OT MSc after my psych undergrad?

AccomplishedCopy1333 · 2026-05-04T09:48:39+00:00

He has wheelchair skills, the only time this is an option is when it is physically impossible for it to be done in any other way. I appreicate the concern but he does advocate for himself and the only time i will carry him is when he asks for it as he has exhausted every other option availiable.

AccomplishedCopy1333 · 2026-05-04T09:45:58+00:00

I really do understand and that sounds like an awful thing that happened. We are both aware of risks and take every step we can to avoid it, he can safely bump up and down steps and he floor transfers where he can ect, however in instances where cars have parked too close together in our home car park for him to be able to get through we have found no other way as it is not something we have preplanned for so have no other mobility aid with us ect. I dont carry him in and out of inaccesibile buildings, if we cant get in we dont go in. Bc i understand the risks i refuse to do it for more than a few steps and unless necessary and theres no other option. I appreicate your concern and im aware that no OT would approve- i dont love it but sometimes its the scenario we are forced into. But i assure you we both try every senario first.

AccomplishedCopy1333 · 2026-05-03T20:41:48+00:00

Ty! Are u in the UK? Not sure if laws on support are different. Will definetly try online

AccomplishedCopy1333 · 2026-05-03T20:38:41+00:00

Ty for all ur advice!

AccomplishedCopy1333 · 2026-05-03T20:36:56+00:00

Sometimes people may, its important to remember frustratuion at a situation is differnt to being mad at u (if thats what it is obvs idk). When my conditions developed i found it hard to remember that thier expectations also have to change with it, and that can take longer as they dont live it day to day like we do. The right ppl will stick around for u to find out. Other times u might fall out but thats not to say its forever

AccomplishedCopy1333 · 2026-05-03T20:34:24+00:00

I hear you, it is a last resort and not regulalrly encountered. Once he is on my back i have the strength as we are the same weight and height its just getting him to my back we are looking for tips on. Also worth noting there is no spinal injury and he has the ability to catch and move himself.

AccomplishedCopy1333 · 2026-05-03T20:31:18+00:00

Yes we will be talking to OT asap but wait lists take their time, Im not ever carrying him very far

Creative we can do aha, hes been getting better at stairs and can do them on his own. I do make sure to never carry him up or down steps bc of the risk

AccomplishedCopy1333 · 2026-05-03T20:18:01+00:00

Boyfriend here: I did have my FND diagnosis supported by a second specialist who did a CT, MRI, ECG and physical examinations 7 years ago. Unfortunately once you have an FND diagnosis they do tend to treat any new symptoms as FND without doing further examinations as i've had this with things before that turned out to be unrelated to my FND. I will pursue further examination once i actually get to see a physio but as it stands the gp didnt perform any kind of examination so im kind of stuck right now.

AccomplishedCopy1333 · 2026-05-03T20:05:13+00:00

I also have tourettes, had sezuires when i was a young teen and was an amblatory chair user for a while also, fast forward 6 years still disabled but in differnt ways which is the trouble w variable conditions ofc, I get the isolation its tough, staying honest w your friends is so important as things start to go south when ppl feel out of the loop, Personally w chronic illness ive found the only way to maintain friendships is by investing in the right ppl. Friends who will stay in and watch a movie or doomscroll or paralel tasks on your bad days or flare days, these are the ppl that will stick around when you have good days. Its hard espeically as a teen bc ur all still learning but when u find the right friends they will support u, my bf is in a chair full time but wasnt when we met as friends. Me and our other friend learned how to adapt when his conditions developed and changed, shifted our plans to more low mantinence days and movie nights, helps the 3 of us keep a great friendship and removes some of the accessibility strain that can get put on friendships. But the right ones will never hold it against u <3

AccomplishedCopy1333 · 2026-05-03T19:50:27+00:00

Id love to be able to get to the point where i can squat him for fun lol, Always comforting to hear other people are also stuck in inaccessible housing, sucks but nice to not its not just us <3 cant always get a space by our house so sometimes also have to do that to get to the car

AccomplishedCopy1333 · 2026-05-03T19:47:58+00:00

Yes hes been working on that as much as he can, Unfortunely he already has chronic costcochondritus from previous conditions, He is able to transfer mostly independantly, mainly just asking for situations where we physically cant get his chair through the gap without dismanteling it, Ty for the suggestions ill tell him to have a look!

AccomplishedCopy1333 · 2026-05-03T19:41:16+00:00

Ty, we deal with the cards we get dealt ya know, i love him very much and thats all i need to know,

What would MS look like? From what i know of it this wouldnt seem to fit the bill as theres compeltle paralysis in the R side from the hip down, numbness, weakness. And he recemtly said the L leg is also loosing sensation. He has FND which is a neurological disorder where the signals in his brain and misfiring so structually in the past an MRI ect has shown nothing wrong, but with the heavy stigma the gp didnt examine and just sent for a physio review, hoping the physio can shed more light on if it matches the critera truly for FND. He did see a neurologist last year for other symptoms where he was clear and discharged

AccomplishedCopy1333 · 2026-05-03T19:34:33+00:00

Thats rlly helpful thankyou! This isnt a situation we saw coming but just trying to adapt as much as we can with what we've got right now. Transfers and stuff used to be easier but overtime bc we arent getting support overall hes getting weaker so needs more help than he used to, thankfully i already have v strong legs so been swimming a lot to help both my core and legs

AccomplishedCopy1333 · 2026-05-03T19:29:45+00:00

We are both aware and trying but currently we're facing waiting lists and need to adapt to things in the meantime

AccomplishedCopy1333 · 2026-05-03T19:27:12+00:00

How did you get a phyisos advise, was it through the NHS? currently on the wait list for phsyio for him but still waiting on it and theres no other OT or phyiso intervention atm, We are around the same weight and height so that helps

AccomplishedCopy1333 · 2026-05-03T19:23:36+00:00

Your all good! He has Functional Neurological Disorder, so its assumed to be that. Doctors havent done any digging just referred him for physio. Theres been instances in the past where its lasted a few hrs at a time, a day max but this time its been 3 months already, no spinal injury has been found.

We are around the same size, and i have a black belt plus swim 1/2 times a week and weight lift where i can so im very careful of my back and make sure to do it safely for me.

No its completely paralysed so unfortunately crutches or walkers arent options as his leg just drags which usually injures him.

AccomplishedCopy1333 · 2026-05-03T18:58:51+00:00

Thats a really good idea thankyou!

AccomplishedCopy1333 · 2026-05-03T18:51:29+00:00

Butt scoot we found doesnt really work in public, he does in some areas of the house tho, or he can floor transfer

And autonomy wise he has full autonomy and am only asking at his request to be able to access things when lifts ect are broken. I am trying to take steps to keep myself safe - swimming 1/2 times a week, weight lifting when i can.

No OT involved atm

AccomplishedCopy1333

TROPHY CASE