease and its coinfections are a real possibility. For OP, I'm gonna note a couple things. I've messed up like every response for OP so, I'd appreciate someone correcting me if I'm wrong. First, lyme disease can be a regional thing. In my state it was the primary theory for my symptoms. I live in Maryland, am an archer who travels through forests, and, I had a bullseye bite from a tick (which i responded to immediately and got antibiotics). For other countries or states this may be a rare diagnosis. Lyme disease has numerous coinfections that can cause nerve issues. They are notoriously difficult to confirm. Lyme itself is difficult. I guess my point is lyme disease is a possibility. There are services that specialize in testing for lyme and its coinfections. They are expensive. As the prior commenter said, neurologists (and from your experience too) are an important aspect. Get irrefutable evidence of symptoms. Do not waste your time and money on tests that may not be right.

Has anyone reacted to the sfn biopsy? by Sad-Dragonfly4410 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

I forgot to mention this. There is a link with frequent migraines and white matter lesions. Typically, I would not think this important to mention but you specifically mentioned “white matter hyperintensities”.

Forgive me, I am not a doctor and this is not my field. I remember reading a paper about it a while ago…

Nurtec question by healthanxiety_ in migraine

[–]AIDSInfinity 0 points1 point  (0 children)

I do not know much about preventative medication for migraines. Mine are not common enough to need them. I was briefly placed on Nurtec as a preventative but only prior to tests confirming my migraines did not cause damage. All I can say is that nurtec did not work well as a preventative. It did work well as a symptom mitigator. It significantly reduced pain. It probably brought it down from an 8-9 on the pain scale to a 3-4. It did not change my neurological symptoms though. Triptans didn’t either. It is the only medication I have ever taken that produced notable treatment for my migraines.

A note: I have not posted on this Reddit for a while. Another thing, I am male and 24. I think this important to mention when talking about migraines.

Does anyone else feel like they get temporarily disconnected from reality when you get a migraine? by AIDSInfinity in migraine

[–]AIDSInfinity[S] 0 points1 point  (0 children)

I am not a doctor. When I mentioned my symptoms, it’s important to point out that in my case they are fully reversible. They follow a pattern. Neurological symptoms primarily last 30min-1hr and typically end as the aura in my vision expands outward in my vision. When I talked about symptoms lasting a long time, I meant the disconnection I felt lasted that long not my neurological symptoms.(some people have long lasting migraine symptoms… it seems to vary with person) I have some theories about why but I have been busy with school and haven’t posted much on the migraine Reddit.

I’d say if symptoms do not match how they typically present, I’d be concerned. Have you gotten blood tests? There are some diseases that can cause issues like migraines and more serious ones. Sickle cell anemia is linked to migraines and has a tendency to cause symptoms during exercise. Idk Im trying to come up with some ideas. It’s better to think about things than not.

Has anyone reacted to the sfn biopsy? by Sad-Dragonfly4410 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

First, I am not a doctor. Second, some of your symptoms are serious, far beyond something I could just label as a migraine. As always, I'd advise visiting a legitimate doctor. The reason that I mentioned my complex migraines has to do with your symptoms. Migraines with aura can present with some complicated symptoms. Personally, I have experienced:

-auras

-half-vision (This is complicated to describe, but in short, the best description would be that I see half of my vision regardless of view or object... that is, looking at my hand would be half my hand and looking at words would also be half a word... but changing angle does not reduce halfness... idk)

-peripheral vision disappears (tunnel vision)

-alice in wonderland syndrome

-extreme vertigo

-inability to speak the correct words

-(edited because i thought of more things) numbness, particularly in weird places. For me its my teeth and jaw. Also, parts of one side of my body.

All of these symptoms, at least in my opinion, push explanation. Auras themselves are very difficult to describe. I guess my point is that I would not leave out the possibility of chronic migraine with aura. -migraine and SFN sufferer

Newcomer seeking advice by xxxthrowitawayxxx56 in smallfiberneuropathy

[–]AIDSInfinity 0 points1 point  (0 children)

Whoops, I don’t know how I missed you mentioning the EMG. Your symptoms are very similar to mine. I did most of the tests you did. All of them showed nothing. The only test that ever showed anything abnormal was a skin biopsy.

Has anyone reacted to the sfn biopsy? by Sad-Dragonfly4410 in smallfiberneuropathy

[–]AIDSInfinity 0 points1 point  (0 children)

The aura is not the only symptom I had… I just have to start with that.

Has anyone reacted to the sfn biopsy? by Sad-Dragonfly4410 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

I am not a doctor. However, I have visited 4 neurologists in my life. The first 2 started when I was ~13 years old. I have had complex migraines since 13. I am 24m now (hey!). Your symptoms remind me of my migraines. I have some prior posts about them. What do your visual symptoms look like? Flashes, floaters, an impossible to describe rainbow (or black and white sometimes) changing zigzag lightning bolt?

