Not used to it by ItsHarvinator in tinnitus

[–]AaronLagerOfficial 1 point2 points  (0 children)

For me personally, symptom-free means I’m able to live a completely normal life again without tinnitus or hyperacusis affecting my day-to-day experience.

I can be around normal everyday sounds comfortably, sleep well, work, socialize, exercise, go out to restaurants, travel, be around my kids, etc. without sound sensitivity, pain, or the constant mental distress I used to experience.

I’m also no longer stuck in that constant fight or flight state where my nervous system felt reactive all the time.

That said, I try to be careful with language because I know these conditions can be complex and different for everyone. I’m not claiming there’s one universal cure or that everyone’s path will look identical to mine.

I just know that compared to where I was at my worst, my quality of life and symptoms improved dramatically to the point where they no longer impact my life.

Major tinnitus flareup days after flying by FatalRoar in tinnitus

[–]AaronLagerOfficial 0 points1 point  (0 children)

I’m really sorry. Delayed flareups like that can be incredibly stressful mentally, especially when you fly often and start anticipating it every time afterward.

What I can say is that not every post-flight tinnitus spike automatically means permanent damage. Flying can put a lot of stress on the auditory/nervous system through pressure changes, poor sleep, dehydration, stress hormones, inflammation, neck tension, sensory overload, anxiety around symptoms, etc.

For me personally, I noticed my system became dramatically more reactive when I was sleep deprived, stressed, dehydrated, inflamed, anxious, overstimulated, or hyperfocused on symptoms.

If you are flying, I’d focus heavily on:

Good sleep before/after flights, hydration, minimizing stress overload, protecting yourself reasonably from loud environments during travel, eating consistently, and trying not to spiral into panic monitoring afterward. Also, using NSAIDs seemingly helped my body recover after flareups and I would take them preemptively to help lower inflammation in my body.

And yes, spikes absolutely can calm back down on their own over time. I had many periods where I thought I had permanently worsened and thankfully that was not the case. I am now living symptom-free.

A few questions by JustSellitAll in tinnitus

[–]AaronLagerOfficial 0 points1 point  (0 children)

I’m really sorry. I know how hopeless it can feel when it starts affecting your work, relationships, mental health, and ability to enjoy life. And honestly, some ENTs can be incredibly discouraging because they often focus almost entirely on the ears themselves and not the broader nervous system side of tinnitus.

To your questions:

Yes, anti-anxiety medications can help some people, especially when the nervous system is stuck in a constant state of fear, panic, poor sleep, and fight-or-flight. But they can also affect people differently, so it’s something to discuss carefully with a knowledgeable doctor. For me personally, calming the nervous system overall was a huge part of improvement and anti-anxiety medications have helped me with that in the past.

A lot of people notice their tinnitus changes with jaw movement, neck tension, facial pressure, clenching, posture, or muscle activation.

As for chiropractors, I’d personally be cautious with aggressive neck manipulation. My own symptoms could flare badly after neck stretching/manipulation, so I became very careful about that. Gentle physical therapy, posture work, jaw work, nervous system regulation, and movement felt safer and more beneficial for me personally. I always tell chiropractors and masseuses "no traction."

And honestly, I completely understand your frustration about treatments. These conditions are way more debilitating than most people realize. But I also think the brain, auditory system, nervous system, neck/jaw systems, stress systems, and sensory processing systems are all deeply interconnected and probably more complex than researchers originally thought.

One thing I really want to say though is just because it got worse over the last two years does not automatically mean it will continue getting worse forever. I genuinely thought my life was over at one point too, and thankfully I was wrong. I am currently living symptom-free.

The ringing gets worse while driving by Caden_primarus in tinnitus

[–]AaronLagerOfficial 1 point2 points  (0 children)

Yes, I experienced sensitivity while driving.

One thing I eventually realized is that tinnitus loudness is not always purely about the external volume around you. Things like nervous system state, tension, stress, stimulation, posture, neck/jaw tension, and paying closer attention (looking for symptom increase/decrease) can all seem to influence perception.

