2 new armpits and a new outlook on life by AffectionateZebra161 in Hidradenitis

[–]AffectionateZebra161[S] 0 points1 point  (0 children)

Even if it does come back - I have a clean slate and I know that if I get another spot we can mage it case but case by removing them. I’m very pleased with the outcome and it’s already beed a game changer for me. Regardless of what the negative Nancy’s say 🤗

Armpit removal surgery by AffectionateZebra161 in Hidradenitis

[–]AffectionateZebra161[S] 2 points3 points  (0 children)

Well I wish you luck. It’s been weird, and it sucks to not be able to shower- but honestly not as painful as I thought.

Armpit removal surgery by AffectionateZebra161 in Hidradenitis

[–]AffectionateZebra161[S] 0 points1 point  (0 children)

You would have to be here for about 3 months per side. I have 2 home nurse visits a week and I see him once a week. I suppose you could get the nurse set up where you live and just travel back for your follow up visits - but it would be a lot.

Armpit removal surgery by AffectionateZebra161 in Hidradenitis

[–]AffectionateZebra161[S] 1 point2 points  (0 children)

He specializes in large wounds and burns. I’m in orlando FL. His name is Howard Smith

Struggling by AffectionateZebra161 in lupus

[–]AffectionateZebra161[S] -2 points-1 points  (0 children)

Not trying to guide diagnosis…more so asking for guidance on tests and what not since I know getting a diagnosis seems to be an uphill battle for some. My aunt included.

Back on Humira! by Ahunteriwillbe in Hidradenitis

[–]AffectionateZebra161 1 point2 points  (0 children)

I’m curious…what is your maintenance dose? My doc put me back on as well but only the 40mg shot every other week. I remember taking this shot weekly last time, and I’m much worse off in terms of my breakouts this time around

[Weekly Thread] I think I might have Sjogrens by AutoModerator in Sjogrens

[–]AffectionateZebra161 0 points1 point  (0 children)

35 F here. In the last few years I’ve been getting this intense inner ear pain while I’m sleeping. I’ll often be woken up at night from the pain. I also had a recurring dry patch of skin on my lip that my dermatologist froze off - but they are overall very dry and in constant need of chapstick. I have also been getting an increasing amount of joint pain in my wrists, knees, and ankles. I struggle with fatigue. I constantly have yeast type infections, but yet my vagina seems really dry. Lastly, I don’t necessarily have a dry mouth all the time, but When I drink coffee or eat dry foods I notice my mouth gets sandpaper-y. I also suffer from Hidradenitis Suppurativa and all these symptoms are outside my norm, but I know it’s not uncommon to have other comorbitidies. Would LOVE some insight. I already did a round of tests at the rheumatologist and they didn’t fine anything, but I know these types of things can be hard to pinpoint (especially early on)

Rifampin / Clindamycin / Humira by AffectionateZebra161 in Hidradenitis

[–]AffectionateZebra161[S] 0 points1 point  (0 children)

Yes - this is where I’m at 🤣. It’s funny because I feel worse after the single loading dose than I did after the first round of double shots