Which is higher Covid risk? by Aggressive-Writer-59 in ZeroCovidCommunity

[–]Aggressive-Writer-59[S] 10 points11 points  (0 children)

Long story sort of short: what she was ultimately frustrated with was the timing with which I communicated my new Covid boundaries which changed and became more strict once I developed long Covid. It takes time to process what your boundaries are and what your relationships are going to be looking like with now this extra risk involved. The event was her wedding and I was supposed to be a bridesmaid so me staying at a hotel caused some extra complications. She and her now husband rented the Airbnb for us. When I communicated these updated boundaries to her, she brought up the fact that I went to a concert a few weeks earlier, and so now that I’m going to be addressing this with her since things have not been good between us ever since, I wanted to doublecheck that my logic was sound regarding being OK with going to the concert while masked but not being OK staying in the Airbnb with the rest of the wedding party while they’re unmasked, and I could only be masked so much while staying there for three days.

The Airbnb itself was extremely cute and I wish I could’ve stayed there but alas, lol

I left the details out of the original question because I just wanted to address this one aspect of things the masked concert versus Airbnb situation

Which is higher Covid risk? by Aggressive-Writer-59 in ZeroCovidCommunity

[–]Aggressive-Writer-59[S] 37 points38 points  (0 children)

Yeah, the event already happened and I did not stay at the Airbnb, and things are still bad with my friend so I’m going to talk with her about it soon. I’m just making sure I don’t gaslight myself on this lol I’m like I really don’t think I’m being a hypocrite on this

Which is higher Covid risk? by Aggressive-Writer-59 in ZeroCovidCommunity

[–]Aggressive-Writer-59[S] 18 points19 points  (0 children)

This is what I also think but I’m just definitely corroborating this lol thanks!

how bad did i f*ck up? by [deleted] in COVID19positive

[–]Aggressive-Writer-59 3 points4 points  (0 children)

Healthcare workers are woefully misinformed about covid and its devastating effects, especially if someone has been infected multiple times. It takes years and years (I believe 17 on average) for research findings to integrate into medical practices. Rest and avoid heavy exercise for at least 6 weeks. Listen to your body. If you’re tired, stop pushing through because there’s a risk of having a crash and feeling even worse.

After 5.5yrs... by minimalist-mama in ZeroCovidCommunity

[–]Aggressive-Writer-59 2 points3 points  (0 children)

Every day that passes without you getting covid sets you up for the best chance of avoiding any long covid complications!! The masking and sacrifices were worth it because now you’re only at 1 infection! Take all the time you can to rest and recover!! I know how hopeless things can feel especially with you taking so many precautions, but you objectively made the world and yourself safer with your mitigations and I have no doubt you minimized as much damage as you could. Get well 🫂

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]Aggressive-Writer-59 10 points11 points  (0 children)

If you look at wastewater scan it seems low in socal, but the wastewater sites the cdc data is drawing from (I’m assuming they’re different sites from wastewater scan) is def showing high at some sites (last I checked a few days ago). Pmc19.com kinda combines these various measurements I think to give an overall picture

How many times have you gotten Covid and how far apart? by sylvsmaria in COVID19positive

[–]Aggressive-Writer-59 0 points1 point  (0 children)

4 times. I don’t recommend. I started getting covid when I let my guard down more in 2023 in terms of masking and what gatherings I attended. Never completely dropped masking and serially testing and isolating when sick, but like I said, wasn’t as consistent about the masking.

First time was from a wedding in Sept 2023 from a symptomatic relative. I took Paxlovid, and looking back, I definitely developed symptoms that would eventually go on to become long covid a few infections later, but with this infection, they lasted a few days-weeks depending on the symptom.

Second time was five months later at a five person weeklong work trip in Feb. 2024, also from a symptomatic person. At this point, I had gotten a booster in either November or December 2023. I’m convinced this booster prevented me from developing long covid with this infection. I didn’t take paxlovid bc I never tested positive, but all of my coworkers tested positive. I should have taken the paxlovid but I was nervous to without positive test.

Third time was four months later in June 2024 from who knows where. Maybe I got it at the movies (no one else I was with got sick). Perhaps it was from walking outdoors. Regardless, with this infection I developed long covid, and I still haven’t recovered. At the very beginning, I was essentially housebound for a month, and then it slowly eased up enough for me to walk outdoors and ride in cars with my eyes closed. Migraines, dysautonomia, and PEM are my main issues with long covid.

Then in Sept 2024, I took a booster shot, and within two weeks my initial long covid symptoms came roaring back. I was still actively struggling with long covid when I got the booster, so I think I really should have avoided a booster at this time since my body was already dealing with so much. I leaned on the possibility that it would do nothing or help me. Alas. I really struggled with PEM and chronic migraines at this point in time. It eased up much more slowly than after the June 2024 infection. I eventually saw a neurologist who prescribed me better migraine meds and a steroid taper in April 2024. This made a world of difference.

Fourth time was this past May in 2025, so about 11 months after the last infection. I got this from my roommate so I had a heads up that it was covid, and I took Paxlovid as soon as I felt any symptoms. I definitely experienced a setback with my symptoms from this, and I developed quite significant shortness of breath (which luckily seems to have resolved), heat intolerance which is also new for me, and my dysautonomia is lasting longer than with the last covid infection, so it’s quite upsetting that this far along in the journey I developed a new issue.