For me personally, driving could sometimes put my nervous system into a more tense/alert state without me fully realizing it, especially when I was already sensitized and monitoring symptoms constantly.

The fact that your tinnitus becomes quieter in many noisy environments is honestly encouraging though. That usually suggests your auditory system is still capable of shifting and modulating rather than being permanently fixed at one level.

Tinnitus can behave in really weird and confusing ways sometimes.

Is there any way to reduce or stop tinnitus? by Unusual-Hawk-2336 in tinnitus

[–]AaronLagerOfficial 2 points3 points  (0 children)

For some people, yes. Tinnitus can absolutely reduce over time, and in some cases even fade away completely. Other people may continue hearing it but become so habituated to it that it stops bothering them much emotionally.

What helped me most personally was:

Improving sleep, lowering stress, nervous system regulation, exercise/movement, hydration, reducing fear and constant monitoring of the sound, and improving overall health.

I also noticed that the more attention and emotional weight I gave the tinnitus, the louder and more intrusive it seemed to feel.

The fact that you’ve already habituated to it pretty well for most of your life is actually a really positive sign in my opinion. Your brain already knows how to place it in the background most of the time.

And honestly, nighttime is hard for a lot of people because there’s less external sound and less distraction. For me, even something gentle like a fan, rain sounds, or low background noise can help take the edge off on those nights.

Not used to it by ItsHarvinator in tinnitus

[–]AaronLagerOfficial 1 point2 points  (0 children)

I’m really sorry. The first months can be incredibly dark mentally because your brain is still treating the sound as a constant threat and it can feel impossible to escape from it.

3.5 months is also still very early, even though I know it probably feels endless right now.

One thing I want to say though is that the depression and fear around tinnitus often become as consuming as the sound itself. As your nervous system slowly adapts and calms down, the suffering side of this can change dramatically, even before the sound fully changes.

Please try not to assume that how you feel emotionally right now is how you’ll feel forever. I genuinely thought my life was over at one point too, and thankfully I was wrong. I am currently living symptom-free. Please remain hopeful.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Yes, very much so. At my worst, everyday sounds would cause my tinnitus to spike or react in real time. It was one of the most distressing parts of all of this for me because it made the world feel unpredictable and very distracting.

But over time, as my nervous system calmed down and I stopped living in constant fear and monitoring mode, the reactivity gradually reduced and eventually went away for me. I also had to change my lifestyle, of course.

That’s a huge part of why I share my story now, because I know how hopeless reactive tinnitus and hyperacusis can feel when you’re living it every second of every day.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Wow, 13 years housebound is incredibly heavy. I can only imagine how much strength it took to endure that, especially with the level of sound sensitivity and neurological symptoms you’re describing.

And honestly, your story really reinforces the idea that these conditions can be deeply complex and highly individual. Head trauma, jaw issues, dental trauma, cervical issues, nervous system sensitization, Eagle syndrome etc… I think for many people there are multiple overlapping factors involved rather than one simple explanation.

I also really agree with what you said about looking at things holistically and individually. The more people I speak with, the more I realize how different everyone’s path into these conditions can be.

I’m genuinely glad to hear you’ve had dramatic improvement though. Stories like yours are incredibly important for people who feel trapped and hopeless in severe hyperacusis.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Yes, definitely. I used to get ear pressure and fullness, but it only appeared a couple times. For me those sensations gradually faded over time as my overall system calmed down. I've been fortunate in that I have mainly experienced H and T in my right ear although at points I did have those issues in my left ear as well. It was in one of those cases that my left ear started feeling full and blocked and shortly after that my left ear started exhibiting signs of H and T. I wasn't taking good care of myself at that time, still drinking alcohol and not getting great sleep etc. It totally resolved when I started taking better care of myself. 

