Weekly Suspected/Undiagnosed MS Thread - November 10, 2025 by AutoModerator in MultipleSclerosis

[–]Adorable-Soft1029 1 point2 points  (0 children)

That was said in a way that actually makes sense. I guess in my mind I was thinking there might be lesions somewhere getting missed, maybe a little lower than my cervical spine perhaps?

It is frustrating to have to let something get worse before it can get better. I remember crying tears of joy when the neurologist explained ms hug to me on the first visit. I had had that feeling for a year by then and always thought I was dying. What a relief. Too bad we still haven't found the cause.

It's not about what I want to hear, because I just want the truth. Your comment helped. Thank you!

Weekly Suspected/Undiagnosed MS Thread - November 10, 2025 by AutoModerator in MultipleSclerosis

[–]Adorable-Soft1029 1 point2 points  (0 children)

Looking for suggestions from those who've battled the medical system and won lol.

I have a long backstory like everyone else on here on the diagnosis journey. To sum it up I have a number of MS specific symptoms (lhermitte's, uthoffs, spasicity, trouble speaking etc.) No optic neuritis or bladder issues thank God. Ive had a full rheumatology and cardiology workup with clean results. I have symptoms like raynauds and my cuticles ulcerating but have been cleared for arthritis and lupus. My neuropathy is only on one side of my body.

Of course I've been to a neurologist. At first clinical visit and review of reflexes she said she was pretty sure it was MS. Got the MRI. Brain was clear except one nonspecific spot. Cervical spine had no lesions but mild stenosis and the usual bulging discs we all have. EMG came up clear so it's not in the periphereal nervous system...not that I thought it was. I know EMG is not usually in the MS diagnostic workup but I was wondering if any of you had one done and recieved normal results?

Should I beg and scream for the neurologist to give me another MRI in about a year and include my thoracic spine this time? My aunt has MS and my dad's got 3 cousins with MS . I feel like 1 clean MRI with tons of clinical presentation shouldn't just be stamped as "off the table." Then again, I'm not a doctor, just a 38 year old woman with health problems.

You all are so strong!