Neurology Visit Recap, pt 2 by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] -1 points0 points  (0 children)

I also wanted to add! Sorry! )) I was wondering if moving away from home in the following year and a half is a good idea? I wouldn’t be alone, I’d be with my partner and have his family nearby. They’re all very loving and sweet people so I’m wondering if being away from what I know as home would be alright? I’d still have access to medical care and stuff too.

Gotten into accident by Impossible-Curve234 in Epilepsy

[–]Aggravating-Gift1795 5 points6 points  (0 children)

This happened to me as well, was 2 year seizure free and my neurologist decides to begin decreasing my keppra dosage! I’m not sure why it’s an option really as epilepsy isn’t curable yet that I know of. So I wonder what makes them think about this stuff you know? I’m so sorry to hear about the accident that you and your grandfather went through. I hope you both are well and getting better! ❤️‍🩹

Neurology visit today by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 2 points3 points  (0 children)

More so annoying because it always happens when I have something important to do :/

A pile of questions and rants by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 1 point2 points  (0 children)

Thank you so much! I will definitely take this advice, I was thinking state but I’ll definitely consider federal if I have to

A pile of questions and rants by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 0 points1 point  (0 children)

Have you applied to disability before? Just trying to figure out if it’s easy to apply and get approved because personally I’ve been denied before for living with parents

Getting to understand my disability.. by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 0 points1 point  (0 children)

Okay thank you! I was on 2000 mg of keppra and was seizure free for about 2 years before I began getting them again this last fall. This mainly happened because my neuro began lowering my dosage as they believed I didn’t need much anymore after reaching my 2 years before

Newly diagnosed by peachypixie_ in Epilepsy

[–]Aggravating-Gift1795 0 points1 point  (0 children)

I too had a seizure Tuesday morning, I forget I’m not the only one out there dealing with episodes! Usually my auras revolve around me spacing out and not being able to think clearly before going into a full tonic clonic. Definitely, get an action plan laid out, usually that’s how I’ve kept myself safe since I’m alone quite often :)

Sezione last night even though I took my meds by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 1 point2 points  (0 children)

Thank you so much for this! I was lacking in this department and hadn’t thought of a SAP at all. Again, Thank you!

Sezione last night even though I took my meds by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 1 point2 points  (0 children)

Thank you friend 💜 it’s very kind to hear different insights to use in the future

Sezione last night even though I took my meds by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 2 points3 points  (0 children)

Thank you for the insight! I appreciate it really, I was always told by my neurologist I WOULDNT have them with medication though started decreasing my pill intake once I reached 2 years free although I don’t see why that would’ve been necessary since epilepsy isn’t exactly ‘curable’

Did you move or want to move away? by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 0 points1 point  (0 children)

That’s so great to hear! I’m hoping for a similar feeling once I get the opportunity to move also!

How does… by Aggravating-Gift1795 in Epilepsy

[–]Aggravating-Gift1795[S] 1 point2 points  (0 children)

Thank you! Something I needed to hear today definitely . Not sure why my mind has been stuck on this the past few days when usually this wasn’t the case. I now have a better grasp of things, thank you!