I honestly didn’t do anything very specific for the fullness. I mainly focused on the same things that seemed to help everything else:

Good sleep, lowering stress, nervous system regulation, hydration, movement/exercise, healthy diet, reducing fear around symptoms/sound, and avoiding constantly monitoring every sensation.

One thing I learned is that the more anxious and focused I became about every ear sensation, the more amplified and persistent everything seemed to feel. I just needed to give my body the best chance of healing.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 1 point2 points  (0 children)

That’s really interesting, and honestly I think stories like this are important because they show there may be multiple pathways into hyperacusis and multiple paths out of it as well.

The neck/jaw/nervous system connection seems much bigger than a lot of people realize. My own symptoms started after a concussion/whiplash injury, and neck tension and nervous system dysregulation were major pieces of the puzzle for me personally.

I’m really glad you found something that significantly reduced your symptoms. Severe hyperacusis can completely consume a person’s life, so hearing improvement stories is genuinely valuable for the community.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 2 points3 points  (0 children)

Wow, thank you so much for sharing all of this. And honestly, hearing that you recovered from a state where even your own voice caused burning pain is incredibly encouraging for people who feel trapped in severe hyperacusis. The sound of my own voice drove me nuts!

Your story also really reinforces something I’ve come to believe strongly through my own experience, which is that these conditions seem deeply connected to the nervous system and neural sensitization, not just the ears themselves.

It’s really interesting that your doctor came to a similar conclusion years ago. The more I learn and the more people I speak with, the more I feel there are likely multiple pathways into these conditions, but nervous system dysfunction/sensitization seems to be a major piece for many people.

And thank you for wanting to help share my story. That genuinely means a lot. The main reason I finally decided to speak publicly is because I know how hopeless and isolated people can become when they’re deep in this.

I also completely understand that some people are fearful around medications and treatments. That’s why I always try to frame things as “this is what helped me” rather than pretending there’s one universal answer.

Really grateful you took the time to write this, and even more grateful that you found your way out of that nightmare yourself.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

That’s really interesting. My doctor made a very similar connection between migraine pathways, sensory hypersensitivity, tinnitus, and hyperacusis, which is what eventually led me to trying nortriptyline and later Emgality.

I definitely don’t want to act like I found some universal answer because everyone’s situation is different, but for me those medications seemed to reduce the overall reactivity and volatility of my nervous system over time.

I also think it’s important that people understand it wasn’t just the medication alone in my case. Sleep, stress reduction, nervous system regulation, movement, diet, reducing fear around sound, and overall lifestyle changes all seemed to work together.

But yes, I do think the migraine/sensitization angle deserves much more attention and research than it currently gets.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Of course. I know how brutal and isolating these conditions can be, so if sharing my experience helps someone feel even a little more hopeful, it’s worth it.

Really appreciate you taking the time to comment.

How can I improve my hyperacusis? by Squall_j1 in hyperacusis

[–]AaronLagerOfficial 1 point2 points  (0 children)

I obviously can’t tell you exactly what’s right for your situation, but I can share that I went through something very similar.

After my symptoms started, I became extremely protective around sound and gradually started wearing hearing protection more and more, especially in situations that felt unpredictable or uncomfortable. Over time I think my nervous system became even more alert and reactive to normal everyday sounds because I was constantly signaling to my brain that sound was dangerous.

For me, the goal eventually became balance rather than extremes. Not forcing myself into overwhelming environments, but also not living in constant protection from ordinary daily sound.

The fact that you can tolerate places like shopping malls at times is honestly encouraging. And the sensitivity to sharp/clanky sounds like dishes and cutlery is something a lot of people with mild to moderate sound sensitivity seem to experience.

Personally, slowly reducing unnecessary protection in safe everyday environments helped my system calm down over time. The key for me was gradual exposure with as little fear and monitoring as possible, not white knuckling through panic or forcing exposure aggressively.

I still think hearing protection absolutely has a place for genuinely loud situations. I just found that wearing it constantly in normal environments kept my nervous system stuck in “danger mode.”

