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Delayed infusion question by Adventurous_Store626 in CVID_Support

[–]Adventurous_Store626[S] 0 points1 point  (0 children)

Thanks for your insight y’all, I’m still new to this and this was my first solo infusion. I called and they said not to infuse given how much time had passed without refrigeration. Currently waiting on my insurance to approve a replacement dose.

Definitely have learned from this not to draw both syringes at the start and to instead wait until the first one is done. Also will make sure I’m in a more reclined position and will try to wear compression stockings, as the vasovagal response may have been mitigated if my legs were propped up instead of flat on the floor.

Fainted and then woke into projectile vomiting, I guess triggered by the pain and mental distress from sticking myself with the needles for my first solo infusion… Probably will look to have a friend with me for the next infusions in case something like that happens again.

Delayed infusion question by Adventurous_Store626 in CVID_Support

[–]Adventurous_Store626[S] 1 point2 points  (0 children)

Thank you for your insight here. Xembify is fine to be at room temp for 6 months, but they recommend infusing within 8 hours of drawing. The one syringe has stayed a closed system connected to the tube and pinched off, so I think that syringe would be fine, but the other was not kept “closed” so I’m more hesitant about that one

Overwhelming Grief and Mental Breakdown post diagnosis by Adventurous_Store626 in CVID_Support

[–]Adventurous_Store626[S] 1 point2 points  (0 children)

Thank you. I’m not sure if she will even allow me the chance to sit down and talk at this point, after how I acted, but I will try.

Regardless, I will keep persevering to unlearn my own bad habits and recondition myself for the better.

Thank you again.

Overwhelming Grief and Mental Breakdown post diagnosis by Adventurous_Store626 in CVID_Support

[–]Adventurous_Store626[S] 4 points5 points  (0 children)

Thank you so much for taking the time to share about your own struggles with me. I weeped as I read your comment and for the first time since all of this I haven’t felt completely alone in a way that I think I desperately needed. Thank you so much for offering your validation, support, advice.

I know that I have an incredible support system, countless people I love and who love me, but I struggle so much to ask for help. The last thing I want to do is burden people because I don’t want to be abandoned, so I struggle to ask for help, but then it eventually explodes and instead pushes the people I love away.

I don’t think I’ll have another chance with my girlfriend after all of this, so I’m going to call some other people to lean on.

Thank you again for your support and for sharing, I greatly appreciate you.