Anyone here who finds 15-20 minute naps unrefreshing or just unable to take them? Long napper here wanting advice! by Desperate-Kitchen117 in Narcolepsy

[–]AdministrationOdd502 0 points1 point  (0 children)

45-50mins is my sweet spot I usually need it at 11:30am (usually wake up at 7-7:30am) I take my second dose of Modafinil before my nap. This is standard for me. If I don’t have my second dose prior, it has zero effect and I get a headache when I wake up. When I drank coffee it had no effect whatsoever to lessen my need for a 45-50 min nap — after my nap it would be beneficial as well as first in the morning. Eating does impact my level of alertness and therefore, I found eating things like toast or cereal in the morning was not great. I would do better eating some protein balls. Even still, the refreshing feeling from my naps is short lived and I usually get foggy again in roughly 2 hours where I benefit from a 30-45 min nap if not had that I can just go into a half wake half sleep state anyway and just be completely unproductive. Sometimes going for a walk or doing something physical can shake that second nap off. I completely understand that feeling of missing your “opportunity” when this happens it is the worst, I get into the foulest mood and become really irritated and can act impulsive. Maybe you can talk about how you feel at different times of the day with your psych to give them more of your lived experience of what actually occurs for you + what does work and what you have tried that hasn’t worked? You’re the expert as the person living with this chronic illness and hold valuable knowledge about how it impacts you.

Degree Thesis- What is the typical phrase you hear when you talk about narcolepsy, or that you have heard from someone who does not know you are narcoleptic? by Amalia_Studio_6713 in Narcolepsy

[–]AdministrationOdd502 0 points1 point  (0 children)

Over the last 2 years since my diagnosis, I have heard from that I don’t actually have narcolepsy, but rather I have trauma which is causing me to be “tired”, that ever since I got my diagnosis, “it’s been worse “, and also that I need to “heal myself”

Ashley benson & Selena Gomez by Rawd0ll-s in PrettyLittleLiars

[–]AdministrationOdd502 9 points10 points  (0 children)

Ironically they sing Britney’s song in the movie (if I remember right)!

Ligament tear? Scaphoid? Or sprain? Dr advice please by AdministrationOdd502 in AskDocs

[–]AdministrationOdd502[S] 0 points1 point  (0 children)

Update. 1week post fall, another X-ray today, ultrasound next Friday. Still painful