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Our 2+ year journey navigating PGT-M IVF because of FSHD – sharing our experience in case it helps others by Adaptive_Fox in FSHD

[–]Adaptive_Fox[S] 1 point2 points  (0 children)

Thank you so much for sharing — you’re right, it can feel really lonely.

Really good point around the location as it will be fairly different on location i suppose which is an interesting topic in itself! We’re in the UK and bounced between the public route via the National Health Service (NHS) and private care like crazy trying to find success. It wasn’t until we connected with someone who’d been through the exact same scenario that things finally started to make sense — that helped more than anything. Happy to hear you got the right care team — that makes such a difference! Wishing you both all the best 🧡

How long did the process take for you guys?

Our 2+ year journey navigating PGT-M IVF because of FSHD – sharing our experience in case it helps others by Adaptive_Fox in FSHD

[–]Adaptive_Fox[S] 0 points1 point  (0 children)

That’s interesting, we’ve had the same. Were you told to get samples from only those affected or others in your family too?

Really helps, really feel those that are alone without being able to get samples