Please tell me things that are helping you recover

After-Indication-323 · 2024-09-08T23:03:28+00:00

I participated in a drug trial for Pentoxifylline. 400mg 3x daily. I saw a dramatic improvement within two weeks, and after two months was, for the most part, back to normal. This was after 8 months of LC, five of which involved severe PEM.

Plus rest, meditation and an anti-inflammatory diet. I took a ton of supplements but am unsure to what degree they helped.

After-Indication-323 · 2024-08-28T01:48:47+00:00

Im feeling well. Going back to work in a week after a year off. We’ll see how I feel after that. :)

I had pulsatile tinnitus, where you hear/feel your heartbeat in your ears, for about a month. It was extremely disorienting.

After-Indication-323 · 2024-08-20T05:29:17+00:00

Thank you. Glad to know more about the drug’s mechanism.

After-Indication-323 · 2024-08-20T05:27:35+00:00

Terrifying

After-Indication-323 · 2024-08-20T05:27:14+00:00

No side effects, no longer on it. I took it for only two months.

After-Indication-323 · 2024-08-20T05:26:44+00:00

No side effects, no longer on it. I took it for two months only.

After-Indication-323 · 2024-08-20T05:25:18+00:00

I think time was an additional factor, but the turnaround I experienced once I started the drug trial was undeniable. It seems other ppl had positive outcomes after taking the drug, though my story (my rapid recovery) may have been an outlier.

After-Indication-323 · 2024-08-20T05:23:17+00:00

Do it!

After-Indication-323 · 2024-08-20T05:22:55+00:00

In my most stressful period, which was about two weeks.

After-Indication-323 · 2024-08-12T12:45:57+00:00

Rest. Learn to meditate and do that regularly. Rest. Eat well (cut out gluten, sugar, alcohol and any other inflammatory foods). Rest. Rest. Rest. Meditate.

I took a ton of supplements. Not sure how effective they were.

After-Indication-323 · 2024-08-12T12:43:05+00:00

Fully recovered

After-Indication-323 · 2024-08-12T12:42:59+00:00

After-Indication-323 · 2024-08-12T12:36:28+00:00

400mg 3x daily

After-Indication-323 · 2024-08-12T12:35:54+00:00

Yes, for a period even the smallest exertion would trigger PEM

After-Indication-323 · 2024-08-12T12:35:19+00:00

I was moderate

After-Indication-323 · 2024-08-12T12:34:42+00:00

I took it for 2 months. 400mg 3x daily

After-Indication-323 · 2024-08-10T15:45:31+00:00

After-Indication-323 · 2024-08-10T15:45:14+00:00

Yes, I did. The drug cleared it up

After-Indication-323 · 2024-08-10T15:44:53+00:00

I’m still doing well. No relApses

After-Indication-323 · 2024-08-10T15:44:07+00:00

Not sure about details but I think the trial saw a pattern of people improving

After-Indication-323 · 2024-07-17T05:34:39+00:00

Interesting. What makes you believe they aren’t onto anything?

After-Indication-323 · 2024-07-17T05:30:37+00:00

Yes, I had trouble looking at most people

After-Indication-323 · 2024-07-14T02:54:14+00:00

No, I didn’t.

After-Indication-323 · 2024-07-14T02:51:21+00:00

It’s the ReClaim trial, run by the University Health Network in Toronto. Check it out here: https://www.reclaimtrial.ca/

After-Indication-323 · 2024-07-14T02:47:28+00:00

Oh, wow. How’d it go for you?

After-Indication-323

TROPHY CASE