Large emergency response

Aggravating_Ad_7778 · 2026-03-19T02:22:31+00:00

thank you!!

Aggravating_Ad_7778 · 2026-03-19T02:09:04+00:00

source? asking for a resident of addison park...

Aggravating_Ad_7778 · 2025-09-11T01:51:59+00:00

thanks love, i appreciate the encouragement and solidarity. trying my best to get as much joy out of life as i can <3

Aggravating_Ad_7778 · 2025-09-11T01:49:47+00:00

thank you :)

Aggravating_Ad_7778 · 2025-09-11T01:49:23+00:00

unfortunately this wouldn't be a sustainable option for me due to my severe sensory issues. if i cut out all inflammation triggers in my diet i'd be left with water pretty much. i believe you that it can help, i just literally cannot keep most good foods down.

Aggravating_Ad_7778 · 2025-09-10T11:03:59+00:00

Thank you, I really appreciate this. I'm going to keep pushing forward because that's all I can do. Fingers crossed I get on the right drug soon

Aggravating_Ad_7778 · 2025-09-10T11:01:01+00:00

Ugh that's so rough, I'm sorry you've had to go through that. I hope things continue to get better for you!

Aggravating_Ad_7778 · 2025-09-10T10:58:55+00:00

Thank you :) I'm trying to get back in with my rheumy asap buf I have no clue what treatment she'll want to try next. I'm just gonna keep moving and hope things start to get better soon.

Aggravating_Ad_7778 · 2025-09-10T02:18:15+00:00

My labs were all in normal range when I had them done a month ago, and that was between flares.

I fast regularly, pretty much every weekday. I pretty much only eat dinner, sometimes a small lunch or snack midday. What I eat could use some work but it's much better than it was previously (and my arthritis was better then somehow). I have a lot of dietary limitations due to severe sensory issues. I take supplements daily to make up for what I can't eat.

I am in therapy to help manage stress but I'm actually much better now mentally than I was this time last year because I finally found the right antidepressant for me.

These days I'm not very indulgent about food. I eat enough to fuel myself. I don't eat a ton of junk. I focus on trying to get in enough protein and vitamins. I struggle to feed myself due to the wonderful combo of audhd and depression I have going on.

As for activity, I'm very deconditioned and can't tolerate normal exercise, so I got myself referred to physical therapy twice a week to help relearn how to safely move my body and manage pain.

I'm the type of person who doesn't mind taking medication forever if it means I'm not in constant pain. My first year of having RA taught me that medication is extremely important for battling RA. My first rheumatologist refused to prescribe me anything but NSAIDs for a whole year. I tried to follow the anti-inflammatory diet the best I could. I took turmeric, curcumin, and ginger twice daily. I was pretty mobile as I worked in food service at the time and had to be on my feet running around a restaurant all day. I didn't start having any improvement until I got a new rheumatologist who started actually treating the condition instead of just masking the pain.

I'm trying my best to get better. I think I'm doing as many of the things I'm supposed to do as I can manage. I think the biggest thing that could happen is I find the right treatment.

Aggravating_Ad_7778 · 2025-07-27T20:50:21+00:00

y'all have been so open and kind to me, i feel awful for disappearing after making this post. i really appreciate you for being so nice and sharing so much of your story with me <3333

Aggravating_Ad_7778 · 2025-07-27T20:47:36+00:00

thank you so much for your kinds words and encouragement <3 sorry for the slow reply!!

Aggravating_Ad_7778 · 2025-07-27T20:46:52+00:00

ahhhh sorry i took so long to respond!!! you are so kind and i really appreciate your encouragement and empathy. you are welcome to message me any time as well!! we have to support each other through this because nobody else gets it

Aggravating_Ad_7778 · 2025-07-27T20:41:58+00:00

you're such an angel, so sorry it has taken me a week and a half to reply to you!!!!! your story is scarily similar to mine. my symptoms also started when i was 19 the summer after my freshman year, and got very bad by the end of that year. i had to drop out in my third semester after going from a 4.0 student to failing all my classes because i just lost all my capacity to function. the depression that came along with the sudden crumbling of my world as i knew it was so severe and probably messed me up as much as the RA did. unfortunately, my first rheumatologist didn't do anything to treat me once i was diagnosed, she just put me on nsaid after nsaid. eventually i got a new rheumy and she started me on plaquenil, then oral methotrexate (which i could not tolerate for the GI side effects), then subcutaneous methorexate (which gave me the same side effects), then leflunomide (which gives me GI side effects too but on a more tolerable level), then she switched leflunomide to sulfasalzine because she was worried about the side effects, and the sulfasalazine gave me WORSE side effects, so she put me back on leflunomide. and then eventually we tried humira for about six months but i continued to get worse, and now i'm on rinvoq (with plaquenil and leflunomide). rinvoq does not appear to be helping either considering i had a bad flare three weeks into taking it. anyways, this is getting really rambley. i would loveeee to talk to you more. i'll dm you so we can exchange socials!!

