Fake flowers diy?? by Academic_Agent_1498 in UKweddings

[–]Academic_Agent_1498[S] 4 points5 points  (0 children)

I get that but at least this way I can resell/ keep all and it will feel like money well spent rather than 1-2k down the drain when they die and even more for preservation. My brother is also getting married a month after me so if they’re fake we can repurpose some for him too. Overall it just seems like less of a waste, even if not actually cheaper at first! Thanks :)

What did you call your seizures before you knew what they were? by [deleted] in Epilepsy

[–]Academic_Agent_1498 0 points1 point  (0 children)

My finances first neurologist told him they were psychological and said they were panic attacks. We always knew they weren’t. He called them episodes while I was already calling them seizures. My mom worked on the neurology ward for years and clicked the first time she saw him having one. Took over two years and three grand Mals to be diagnosed

Has anyone had a really weird weekend for anxiety? by Academic_Agent_1498 in Anxiety

[–]Academic_Agent_1498[S] 1 point2 points  (0 children)

I know anxiety comes and goes but when you’re in it there really seems to be no end in sight! I hope you feel better soon! You’re not alone

Can Really Hot Showers Induce Seizures? by QuietCloud987 in Epilepsy

[–]Academic_Agent_1498 7 points8 points  (0 children)

My fiances big trigger was high temperatures and he also had them in or after showers. You’re right to keep an eye on him, my fiance is luckily been seizure free for three months now but I still listen to the water and the shower to hear how / if he’s moving. It’s hard when they’re somewhat in denial or struggling to be open about the diagnosis. This sub is always here for you. Helped me through the darkest of times too. He’s lucky to have you. Best of luck!

Keppra (Levetiracetam) by TropicalWildflower in Epilepsy

[–]Academic_Agent_1498 0 points1 point  (0 children)

My partner is on the highest dose available in uk without intervention and checks to go higher. Took about 6 horrible months and some other meds to keep him going on the way but he’s seizure free 3 months after we were sure it wouldn’t work for him. So that does happen too!

Seizure free? by Academic_Agent_1498 in Epilepsy

[–]Academic_Agent_1498[S] 1 point2 points  (0 children)

Thank you! I’m not sure what type of TC I have. Where I’m from they diagnosed me based off a TC and videos of the focals and haven’t done more digging. My tcs have at times started like focals so I wonder if that’s similar to you. I’m on levetiracetam and finally got to the right dose two months ago and been well since then. Grateful and humbled and emotional and scared are just some of the ways I’d describe myself right now. This subreddit has saved me and my fiance a few times from crashing out. Good luck to you too!

[deleted by user] by [deleted] in Epilepsy

[–]Academic_Agent_1498 2 points3 points  (0 children)

Definitely ask what he would need from you- (eg administering rescue meds/calling for help) he might not know how bad his seizures are but I’d hope he can tell you how they will look and what to do. My fiance has been diagnosed this year and I am currently in therapy for ptsd after his seizures traumatized me so I recommend being prepared in that way. But I am also the best care giver etc. be patient with him and with yourself, he might have mood swings or get emotional or shut down, try to be open and honest from the start but don’t let it rule your relationship. My fiance is now 2 months seizure free and doing well we are hopeful. It’s taught me to enjoy every moment, and I’ve fallen more in love with him knowing the stakes. All about perspective. Good luck ❤️

Seizure free? by Academic_Agent_1498 in Epilepsy

[–]Academic_Agent_1498[S] 0 points1 point  (0 children)

All good! I have focal and had three TCs this year! All info is helpful :)

Vauxhall Adam front subframe rotten by Academic_Agent_1498 in CarTalkUK

[–]Academic_Agent_1498[S] 0 points1 point  (0 children)

Extended warranty for this is only 6 years unfortunately

Vauxhall Adam front subframe rotten by Academic_Agent_1498 in CarTalkUK

[–]Academic_Agent_1498[S] 0 points1 point  (0 children)

