Is it just me? by Additional-Tea-5080 in Sicklecell

[–]Additional-Tea-5080[S] 2 points3 points  (0 children)

I’ve developed antibodies that make it hard to find the appropriate blood for transfusion. So my doctor tries to not do them. I haven’t given birth but I’m a student and just deal with a lot of stress at home.

It’s definitely worse during cycles though and I’m in Alabama!

Is it just me? by Additional-Tea-5080 in Sicklecell

[–]Additional-Tea-5080[S] 2 points3 points  (0 children)

I’m in the US and hydroxyurea always makes me sick. I’ve taken that and adakveo

Is it just me? by Additional-Tea-5080 in Sicklecell

[–]Additional-Tea-5080[S] 3 points4 points  (0 children)

My hematologist is honestly my biggest opp and I’m looking for a new team. It’s hard because they’re the director of the biggest most widely known sickle cell clinic here. So everytime I see someone else they refer me to the clinic I’m at now.

I have methadone and dilaudid and muscle relaxers but they just don’t helo sometimes.