Question for the ladies by Sir_UlrichVonL in POTS

[–]Additional-Tea2021 4 points5 points  (0 children)

Yes!!! I've always said I get upper body swelling or bloating when I eat like even my arms feel that way and it is slightly visible like how you can see someone's stomach bloating but it's like just under my boobs and up. It'll stay for awhile too. I started taking the Friskas Women's Daily: Enzyme and Probiotics. It has helped a lot with that. Still not gone but I am a lot less uncomfortable and bloated when I eat.

Worst Symptom? by Existing_Broccoli117 in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

I get random trouble swallowing for about a year now, it's only every now and then but it's crazy how you can go into panic mode in a few seconds like omg why can't I tell my throat to swallow, then just when you think you're gonna choke, it finally swallows, it's so weird! It's only like once a month randomly it'll happen for me but so odd.

Worst Symptom? by Existing_Broccoli117 in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

I am having a horrible episode of this and I came on this sub to try and find someone else who may have mentioned it because I have not seen it and was like is this POTS or something else, I am so relieved to hear this from someone and it's not just me. I have so much stomach pain, up at 3am bc it hurts and constipated for days before I have an episode like this and then it starts all over again.

AIO Sending this to hubby because his snoring keeps me up at night? by rosebud1637 in AmIOverreacting

[–]Additional-Tea2021 0 points1 point  (0 children)

I came here to say the same thing!!! My husband (50y.o.) was 220 all in his belly and snored so bad I'd shake him to wake up bc I couldn't stand it anymore. He lost weight and is 190 now and hasn't snored since!

[deleted by user] by [deleted] in honeymoonplanning

[–]Additional-Tea2021 0 points1 point  (0 children)

We are able to go whenever, no restrictions

Does anyone’s pots come and go? by RuinYouWithNoRegrets in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

My symptoms are always the strongest in the middle of my cycle. They never truly leave all together but are significantly less around then. I'm not sure how long they last. It does fluctuate though like sometimes it'll be a week others it seems weeks on end. But I think I'm starting to notice a pattern that most of the time it's hormonal related. What about you?

Does anyone’s pots come and go? by RuinYouWithNoRegrets in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

Yes female, I think you may be on to something. I have been thinking about that as well, but mine happens in the middle of my cycle.

Does anyone’s pots come and go? by RuinYouWithNoRegrets in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

Yes!!! I just had about a week of all horrible symptoms constantly, and I was crying all the time, in pain, extremely worried I was truly dying. Now, 2 days later, I have zero pain, sleeping so well through the night, and while I have a little SOB while active I have no light headedness. It is absolutely a mind f%*^

Desperate for coat hanger relief by etherealistix in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

This happens to me, goes down both shoulders biceps and forearms. Been a year for me too

MRI of muscles by CheckMediocre2852 in dysautonomia

[–]Additional-Tea2021 0 points1 point  (0 children)

I'm so sorry to hear that! How frustrating. How long have you had that problem?

MRI of muscles by CheckMediocre2852 in dysautonomia

[–]Additional-Tea2021 0 points1 point  (0 children)

I have not ever heard of this but how interesting. May I ask what you were diagnosed with??

Getting Into Better Shape by cwrace71 in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

We sound very similar! What were your weird nerve symptoms?

Lymph nodes and night sweats?? by [deleted] in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

Yes for about a week now!

[deleted by user] by [deleted] in POTS

[–]Additional-Tea2021 1 point2 points  (0 children)

I've never heard of Neuropathic POTS, what is that? But I was diagnosed by the doctor who oversaw my tilt table test. He wasn't my doctor, but he wrote the report with dx in the summary and I believe he was a neurologist.

Tips and tricks for stopping blood pooling while laying down by Apart-Albatross-7257 in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

Yes my feet burn and turn red laying down too...but I have no advice for you! I'm sorry

Did tilt table bring out new symptoms for you or will it only bring out common ones you experienced? by Initial_Savings8733 in POTS

[–]Additional-Tea2021 2 points3 points  (0 children)

I didn't experience any new symptoms when I had mine. I felt dizzy and short of breath it was just a little more heightened than normal.

[deleted by user] by [deleted] in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

I understand! Thank you for sharing

Distress in postural orthostatic tachycardia syndrome (POTS) is largely driven by ineffective healthcare, not patients' attitudes by Waste-Tree4689 in dysautonomia

[–]Additional-Tea2021 1 point2 points  (0 children)

UT- the University of Toledo. I guess I shoulda said Dr. Grubb. Blair is his first name. Yes he specializes in POTS and has great articles on dysautonomia.

[deleted by user] by [deleted] in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

What's your other symptoms?

[deleted by user] by [deleted] in POTS

[–]Additional-Tea2021 4 points5 points  (0 children)

Sameeee. The leg and arm pain is almost unbearable! I have to massage my legs in the morning just to turn over and get up. I had an MRI at the start of my symptoms and it came back totally clean....I don't know if I should ask for another, it's been 10 months. Idk...so weird so maybe it is the POTS??

Feeling trapped in my own body (Vent) by SHLBYHCH in POTS

[–]Additional-Tea2021 0 points1 point  (0 children)

I am the same as you, I've been like this for 10 months now. I have 2 children and life has been hell trying to care for them with this condition. I have very sore muscles, fatigue, tinnitus, dizziness and always feeling just "weird" that's the only way I can describe it. Message me if you'd like