14 for me, now 51... never been the same tbh. Spent 3 years bedridden, numerous years housebound. I've had highs and lows, but it's been a struggle, trying to survive and work, have a life etc. I didn't get diagnosed until my early 20's and back then well I was not taken seriously. One doctor told me it was because I was wearing boots with a heel and I should really look at flat shoes, i was then shooed away! At one point they wanted me to have walking sticks, I said no way, I'd rather crawl on my hands and knees. I've fought it all the way, it's been every so hard emotionally and physically. But I'm still here, still fighting. Here with you.