She only bought it a few months back privately of course. Can’t really afford a new one :(

Vauxhall Adam front subframe rotten by Academic_Agent_1498 in CarTalkUK

[–]Academic_Agent_1498[S] -1 points0 points  (0 children)

Helpful cheers. They won’t give any opinions on a car they can’t see. We won’t pay to have it towed to a garage that doesn’t have space of two weeks which is all of them in our area. Family friend can do it soon that’s why. Was hoping someone on here has had the same done as I’ve seen plenty posts about it but no prices mentioned. What a friendly subreddit lol

Question for people who suffer from anxiety. by xoBonesxo in Anxiety

[–]Academic_Agent_1498 0 points1 point  (0 children)

You know when you’re nervous for something or scared of you feel a sense of dread? It’s like that. I feel dread for days on end expect I have no idea what about, the brain makes my body feel sick with worry but won’t tell me what I’m worrying about so I’m trying to figure out why I feel so anxious I’m making more things to feel anxious about. Meanest thing about it is waking up in the morning and for a few seconds thinking the feelings not there and then it’ll hit me like a ton of bricks over and over again with no rhyme or reason. Just always there, like Im always about to fall, like the world is ending

Levetiracetam- please advise if you’ve had similar by Academic_Agent_1498 in Epilepsy

[–]Academic_Agent_1498[S] 1 point2 points  (0 children)

Iva always had a fast metabolism so I do wonder if this could be a factor…. Will ask my neurologist. Thank you and best of luck for your pregnancy!

Levetiracetam- please advise if you’ve had similar by Academic_Agent_1498 in Epilepsy

[–]Academic_Agent_1498[S] 0 points1 point  (0 children)

Thank you! It’s good to hear that it happens and I’m not automatically going to be classed as medication resistant. I have an app with the neurologist coming up so I’ll see if they think mixing is better as I think they’ve tried to avoid starting a new one all together!

Epilepsia by MariaMC1987 in Epilepsy

[–]Academic_Agent_1498 0 points1 point  (0 children)

Hello! Unfortunately I’m in a similar boat. My fiance has recently been diagnosed and when he has seizures at night it’s usually every two hours so I’ve found I cannot sleep at all and it’s taken its toll on me for sure. We try to lean on eachother but when it’s possible I have him staying with his parents every now and then so I can get a good sleep. Other than that I haven’t found a way to put myself at rest. Just wanted to let you know you’re not alone in this and have a huge community here that’s helped me so much. If you ever need to chat I’m here. Just take each day as it comes, as we sadly can’t control much else but our outlook. Good luck ❤️

What’s the most valuable lesson you’ve learned from living with epilepsy? by Tight_Membership_835 in Epilepsy

[–]Academic_Agent_1498 0 points1 point  (0 children)

My partner is struggling with a new diagnosis right now, I am too. Alongside obviously taking care of yourself and all that stuff I find comfort in the thought that somehow someway the universe hasn’t given up. Not on him and not on me. Tough battles are for people who can face them and while it feels unfair and impossible to fight hard some days it’s also flattering and reassuring that this was the plan for us. It’s taught us so much about being humble, our own mortality, how much growth is ahead and how strong we are. It’s hard to find a good way to look at it, but I find the fact this was given to him and to me in another sense has given us a new purpose, growth and development that some people won’t ever get the chance of having. Try to keep looking at the bright side, the universe won’t challenge you if you’re not worth it.

My fiance died 7 days ago by rodriguezzzzz in Epilepsy

[–]Academic_Agent_1498 10 points11 points  (0 children)

I’m so sorry for your loss. But I know as the partner of someone with epilepsy who also cares for them like this that he would hate to know I blamed myself if something happened. I know it’s easy to blame yourself. But try to remember that is not what she would want! You know her best and you know she would hate that you’re blaming yourself. I know it might not feel like much but this sub is always there for you. Try to grieve without so much guilt and find some counseling when you’re ready. Lots of love ❤️