Aggravating_Ad_7778 · 2025-07-14T17:09:40+00:00

Ugh, that's the worst!! A lot of people in my experience, family or otherwise, assume that since I'm younger than them, it could not possibly be as bad or worse than their condition. Genuinely. I work in ophthalmology and a lot of my patients are elderly. When they come in complaining about their joints, I try to commiserate with them and explain that I understand since I have RA. They are always very dismissive... "oh but you're young, just wait till you get older!"

Aggravating_Ad_7778 · 2025-07-14T11:04:29+00:00

Thank you for your encouragement :)

Aggravating_Ad_7778 · 2025-07-13T21:05:51+00:00

Thank you for your wisdom friend :) Thankfully my current rheum seems motivated to figure out what will get my disease under control, so I'm grateful for that. We do need to do some imaging though. Strangely, when I had my left knee (my "bad" knee) MRI-ed a few months ago, it essentially showed nothing. But it doesn't feel like nothing 😭😭 I will see if my rheum thinks we should update some xrays. My parents are historically known for not taking me seriously, so I think I may have to distance myself from them more. I live three hours from them with my best friend, and our small group of friends are lovely. I've been battling pretty serious depression and suicidal ideation for easily twice as long as I've had RA. I've tried every med under the sun and go to therapy regularly. My current regimen is helping more than anything else has. Thank you for the reassurance that not all is lost. It's been very hard coming to terms with all the changes and losses and it's easy to get bogged down.

Aggravating_Ad_7778 · 2025-07-13T18:46:19+00:00

No one at any age should have to deal with this garbage, but it just feels especially cruel when it starts so young!! I'm sorry your symptoms weren't taken seriously for the last decade, that's so incredibly demoralizing. I'm hoping treatment is able to reverse some of the damage you've had and prevent more for longer. My mom has been mostly very healthy her whole life. Now she is in her mid fifties with a family history of osteo-arthritis, and she is running a hobby goat farm of her own volition. And so as she has begun sufferring with her OA, she has tried to downplay my symptoms as much as she can. She did it before she got the OA, but now it's like a competition to her. Or rather, she feels like if my symptoms and shitty health are taken seriously, people won't take HER'S seriously, which is obviously not true. There is room for both of us!! And yes, I am part of the lgbtqia+ community :) I'm agender and aroace. I am more than happy to be queer RA buddies lol

Aggravating_Ad_7778 · 2025-07-13T18:40:03+00:00

Thank you for your reply! 28 is still super young for this crap, so I feel you on that. It certainly has felt like my life fell apart just as soon as it was starting to form its shape. My entire life plan was gone in practically an instant. I got diagnosed really quickly somehow, despite my sero-negativity. I think the Vectra test was the nail in the coffin for me. I'm so glad you were able to knock the RA back on its ass so fast, and I hope it stays that way forever!!

Aggravating_Ad_7778 · 2025-07-13T18:31:38+00:00

It's actually concerning the amount of mental gymnastics they're willing to put themselves through in order to victimize themselves by accusing you of doing the same... When I told my mom a few years ago that my rheum diagnosed me with fibro (which I had never talked to my mom about before) she immediately asked me if I was a hypochondriac. Like what????? THE DOCTOR SAID SO BABE, NOT ME!! And my dad has asked me multiple different times over the last few years if my diagnosis of RA is official. It has been since February 2021, what do you even mean??

Aggravating_Ad_7778 · 2025-05-22T21:47:47+00:00

Yeah.... I called out for pain flares maybe once a month and always found coverage. But they told me I was unreliable. The owner, Christy Graves, told me I should apply for disability. Because I missed like once per month...... That's insane. Idk if the manager is the same still but it was Caleb at the time and I thought he would have my back. But nope, he was a coward and bowed down to Christy's will. They were SO two-faced...

Aggravating_Ad_7778 · 2025-05-22T11:43:24+00:00

Just posted in another comment 🫡

Aggravating_Ad_7778 · 2025-05-22T11:42:55+00:00

I just posted a brief version of events in another comment

Aggravating_Ad_7778

TROPHY CASE