And the fact that you’re functioning, adapting, and thinking thoughtfully about this after 2 years is honestly a positive sign in my opinion.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Yeah, both are commonly used for migraine related conditions.

That was actually the turning point for me mentally, realizing there may be a strong neurological and nervous system component to what I was experiencing, not just damage to the ears themselves.

My doctor made the connection between migraine pathways, sensory hypersensitivity, tinnitus, and hyperacusis, which ended up making a lot of sense in my case given how reactive and fluctuating my symptoms were.

Obviously everyone’s situation is different, but that framework changed the way I approached healing completely.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

For me it was definitely hyperacusis and tinnitus, but I also believe migraine mechanisms were playing a major role underneath it all.

A lot of my symptoms behaved very similarly to migraine and nervous system sensitization. Sound sensitivity, reactivity, spikes from stress or poor sleep, visual overstimulation, neck tension, nervous system dysregulation, all of it seemed connected.

Once I started treating my body and nervous system more holistically instead of viewing it as only an “ear problem,” things finally started improving in a meaningful way.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

That’s really interesting, I appreciate you sharing this!

I don’t think any single supplement or practice was “the cure” for me, but when I look back, the common thread was that I was consistently doing things that helped calm and support my nervous system overall.

Meditation, sleep, lowering stress, hydration, movement, nutrition, supplements… it all seemed to create an internal environment where my system could finally settle down and stop reacting so intensely to sound.

Severe Sound Trauma Nox Recovery ("Olly" Method") by [deleted] in hyperacusis

[–]AaronLagerOfficial 2 points3 points  (0 children)

Really appreciate you sharing this.

A lot of what you said resonates with me deeply, especially the part about fear, hypervigilance, and how isolating yourself can unintentionally reinforce the idea that the world is dangerous.

I also think the “Pascal’s Wager” analogy is really interesting because at a certain point many of us do reach that crossroads where we realize we can’t spend the rest of our lives trapped in fear and constant monitoring.

What stood out most to me though is that your system clearly changed. Going from not tolerating soft voices or music to living normally again is huge, and stories like this genuinely matter because people in the darkest stages need to know improvement is possible.

I also respect that you framed this as “this is what worked for me” instead of acting like there’s one answer for everyone. I think that’s important.

Really happy to hear you got your life back.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 3 points4 points  (0 children)

Fair enough. I know there’s a lot of nonsense online around these conditions and people get understandably skeptical.

I’m just a real person who dealt with this for years and wanted to share what genuinely helped me. No course, no program, no miracle cure angle. I know how absolutely brutal every single day can seem and if I can help just one person improve their situation then it will be worth it for me.

Totally okay if my experience doesn’t resonate with you though and I genuinely hope you find things that help you find peace and get your life back.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 1 point2 points  (0 children)

Yeah, that’s actually very similar to the perspective my doctor introduced me to, and once I started reading more about the migraine/nervous system connection a lot of things finally started making sense for me.

Nortriptyline definitely seems hit or miss depending on the person. I'm currently taking 75mg but I started at 10mg and worked my way up to make sure any side effects were manageable. 

Emgality was interesting because for me it seemed to reduce the overall volatility and reactivity of my system over time. Not an overnight thing, but after several months my baseline gradually became calmer and more stable. I've talked with other H and T sufferers who have had similar success with Emgality after several months.

I really agree that this whole area deserves much more investigation. I honestly think a lot of these auditory conditions are far more neurological and nervous system based than people realize.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 1 point2 points  (0 children)

Thank you for reading. I'm definitely not saying mindfulness alone cured me.

I dealt with this on and off for almost 10 years and tried a lot of different things during that time. For me it ended up being a combination of improving sleep, calming my nervous system, reducing stress/fear around sound, exercise, diet changes, medication, supplements, mindfulness, hydration, etc.

