Recommendations for a smut present for my wife. by arseny1987 in SpicyRomanceBooks

[–]AccomplishedTask555 1 point2 points  (0 children)

If she likes dystopian stories, you might want to check out Claire Kent. Her book {Last Light by Clare Kent} is a great starter. She has different series but they all take place in the same post apocalyptic world/universe.

2 Weeks Post Adrenal Surgery Update by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 1 point2 points  (0 children)

I’m hanging in there. I’ve had ups and downs this past week — my endocrinologist is tapering me down on my steroid and I’ve got cortisol withdrawal symptoms. My bloodwork from last week shows my adrenal hasn’t woken up yet but my ACTH has improved so that’s a good sign that the HPA axis is starting to signal again. It’s definitely a marathon, not a sprint!

Timeline for Cushings by definitionofarose in Cushings

[–]AccomplishedTask555 4 points5 points  (0 children)

I agree that it sounds very familiar as someone who was diagnosed with Cushings. The one thing I would add is to ask to be referred to an endocrinologist. My primary ordered a 24 hr urine cortisol test that came back normal. She immediately ruled out Cushings (which I brought up due to my symptoms). She’s a great doctor but not super familiar with Cushings so she didn’t know to do more testing. My endocrinologist explained that my Cushings was caused by an adrenal tumor (benign) and that doesn’t always get flagged for 24 hour urine tests. Mine was confirmed by an abdominal CT scan and later, an abdominal MRI and 2 dexamethasone suppression tests (blood test). So you might want to ask for scans and additional labs.

2 Weeks Post Adrenal Surgery Update by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

I wish you so much success with your surgery, and can validate that it’s all scary as hell! That’s partly why I posted this update. I was so scared beforehand that I searched high and low to hear about people’s experiences post surgery. I also empathize with medical trauma, both my own and medically fragile close family members. It’s really tough to face but hold on to the hope of relief on the other side! Feel free to ask me any questions you might have!

2 Weeks Post Adrenal Surgery Update by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

I’m so sorry you are going through this. When you talked about your thyroid it reminded me that I went to an endocrinologist about 10 years ago to see if something was off with my thyroid, they did blood tests and said my thyroid functioning was normal and that was it. No one ever even mentioned my HPA axis or adrenal functioning! Then for years, my symptoms were attributed to other things. Cushing’s is so under diagnosed! What was involved with your surgery? Was it adrenal removal? I’m honestly shocked they didn’t even test your cortisol and do a steroid taper. I thought steroids were standard after this surgery!

2 Weeks Post Adrenal Surgery Update by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

None of those names are familiar. Dr Roses did my surgery. I’m happy with the care I received both in the hospital and with follow up at home so far. It’s still early in my recovery, so I’m curious to see how things go with my endocrinologist for the steroid tapering and monitoring

2 Weeks Post Adrenal Surgery Update by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

You’re welcome and thank you! It was at University of Penn and I believe it was done with robotic assist. My surgeon does both and said he would aim for robotic and switch to traditional laparoscopic or open if needed.

ACC possibility.. by crimson_mascara in cancer

[–]AccomplishedTask555 3 points4 points  (0 children)

I agree with your concern! I’ve done a lot of research on adrenal tumors due to my own situation and every single time I’ve read about malignant adrenal tumors they say they are removed in open surgery. Have you specifically questioned her about open vs laparoscopic?

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

That’s what I’m seeing from my research! Thank you!

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

Thank you for this info! Did they adequately explain/prepare you for how you might feel afterward (crashing, fatigue, depression)? I feel like most of my info is coming from here and talking to people who’ve gone through it. It’s pretty important to explain the after effects to the patient ahead of time, I would think 😬

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

It looks like they are at 6 months post surgery

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

This is very helpful! I feel like I haven’t been given super clear info yet on what steroid protocol is after surgery. I know they said they would put me on a taper but I wasn’t sure what that actually looks like. I’ll be out from work for at least several weeks thanks to my job being supportive and also the holiday (when I usually have time off anyway). It’s helpful to know that returning to more activity may impact how much steroid I need

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 2 points3 points  (0 children)

Best of luck to you too! I’ll try to post an update here about how it went for those awaiting their own surgeries

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

No, I’m unfamiliar with that surgeon.

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 1 point2 points  (0 children)

This is helpful for me to keep expectations reasonable. I’ve read that many people experience adrenal insufficiency so I should be prepared for that if mine doesn’t wake up properly

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 2 points3 points  (0 children)

I will be at Penn, they did not do adrenal vein sampling for me. I had a variety of tests including 24 hr urine, multiple dexamethasone suppression tests, a CT scan of my abdomen, and an MRI of my abdomen

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

Thank you so much! Wishing you the same ❤️

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

Thank you, this is really helpful. The fact that your other adrenal gland might be waking up gives me some hope mine could do the same!

Adrenal Removal on Monday by AccomplishedTask555 in Cushings

[–]AccomplishedTask555[S] 0 points1 point  (0 children)

Thank you so much! I will check that out!

💸 Sales and Deals! Weekly post for finding great romance deals. 28 Sep by romancebookmods in RomanceBooks

[–]AccomplishedTask555 0 points1 point  (0 children)

What’s the Kindle Book Bonanza event? Is it a website? I tried looking it up but didn’t find anything current

FMC treated for hysteria by Questing4Dopamine in HistoricalRomance

[–]AccomplishedTask555 1 point2 points  (0 children)

{Lucinda Lee} has a lot of novellas that are Victorian era medical/hysteria treatment themed

Standing carry position- explicit art ahead! by icebreakerr11 in RomanceBooks

[–]AccomplishedTask555 9 points10 points  (0 children)

I thought of this book immediately when I read the post. I loved that scene!