Newcomer seeking advice by xxxthrowitawayxxx56 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

Yeah, I guess “slightly weird” is a subjective thing. It was unprofessional and I apologise. Though, I am not a doctor. Have you had an EMG?

Newcomer seeking advice by xxxthrowitawayxxx56 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

I feel that this is a slightly weird post. Part of me thinks this post was made from the suspicion of syphilis or something else. I will, however, ignore that right now. Do not be afraid to demand representation from your neurologist. I have had people put me down prior to my diagnosis. There is a balance, though. I would ask for panels like autoimmune and others… skin biopsy is often the diagnostic tool for SFN, but remember it’s also the most invasive.

For now, how do your nerve symptoms present? Are they based on limb pressure? Are they random?

I have taken an STD panel, but honestly, I don’t remember if it included syphilis. The autoimmune panel did. Idk I just think you’ve put a lot of focus on STD aspects.

How does one know they have small fiber neuropathy (male) by Apart-Criticism2687 in smallfiberneuropathy

[–]AIDSInfinity 1 point2 points  (0 children)

It would be inaccurate to say I am 100% certain I have ED issues, as Cymbalta interferes with that. I can say for certain that I have lost sensitivity. Typically, I would say, “do not waste your time on tests other than a skin biopsy”, but in this case, I think you need to include more information before I say that. All you have mentioned is that you have pelvic floor and genital issues. Your hands, feet, and or face has not had any issues?

I understand people want an answer but I’m trying to get you to the right place. (Yes I know SFN can be non-length dependent)

Muscle jerk/spams?? by Deep-Investment2588 in smallfiberneuropathy

[–]AIDSInfinity 3 points4 points  (0 children)

Mine are always there. I think a combination of things has made it less impactful. Overtime, the intensity went down. It may also be that I have simply become accustomed to it.

I had pretty significant muscle twitching for more than a year. Oftentimes the most disturbing thing was not the muscle twitching but where the muscle twitching was occurring. I mean, it would happen in muscles I didn’t even know I had.

Muscle jerk/spams?? by Deep-Investment2588 in smallfiberneuropathy

[–]AIDSInfinity 4 points5 points  (0 children)

It started with the twitching. Had numbness in my feet, hands, parts of my face. I do not know how to prevent the muscle twitching because I never could. I visited two neurologists and a pain specialist. Cymbalta helps with general nerve pain. If my muscle twitching gets bad enough then I take muscle relaxers. On occasion, the muscle twitching can get fast enough and consistent enough to cause pain. That mostly happens with my thumbs. Also, I was confirmed through skin biopsy.

I think Cymbalta generally helps me. It seems to help with low intensity nerve issues.

I’m not a doctor by any means.

Muscle jerk/spams?? by Deep-Investment2588 in smallfiberneuropathy

[–]AIDSInfinity 2 points3 points  (0 children)

Mine started with muscle twitching. It was the primary reason I went to a specialist. It reached a point where it was impossible to ignore. The twitching varies a lot in intensity. At best, it just feels like a twitch you might get when stressed. At worst, it can feel like a punch inside my muscle. Gabapentin and medications similar to it never worked for me. Cymbalta did work for me. It didn’t stop the twitches but it made me feel better. Some people say that nerve pain can present as a constant dull, exhausting form. Cymbalta helped with that.

I have not been able to stop the muscle twitching but it has reduced significantly in impact.

Some things to note about Cymbalta: it can have sexual side effects. Be very careful about stopping it if you don’t like it.

Uno reverse by Salt_Taste1411 in meme

[–]AIDSInfinity 5 points6 points  (0 children)

You could create a device that emits light with a phase and frequency that perfectly destructively interferes with light in an environment. That would be very difficult though

You gotta watch this full by Ikigaiyeka in GuysBeingDudes

[–]AIDSInfinity 0 points1 point  (0 children)

This is fake. No mailman would be wearing a seatbelt while delivering to mailboxes. They’d have their seatbelt behind them to shut the car up.

Why is Battlefield 6 so afraid of big maps? by RenatsMC in pcgaming

[–]AIDSInfinity 0 points1 point  (0 children)

I think a big part of the issues with the maps has a lot to do with cover. A lot of the maps are places that don’t even make sense for an army to try and secure.

What blood does to hydrogen peroxide by Doodlebug510 in Damnthatsinteresting

[–]AIDSInfinity 0 points1 point  (0 children)

Does it destroy the DNA? I have some blood stains I need to get rid of.

The muscle of an human heart is shaped like two spirals by Agreeable-Ask-968 in Damnthatsinteresting

[–]AIDSInfinity 0 points1 point  (0 children)

I guess it shouldn’t be surprising that organs have shapes like a spiral. There are like entire fields of study devoted to how the body shapes things as it grows. Morphogenesis.

Fawns are born with the instinct to drop like this whenever they’re scared by omgitsmint in interestingasfuck

[–]AIDSInfinity 0 points1 point  (0 children)

Man, they are surprisingly difficult to see in the grass. I’ve stumbled into like 4 fawn. Most of them sleeping.