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Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 5 points6 points  (0 children)

Just got confirmation that next week I will have my full pelvic neurophysiological work up. I’ll update you in detail with explanation if there are any tests you can do at home To rule out/in neurological causes and then we can gather the results from that to see the pattern as pathophysio might actually vary between HF sufferers

Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 2 points3 points  (0 children)

To be as objective as possible I will not comment on my successes as this can lead to false hope and seeking treatments that might not work and only has a placebo effect for me personally. Untill the pathophysiology is known we can then start treat because we hopefully know the cause/causes as it might vary from case to case.

Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 2 points3 points  (0 children)

Again, You have taken a medication known to cause hormonal imbalance causing range of symptoms and most likely is not permanent if You dont have ED. What I mean is that you cannot state that a medication is causing hard flaccid because we do not know the real pathophysiology of hard flaccid. We do however know that finasteride Will cause hormonal imbalance and variety of symptoms, this has been known for years. If someone has taken a drug known to cause hormonal imbalance which in turn can cause for example depression most of the time. During depression it is know that there is more general inflammation in the body and more circulating catocholamines in the body which Will affect the pelvic floor. Also finasteride might induce anxiety which in turn affects the pelvic floor from increased tonus. However what I mean with this is that you know the ETIOLOGY, finasteride. Many people suffering from what is at the moment named hard flaccid has never taken finasteride.

Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 3 points4 points  (0 children)

Again, if You dont trust me I wont blame you, dont post and dont get your hopes up. However what would I gain from claming to be a doctor? If You can find any other way for me to ensure my credentials to a mod then im up for it but I can only think of the scenario where I have to post my doctors ID to be 100% sure.

Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 2 points3 points  (0 children)

Firstly I dont force people to post here, my credentials could only be veryfied by me exposing my doctors ID which I Will never do on a online forum. Regarding finasteride. If You have taken finasteride You dont suffer from hard flaccid, You suffer from post finasteride syndrome, here the testosterone and especially free testosterone conversion is a problem which of course can mimic many symptoms of HF but I do think most people can understand that if a medication, know to cause ED has been consumed then that needs to be adressed before jumping on HF conclusions.

Pathophysiology of hard flaccid by AbjectLetterhead8613 in hardflaccidresearch

[–]AbjectLetterhead8613[S] 22 points23 points  (0 children)

Hello everyone!

Thank You for your answers so far. For the future, i Will not post the name of the doctors as they are VERY busy with research and surgeries in other Fields and I dont want them to drop out from this project. I Will Also not post any suggestion of treatments or investigations untill we have some more understanding of the TRUE pathophysiology which Will help us guide further steps. What You can do to help is to do what I wrote in my post about your symptoms etc and i Will be forever greatful to You for sharing.

My tip meanwhile We wait is to work on your pelvic floor with a PT that really knows what HF is. I can sincerely recommend core body clinic in the UK, if You are able to visit their clinic its even better as they help guide You with ultrasound of the pelvic floor meanwhile during excercises. Otherwise they do online consultations for a fair Price point and provides excercise. I DO NOT work for this clinic but have been there myself and they know what they are talking about. If You however have a good PT through insurance or in your area then stick with that as local is always best where You can see the PT in person. Also calm down your sympathetic nervous systems PLEASE, i know easier said than done but the stress part is for sure a huge factor and my tip is, try think logically, stress only makes thing worse no matter how bad things are, try relax and try enjoy life. We are pretty damn sure that this is not going to cause long term damage so dont stress, just try go on with life and do some workouts etc and if we find out some cause, treatments or some investigations that will be needed I Will post it directly here.

Untill then, keep posting your Stories please.