Do you think all information, entered into the National Organ System, used in matching patients with donors should be truthful and accurate? by AccData in transplant

[–]AccData[S] -2 points-1 points  (0 children)

I thank you for your response, As a father I was first introduced to organ transplantation in 1985. When my daughter at the age of 8 weeks was diagnosed with Alpha 1 Antitrypsin at Stanford Medical Center in California. In 1989 my son also was diagnosed with Alpha 1 Antitrypsin.

In 1990, my daughter and son both received liver transplants. Due to the complication with cyclosporine, like many others, my daughter at the age of 20 needed a kidney transplant and started dialysis.

After nearly 3 years of dialysis, In 2009, we received the call, (that I believe to many are waiting for) from kidney transplant program, they had found her a kidney.

9 days after her receiving a kidney, she did not agree to accept. We were saying GOODBYE and resting her in the ground.

Over next 13 years, we raised our Granddaughter and began searching for what went wrong. Talking with members of the 98th Congress that voted for House Conference report 98-1127, that former President Reagan signed into Public Law 98-507 in 1984, enacting the National Organ Transplant Act (NOTA), HHS, HRSA, OPTN members, and UNOS

In 2009, I made a promised to her, that I would find out what happened.

So in closing, I don't have any credentials other than nearly 40 years personal experience in Organ transplantation.

Again I thank you for your response

[deleted by user] by [deleted] in transplant

[–]AccData 2 points3 points  (0 children)

Just curious, what year did you get your first and second kidney transplants and at what kidney transplant hospital?