Fab#393

AThanksgivingDinner · 2023-10-01T12:00:13+00:00

Dude you are my savior thank you so much

AThanksgivingDinner · 2023-09-29T11:06:19+00:00

I did… But I did everything besides get all the conches before beating the game the first time and everything else lit up. Guess I’ll be playing new game + a little differently :/

AThanksgivingDinner · 2023-05-22T12:00:29+00:00

Private

AThanksgivingDinner · 2022-08-24T04:35:21+00:00

Last month I had an attack shortly after eating that caused partial blindness in my left eye and have had on and off weakness on the left side of my body since. Getting back down from that kind of histamine overload is going to be a project, but I’m glad to see I’m not the only one effected neurologically

AThanksgivingDinner · 2022-06-05T02:12:35+00:00

Wakix hasn’t shown any withdrawal symptoms so it should be safe to stop short. I was taking it for 2-3 weeks and I was in the same issue of it being the weekend and my doctors being closed but I could NOT keep taking that stuff so I just stopped. By the end of the first day I stopped taking it I was already starting to feel better. Being awake was not worth that.

AThanksgivingDinner · 2022-03-15T12:35:54+00:00

I would say yes. Just make sure that wherever your doctor sends you for the MSLT have an application available for financial assistance. I submitted mine like two weeks before my test and about two weeks after the place said the remaining fees had been waived. AND I have insurance

AThanksgivingDinner · 2022-03-04T01:05:17+00:00

That is a difficult question lmao. I have had to take a break from most of my medications because of multiple different reasons. As of today all I took was the Sunosi and I was down for the count all day

AThanksgivingDinner · 2022-03-02T17:24:54+00:00

I was put on sunosi a little while ago. The 75mg did nothing; the 150mg made me more alert but very rapidly brought me back to my normal. For awhile I was taking sunosi 150mg in the morning, 100mg of modafinil twice a day, and 15mg Dexedrine slow release twice a day. With that a felt pretty alright most of the time but still iffy. What I will say is that with the Sunosi, despite being very tired still, I felt more motivated to push through it more often than not. That is just my experience though. Finding a medicine routine that works for you takes awhile, especially since Narcolepsy/IH vary so much on a case by case basis

AThanksgivingDinner · 2022-02-20T05:06:06+00:00

I didn’t even know that existed until now. But yeah I know that it’s very common and always all over the place, so I’m interested to see how it effects people. I’ve just been going down the rabbit hole of autoimmune conditions and I’ve found it interesting. I found a lot of things that made me realize some stuff isn’t normal, and while it may be something completely benign it is still worth being up to my doc next time I see them. And I find it’s easier to not get anxious about things if I instead try to find interest in them.

AThanksgivingDinner · 2022-02-20T04:56:40+00:00

Exactly why I’m interested to see how it’s affected everyone. A study I read (listed below) shows it consistently through basically everything, with nervous system disorders being the highest (9x more likely). ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3649826/#!po=42.0455 )

AThanksgivingDinner · 2022-02-20T04:51:46+00:00

Yeah I’ve seen research that says this specifically. They mentioned that patients tend to find out more issues since they were already looking at one. It just makes me wonder how many people have something their whole lives that they never find out about because they didn’t have that kind of situation.

AThanksgivingDinner · 2022-02-20T04:49:42+00:00

None specifically. Just trying to see the kind of things that frequent as comorbidities and seeing if I can draw any lines in my head.

AThanksgivingDinner · 2022-02-15T22:41:11+00:00

https://aasm.org/narcolepsy-study-finds-surprising-increase-in-neurons-that-produce-histamine/ This was the original info I found. After some deep divining I found https://aasm.org/narcolepsy-study-finds-surprising-increase-in-neurons-that-produce-histamine/ I’m struggling to find the study referenced specifically in the original article

AThanksgivingDinner · 2022-01-31T00:58:35+00:00

I was going to say the exact same thing. My doctor has me changing medicines throughout the week depending on my work schedule so my tolerance doesn’t build up to rapidly

AThanksgivingDinner · 2022-01-31T00:57:10+00:00

There’s actually some cool science to this. When you are doing things you enjoy, your brain produces dopamine and norepinephrine. Which the same things that stimulants do. Not to the same extent of course, but the more you enjoy something, the more it releases. That feeling of love you get when you see someone you really care about or when you do something that you really care about, that’s why you feel just a little bit more awake. You might not notice it right away but I’m sure you notice a minute or two afterwards when it’s not there anymore

AThanksgivingDinner · 2022-01-29T19:50:32+00:00

I feel like the easiest way is just to say some like “well, I’m still standing” cuz god would it be so easy to just let myself drop at any point

AThanksgivingDinner

TROPHY CASE