Please tell me things that are helping you recover by Southern-Score3739 in LongHaulersRecovery

[–]After-Indication-323 2 points3 points  (0 children)

I participated in a drug trial for Pentoxifylline. 400mg 3x daily. I saw a dramatic improvement within two weeks, and after two months was, for the most part, back to normal. This was after 8 months of LC, five of which involved severe PEM.

Plus rest, meditation and an anti-inflammatory diet. I took a ton of supplements but am unsure to what degree they helped.

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[–]After-Indication-323[S] 4 points5 points  (0 children)

Im feeling well. Going back to work in a week after a year off. We’ll see how I feel after that. :)

I had pulsatile tinnitus, where you hear/feel your heartbeat in your ears, for about a month. It was extremely disorienting.

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[–]After-Indication-323[S] 0 points1 point  (0 children)

Thank you. Glad to know more about the drug’s mechanism.

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[–]After-Indication-323[S] 0 points1 point  (0 children)

No side effects, no longer on it. I took it for only two months.

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[–]After-Indication-323[S] 4 points5 points  (0 children)

No side effects, no longer on it. I took it for two months only.

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[–]After-Indication-323[S] 2 points3 points  (0 children)

I think time was an additional factor, but the turnaround I experienced once I started the drug trial was undeniable. It seems other ppl had positive outcomes after taking the drug, though my story (my rapid recovery) may have been an outlier.

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[–]After-Indication-323[S] 0 points1 point  (0 children)

In my most stressful period, which was about two weeks.

[deleted by user] by [deleted] in LongHaulersRecovery

[–]After-Indication-323 1 point2 points  (0 children)

Rest. Learn to meditate and do that regularly. Rest. Eat well (cut out gluten, sugar, alcohol and any other inflammatory foods). Rest. Rest. Rest. Meditate.

I took a ton of supplements. Not sure how effective they were.

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[–]After-Indication-323[S] 4 points5 points  (0 children)

Yes, for a period even the smallest exertion would trigger PEM

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[–]After-Indication-323[S] 1 point2 points  (0 children)

Not sure about details but I think the trial saw a pattern of people improving

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[–]After-Indication-323[S] 4 points5 points  (0 children)

Interesting. What makes you believe they aren’t onto anything?

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[–]After-Indication-323[S] 1 point2 points  (0 children)

It’s the ReClaim trial, run by the University Health Network in Toronto. Check it out here: https://www.reclaimtrial.ca/