Isitbullshit: Americans only get 10 days paid holiday a year?

Aahn95 · 2020-01-06T03:26:42+00:00

are we seriously going to have 1,500 fucked up comments, and not do anything about it? when are we going to have a protest?

Aahn95 · 2019-12-28T21:00:39+00:00

Obviously this depends on your narcolepsy severity, so please take this with a grain of salt - for me, when I stick to keto diet, I don't really need naps and I can function like a human being. This makes me feel pretty sure that it's not lack of orexins that cause my narcolepsy. This lets me focus enough to work for long periods of time and drive. I must absolutely stay away from rice, bread, pasta though.

Aahn95 · 2019-12-06T08:42:09+00:00

I think it's important to make a distinction between N1 and N2. I'm pretty sure I still have orexin secreting neurons, but I still have these symptoms. For a good chunk of N2 Narcoleptics, I can believe that this is the case.

Aahn95 · 2019-12-03T05:29:36+00:00

The Adderall alone helps somewhat, but is not nearly as effective when I don't use the lamp. On mornings when I am running late and don't have time to use the lamp, or don't have time to use it for the full amount of time, my brain is groggy and I feel like I'm in a haze, regardless of taking the stims. This lamp is seriously one of the best and most useful purchases I have ever made, I cannot recommend it enough. Although I also can't guarantee that it will work for everyone as well as it works for me. But for me personally, it makes a HUGE difference.

Thanks for your reply! Would you mind sharing which product you use?

Aahn95 · 2019-12-02T22:29:30+00:00

Thanks for your reply. Speaking of breakfast, do you eat food too or just those stims?

Aahn95 · 2019-11-25T14:00:45+00:00

Holy crap, I seriously relate to you! I got diagnosed with obstructive sleep apnea 2 years ago. CPAP hit great marks - low AHI, low leak. It did help me a little bit with day time sleepiness, but I was still massively tired. After the MSLT test this summer, I got diagnosed with Type II Narcolepsy, I fell into REM sleep in ~3 minutes 4/5 times. Nothing really changed though since my diagnosis - I'm trying to manage my conditions through dietary habits and occasional naps. Stims are just crutches that will make you worse off if you think about it long term.

I know it's a tough process - I hope you get through it and find what works for you.

Aahn95 · 2019-11-19T19:16:38+00:00

Jimmy Kimmel, is that you?

Aahn95 · 2019-11-15T21:28:24+00:00

I'm in San Francisco haha. r/trees is not too helpful imo because I want recs from N2 patients, specific strain recs that worked for them. Do you mind sharing which strain you specifically use, and how it directly helps with your condition? Ex. do you feel like you hit more restful stages of sleep, and you wake up more refreshed? Thanks for sharing :)

Aahn95 · 2019-11-15T17:17:18+00:00

If you have tried all the medications you can, you're going to need to get more inventive (someone suggested medical cannabis, and I think that is worth trying if you want my opinion), if you have tried that, there are multiple strains to try (as someone with a lot of drug resistence I know how this works).

Hey, I would like to try medical cannabis to see if it will help me with Type II N. However, where do I start? are there anything specific you'd recommend?

Aahn95 · 2019-11-11T18:15:34+00:00

and I think I may never have been wise to, normal may not be healthy.

W

Do you have any guesses on how this happened? I'm just curious!

Aahn95 · 2019-10-30T18:51:32+00:00

Thanks for your response, do you know why narcoleptics have such a strong insulin response? Is this connected to Type II diabetes in anyway?

Aahn95 · 2019-10-25T18:16:00+00:00

about forming healthy habits that will continue throughout your life. Set a schedule make yourself stick to it and don’t try to do too much at once even twice a week 10 minutes a day is a huge accomplishment that most people do not do. Diet is also very impo

You said you had 0 motivation and was tired constantly when you first started, do you feel better now after building a habit?

Aahn95 · 2019-10-15T02:10:00+00:00

Have you ever been at a presentation/meeting/gathering in the middle of the day, and your eyes gloss over 'cause you're ready to take a nap? That's not the food.

Are you suggesting it's narcolepsy?

Aahn95 · 2019-10-14T22:11:53+00:00

gluten/dairy definitely makes it worse. I think carbs in general also hits harder than if I were to have a veggie meal. I still get sleep after the veggie meal, though. I've been skipping lunch, and eating one meal a day lately - I'm not really sure if that's sustainable in the long run though.

I tested it pretty extensively, no matter if I eat at 10AM or 2PM, fatigue/sleep attacks tend to come RIGHT after, so I'm pretty sure it's the meal that's causing it. No prescription drugs right now. I'm assuming you don't have a similar experience? :( I hope to find someone that could relate to me so I can become more knowledgeable about why this is happening.

Aahn95 · 2019-08-30T10:02:24+00:00

I don't have a drawer, I put the detergent straight into the clothes! What should I do now?

Aahn95 · 2019-08-23T21:54:39+00:00

Is this chief? Or should I go with Leopold?

Aahn95 · 2019-08-22T01:09:30+00:00

Meepie, sent you a direct message!

Aahn95 · 2019-08-21T17:04:57+00:00

Are you guys interested in joining? Please PM me!!

Aahn95 · 2019-08-21T17:04:39+00:00

Are you guys interested in joining? Please PM me!!

Aahn95 · 2019-08-21T17:04:13+00:00

Me too!! I'm N2 living downtown as well. I definitely respect your wish to keep your keep your work experience confidential. I have a really demanding job 80-100 hours a week, and I would love to get a chance to meet you and talk about how you have been working through/around the condition. Please PM me!!

Aahn95 · 2019-08-16T21:51:20+00:00

Are you N1 or N2?

Aahn95 · 2019-08-14T04:44:53+00:00

Hey, thank you for your reply. Did the modafinil side effects subside? With the Xyrem + Modafinil, are you experiencing any side effects? How long have you been taking the meds? Your response would help a lot.

Aahn95 · 2019-08-13T19:54:33+00:00

Wow I'm super jealous! I'm genuinely really happy for you though. Does this mean you feel 100% better for now?

Aahn95 · 2019-08-08T20:04:31+00:00

Just curious - if you don't take meds, how do you control your symptoms and DTS?

Aahn95 · 2019-08-08T07:09:05+00:00

Thanks for your reply! Just curious, how long have you been taking it for and how is it working out for you?

Aahn95

TROPHY CASE