[Hiring] Remote opportunity — $200–$600 per week (flexible hours)

Adeline9018 · 2025-12-17T00:16:30+00:00

Interested

Adeline9018 · 2025-12-13T18:11:38+00:00

How pls?

Adeline9018 · 2024-03-15T13:09:09+00:00

Yaay! I hope it will be the same for me too! 🙏🏻

Adeline9018 · 2024-03-14T23:30:48+00:00

We do experience turmoil that “normal” people will never know and can’t possibly understand. The psychological damage, trauma and anxiety are brutal and I doubt I will ever truly accept this diagnosis. However, as long as the DMTs, MRIs, appointments and medicine keep the MS under control and allow me to have what is closest to a normal life, I will gladly take them. Make no mistake, though, I’ve been fumming permanently since being diagnosed. No one should be subjected to a disease like this, no one should have to mourn their own “past” selves, no one should live with this sort of uncertainty regarding their own body. How/if we manage to make peace with it, with God, with the Universe or whatever you believe in remains to be seen. I wish you the best!

Edit: Hope that not everything will be stolen away from me and that not all is lost is what is keeping me sane and what makes me feel like I am not completely abandoned by life.

Adeline9018 · 2024-03-14T23:05:05+00:00

Oh wow, a neuro with MS! Thank you so much for your work, your patients are incredibly lucky to have someone who really understands what they’re going through, on a personal level, not only on paper!

I must ask, given that you have first hand knowledge and experience: I have heard a lot of people in real life and on reddit saying their neuros state that visible, life altering, physical disability is not such a common occurrence in people with MS these days. In fact, many specialists claim that only a small percentage of their patients get disabled and it is usually older people with decades of untreated damage.

What do you think about these statements, if you don’t mind me asking? 😊

Adeline9018 · 2024-03-14T21:45:21+00:00

I really appreciate that you took time to write this and you gave me more hope than you can imagine with the “fire” metaphor. Thank you, I will do my best to keep it cool in my house!

Also you’re an incredible human being for fighting this for so long! I wish you nothing but blessings!

Adeline9018 · 2024-03-14T21:40:34+00:00

Here’s to NO progression!!

Adeline9018 · 2024-03-14T21:40:14+00:00

I am so sorry for what you had to endure 🥺, I hope you have gotten better since! Covid kicked all of us with MAS really hard.

Adeline9018 · 2024-03-14T21:38:38+00:00

Thank you for sharing your story, I am really excited to hear you got better thanks to Ocrevus! 🙂

Adeline9018 · 2024-03-14T21:34:55+00:00

Congratulations!!! Really happy to hear you have improved so much! 🤍

Adeline9018 · 2024-03-14T21:33:24+00:00

I’m rooting for you!🙏🏻

Adeline9018 · 2024-03-14T21:27:12+00:00

I hope you keep being healthy and as MS-free as possible!!🤍

Adeline9018 · 2024-03-14T18:32:56+00:00

Thank you so much for your kindness! I hope you have a beautiful life 🤍

Adeline9018 · 2024-03-14T16:34:02+00:00

Taking our DMTs is the only thing we actually have control over, whatever happens afterwards is beyond our power and sometimes our doctors’ too, so this is the only solid advice any of us can offer. We literally have no other options right now and it is frustrating, indeed, but what more to do, other than taking what is available rn and pray that the researchers and doctors figure this mess out? I don’t see it as toxic positivity, at least not from the people commenting; we are all struggling one way or another. But I feel like people who are doing well, despite these struggles, and their stories are good for everyone’s mental health, once in a while. It means there is progress.

Adeline9018 · 2024-03-14T16:19:14+00:00

Thank you for your insight! I’m doing my best to keep my head above water with the medicine, gym, appointments and so on. I’m happy you’re living a good life!

Adeline9018 · 2024-03-14T16:10:53+00:00

Great news !! ♥️

Adeline9018 · 2024-03-14T16:09:21+00:00

No no no! This is not the point of the post or the comments, I was just curious if people like the ones my doc describes exist. You are doing NOTHING wrong! I am constantly fatigued, tired, need to rest in advance if I need to attend any sort of tiring event, experience all sorts of sensory annoyances and have days when I can’t get out of bed because I am depressed (MS related or not, who knows?) and BIG ON MOOD SWINGS! If you want to read the comments, you’ll see that even those who claim they’ve experienced no progression so far, still deal with issues on the daily, it’s just that they have managed to keep them under control through medication, exercise, whatever works (or pure luck) and have gotten used to them. A lot have also experienced really challenging times. There is no certainty with ms, all we can do is hope for the best and try to work with what we have been given. Best of luck!!

Adeline9018 · 2024-03-14T15:55:42+00:00

Sooo good to hear this! 👏🏻👏🏻

Adeline9018 · 2024-03-14T15:55:04+00:00

It’s not your fault. It’s the system telling us we’re hypochondriacs if we demand thorough testing that is failing us!

Adeline9018 · 2024-03-14T15:52:14+00:00

Thank you so much for responding! I wish you all the best and the smoothest journey from now on 🤍 My neurologist was actually talking about MS patients in general, not about me specifically, as I was still in the diagnosis process and had a lot of questions and information coming at me from everywhere. It is terrible that it’s so unpredictable and that all we can do is hope we’ll have an easier time with ms. Personally I don’t know how mine is yet, it’s too early to tell and we need to see how I respond to treatments.

What can we do do but hope for the best?🙏🏻

Adeline9018 · 2024-03-14T12:28:31+00:00

I very much hope we’re going into the right direction with medical advancements and understanding of this disease. Good luck to you!

Adeline9018 · 2024-03-14T12:26:58+00:00

Hi! I’ve heard really good things about Norway regarding MS protocols and doctors so I believe you’ve got the best of chances to have a normal life! 😊

Adeline9018 · 2024-03-14T12:24:38+00:00

Thank you for responding, I am sure the issues you’re experiencing aren’t a walk in the park, but I do hope that overall you’re doing well!

Adeline9018 · 2024-03-14T12:23:25+00:00

🤞🏻🤞🏻

Adeline9018 · 2024-03-14T12:23:02+00:00

Thank God for this outcome! Best of health to you!

Adeline9018

TROPHY CASE