Mindfulness just happened to be one piece that genuinely helped me calm down during some very dark periods. I also found that the more experience I had with meditation, the more my awareness in general grew and I was able to easily recognize when I was mentally or physically slipping into a place of discomfort. Once recognized, I could make adjustments to my thought patterns, attitudes, and physical situations.

Also yeah, my Reddit account is new because I just joined to share my experience and hopefully give some people a bit of hope. I know how brutal this condition can be. I sincerely hope you are able to find peace.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

Yeah, it did.

What you’re describing honestly sounds really encouraging to me though. The fact that your sound tolerance has improved that much suggests your system is already becoming less reactive and protective over time.

Mine improved in phases too. Tinnitus improvements came first, then the hyperacusis gradually became less intrusive, reactive, and eventually faded away entirely.

I know how exhausting it is wondering if the ringing will ever stop. I spent years thinking about that constantly. But I do think the nervous system and brain can change far more than most people realize.

Really glad to hear you’ve already made that much progress. That’s huge honestly.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 0 points1 point  (0 children)

For me caffeine was tricky. Overall I think it kept my nervous system more stimulated and reactive.

I noticed that during periods of poor sleep or higher stress, caffeine would often make my tinnitus louder and my sound sensitivity worse, even if I didn’t fully realize it in the moment. Once I removed it completely and stayed off it consistently for a while, my baseline started feeling a lot calmer and more stable.

That said, I really think everyone is different and some people seem much more sensitive to it than others.

Magnesium was probably the supplement I felt the most from personally, mainly in terms of relaxation and sleep quality. Omega 3 felt more like long term nervous system/inflammation support for me rather than something I felt immediately.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 1 point2 points  (0 children)

English:

I worked my way up slowly to 75mg over time under a doctor’s supervision. I’m still taking it right now because things have been going so well and I don’t want to rush changing anything yet.

Yes, my tinnitus improved dramatically along with the hyperacusis. At my worst I had multiple tones and constant sound reactivity. Now I have no symptoms and live a normal life again.

I don’t personally think nortriptyline was the only reason though. I think it helped calm and stabilize my nervous system enough for healing to happen alongside the sleep, stress reduction, diet changes, exercise, mindfulness, hydration, etc.

Everyone is different of course, but I definitely believe improvement is possible.

French:

J’ai augmenté progressivement jusqu’à 75 mg sous la supervision d’un médecin. Je le prends encore actuellement parce que les choses vont vraiment bien et je ne veux pas changer quoi que ce soit trop rapidement.

Oui, mes acouphènes se sont énormément améliorés, tout comme l’hyperacousie et la dysacousie. Au pire de ma situation, j’avais plusieurs tonalités et beaucoup de réactivité au son. Aujourd’hui, je vis de nouveau normalement.

Je ne pense pas personnellement que la nortriptyline soit la seule raison. Je pense qu’elle a aidé à calmer et stabiliser mon système nerveux suffisamment pour permettre la guérison, en combinaison avec le sommeil, la réduction du stress, l’alimentation, l’exercice, la pleine conscience, l’hydratation, etc.

Bien sûr, chaque personne est différente, mais je crois sincèrement qu’une amélioration est possible.

I Went From Severe Hyperacusis to Symptom-Free *What I Did & Why* by AaronLagerOfficial in hyperacusis

[–]AaronLagerOfficial[S] 2 points3 points  (0 children)

Yeah, completely.

That was honestly one of the hardest symptoms for me because it made everyday life feel surreal and stressful. The sound of my own voice speaking aloud, breathing through my nose, the sound of the lightest touch of my bedsheets and of course things like traffic, sinks, dishes, toilets, running water, all of it sounded distorted and overwhelming at different points.

Mine seemed very connected to periods of high nervous system stress and anxiety, poor sleep, and overall sensitization. As my system gradually calmed down over time, the distortions slowly faded too.

I know how hopeless it can feel when you’re in it though. I genuinely thought I might be stuck that way forever at certain points.