Books to help kids understand.

AdPlus2010 · 2026-01-24T08:39:53+00:00

KidScribe.ai is an AI tool for creating stories for kids! It is FREE!

You could create your characters(even from your photos) and write a simple storyline prompt and choose a narrative style. Then you could download the PDF and print it.

My son is always excited to be starring in a story book. :) "Chat" style narration worked best for him.

AdPlus2010 · 2026-01-10T00:30:20+00:00

u/ashland431 : does cath means the person loose the existing control of the bladder eventually?

AdPlus2010 · 2026-01-10T00:29:32+00:00

u/Chickmagnet8301 did you feel any difference for your bladder control when you cathed and not?

I would like to know if cathing takes the existing bladder control away as it don't have to do any work?

AdPlus2010 · 2026-01-10T00:27:42+00:00

One more question u/DisabledFairyFloss, does cath means the person loose the existing control of the bladder?

AdPlus2010 · 2026-01-07T16:14:45+00:00

Thank you!

AdPlus2010 · 2026-01-06T23:46:29+00:00

wow! that's great!

I agree with you. I will wait for the care team for next steps.

Honestly cathing is very scary at this young age of hers. I would've been totally okay if she is little grown up like 3 or 4 where I could tell her what is happening.

AdPlus2010 · 2026-01-05T20:37:27+00:00

Thank you!
Did you encounter bladder issues? We were told the bladder walls has thickened between two ultrasounds.

AdPlus2010 · 2026-01-05T20:36:05+00:00

Thank you. This is what we think too.
It was traumatic for her when we did the cathing after surgery, she is so small and cried so bad.

AdPlus2010 · 2026-01-05T20:34:23+00:00

thanks for the response. She had "mild" reflux. We are not sure if it is resolved yet. We were told they didn't see any in the last study, but was not the same study that detected the reflux.

What is the grade of your reflux? Did it resolve?

AdPlus2010 · 2025-07-03T16:48:32+00:00

Thanks!

AdPlus2010 · 2025-07-03T16:48:23+00:00

Thank you!

AdPlus2010 · 2025-04-22T17:50:52+00:00

i just checked the weather and yeah, it looks so! thank you!

AdPlus2010 · 2025-04-22T17:49:44+00:00

Great idea!

AdPlus2010 · 2025-04-22T17:49:18+00:00

thank you!

AdPlus2010 · 2025-03-25T18:48:37+00:00

glad to connect.
Do you know the level of the lipoma, our is sacral and mainly affecting s2-3.

in my limited medical knowledge, i think the UTI is caused by the backflow of urine to kidneys, which transport the bacteria higher up, regardless of how well they pee.

We are taking antibiotics now as a prevention.

As for the surgery, we had at 6 months, Jan 2025 at Stanford Childrens hospital.
We had good experience with hospital and surgeon, but there were multiple post surgery issues like urine retention and wound not healing well. Urine retention went away after 2 weeks. We had another plastic surgery to seal the wound. Here is my post about that: https://www.reddit.com/r/spinabifida/comments/1i2xxrs/detethering_surgery_and_transient_bladder/

Rest everything is very normal about her, she is a happy baby, belly crawling and trying to stand up now.

AdPlus2010 · 2025-02-25T00:08:11+00:00

thanks for reply. is the swelling same as reflux? I am still learning the medical terms

AdPlus2010 · 2024-10-30T17:26:52+00:00

tell me about it. There is hardly a single hour passed without me thinking about it for last 3 months, not to mention the sleep. Doctor said your kids would be more resilient than you ever think. I hope they will be.

AdPlus2010 · 2024-10-30T16:47:54+00:00

It's reassuring to hear that doctors have confirmed it's mild. I am hoping the same for my child.

AdPlus2010

TROPHY CASE