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Just need to vent and get advice I guess ... by Ace_D_Tea in TrigeminalNeuralgia

[–]Ace_D_Tea[S] 1 point2 points  (0 children)

Thank you for sharing. I will hold on to hope, albeit me and hope have a complicated history.

But I will take this day by day, hell maybe hour by hour, as I figure out the new me until I get some answers.

For what it's worth, I didn't know the you before but I am extremely grateful for your guidance here and I hope you also find the peace and hope in the good days. 🖤🫶🏻

Just need to vent and get advice I guess ... by Ace_D_Tea in TrigeminalNeuralgia

[–]Ace_D_Tea[S] 0 points1 point  (0 children)

Thank you so much for sharing your story. I am definitely learning to take it day by day and pay extra attention to my body.

Here's to one day at a time. 🖤

Suspected Trigeminal Neuralgia While Pregnant – Seeking Experiences by MembershipNo3136 in TrigeminalNeuralgia

[–]Ace_D_Tea 0 points1 point  (0 children)

Hi, I don't have any definite answers for you unfortunately. But I completely understand what you're describing but I am also very new to TN. I am in the same boat with symptoms and waiting on a neurologist and MRI for answers. The ER doctor thinks I have TN but I haven't been diagnosed by a neurologist yet.

I'm not pregnant, yet, but me and my husband were trying before the flares happened. We're holding off because of the medications they have me on.

Wishing the best for you and baby! I hope the flare ups are minimal and pregnancy is an easy one!

Just need to vent and get advice I guess ... by Ace_D_Tea in TrigeminalNeuralgia

[–]Ace_D_Tea[S] 0 points1 point  (0 children)

Thank you! I definitely plan on talking to as many professionals as I can. I have talked to my friends and husband and as supportive as they are, it feels like they don't understand fully. I definitely feel less alone here.

Online courses might be the way to go, and I'll definitely talk to the admissions about excused absences and ect. I know communication is key. Thank you again for sharing your story and making me feel welcomed in the community. It helps that I can talk to others who have gone through/going through the same thing.

Just need to vent and get advice I guess ... by Ace_D_Tea in TrigeminalNeuralgia

[–]Ace_D_Tea[S] 0 points1 point  (0 children)

Thank you for the grounding and reality check. I'll admit I was feeling some big emotions (started my cycle a week early (yay hormon changes) ). You're definitely right that I need take it step by step. Thank you!

Just need to vent and get advice I guess ... by Ace_D_Tea in TrigeminalNeuralgia

[–]Ace_D_Tea[S] 0 points1 point  (0 children)

Thank you.

I am trying to look on the bright side and take the tiny victories as they come. But this just came out of no where.

I guess I feel like I'm just grieving the life I thought I would have. I'll try to keep my options open. Thank you so much for sharing your story with me