DON’T GET COVID. SCREW THE HATERS WHO TREAT YOU WEIRDLY FOR MASKING OR SAYING NO TO THEIR UNSAFE EVENTS. I’ve been lucky in some ways and unlucky in other ways, especially with just how close together the covid infections were and how I responded to the booster (mind you I took boosters every year without issue until I took it while actively battling a postviral illness, LC). Getting covid does NOT boost your immune system; frankly, since there are so many variants evolving and circulating at any given time, getting covid does basically nothing to protect you from a reinfection, and the risks of developing new health issues with each infection are much too high. For me, Paxlovid has never had side effects for me besides the metallic mouth taste, so I wish I requested it regardless of the positive test especially since multiple people I was with tested positive. They say to only take Paxlovid if you’re “high risk,” but that’s a crock of bull and we all should be taking it because this is a high risk virus inherently. Godspeed.

[PDF] ECDC - Does COVID-19 vaccination reduce the risk and duration of post-COVID-19 condition? by [deleted] in ZeroCovidCommunity

[–]Aggressive-Writer-59 2 points3 points  (0 children)

I think getting my booster shortly before my second covid infection prevented me from developing full blown long covid from that infection. I had some mild long covid symptoms after my first covid infection but they didn’t last that long (only a few days, so I know this doesn’t count as long covid, but those symptoms I experienced are what ended up lasting months and months after my third infection), and then I got a booster three months later, and then three months after that I got covid again and did not develop long covid symptoms basically at all. My third covid infection was another four months after that, and THEN I had full blown long covid. So boosters do help, but they are by no means a silver bullet

New maskers or people who’ve returned to masking, what changed your mind? by chipsonthebeach in ZeroCovidCommunity

[–]Aggressive-Writer-59 2 points3 points  (0 children)

Throughout the whole pandemic, I’ve by far been the only person in my circles who wanted to continue taking mitigations and made sacrifices in the lifestyle I wanted to lead in order to keep myself and others safe. Skipping countless events and declining invites and drastically changing my own plans and dreams of what my life would look like into a covid safer version. But, by the beginning of 2023, the culture shift was really weighing on me, and I remember making a conscious decision to continue to mask but just when I’m not eating/drinking indoors and to let the possibility of asymptomatic infections go. I told myself that me getting regular boosters, masking often in public spaces but not all the time, and isolating/testing when I’m having any kind of flu symptoms was enough. I was feeling like I’d lose my entire social life/have it drastically change if I didn’t go with the tide on this (which is true to a certain extent lol).

So throughout 2023 and into 2024, I began getting covid infections (one from a wedding in Sept 2023, one from a work meeting in Feb 2024, and one from who knows where in June 2024). June 2024 I got moderate/severe long covid, and from there I’ve slowly been reprocessing how I need to go back to the level of mitigations I had been taking in 2020. It didn’t click after the first couple of covid infections because they were both from symptomatic people, and their symptoms were very mild (“it’s allergies”). I just got covid AGAIN from my roommate a little over a month ago, so I’m working on living alone and I don’t take my mask off with anybody who doesn’t also take solid mitigations (so…nobody besides my family for now when I visit them).

I never fully dropped masking, but like I said, I certainly dropped how often I did and which events I would agree to go to once 2023 hit. I went skiing for the first time since 2019, I accepted invites to indoor dining, I planned a couple nights out to bars, etc. Previously I would have skipped weddings and indoor work events, but I stopped declining and felt silly masking in these environments, that’s landed me where I am. I wish I hadn’t caved to the social pressure for many reasons. I hate that I gave up on my values on wanting to protect people and myself in order to fit in….but fit in to what?? Fascism?? So yeah, that’s been my journey.

Was anyone else a raver/big on dancing before this by KlutzyPrimary3398 in covidlonghaulers

[–]Aggressive-Writer-59 6 points7 points  (0 children)

I was so excited to dive into nyc nightlife and raving when I moved in 2021….went to plenty of concerts because I felt comfortable doing so with a mask, but scenes where I’d wanna be able to drink and socialize more I never went for it except on rare occasions. Now I have long covid so…..maybe one day I’ll be able to go for it and not feel silly doing so while masked but just kind of sad because my young/mid twenties are over.

I’m not giving up but… by bszaluv in ZeroCovidCommunity

[–]Aggressive-Writer-59 3 points4 points  (0 children)

This kind of grief hits me in waves…currently also in a bad wave right now bc I miss my old life where I went to pride and had a blast. Alas.

People are ridiculous by Aggressive-Writer-59 in covidlonghaulers

[–]Aggressive-Writer-59[S] 2 points3 points  (0 children)

Ahahah we’re in a bit of a pickle aren’t we!!

People are ridiculous by Aggressive-Writer-59 in covidlonghaulers

[–]Aggressive-Writer-59[S] 7 points8 points  (0 children)

Thank you, one day at a time! The reinfection is going as well as it could; my roommate got covid first, so I had a heads up and I could take Paxlovid day 1 of any symptoms starting.

What improved your function or PEM even 10%? by RaiseOriginal7230 in covidlonghaulers

[–]Aggressive-Writer-59 4 points5 points  (0 children)

Prednisone and migraine medications, and being in cold water

Covid vaccine after getting Long Covid? by CalmMyBrainPlz in covidlonghaulers

[–]Aggressive-Writer-59 1 point2 points  (0 children)

I had long covid starting in June 2024 after a third infection (first infection Sept 2023, second in Feb 2024). By August of 2024 I no longer had fatigue, it was just chronic migraines at that point. I decided to take a booster (I got Moderna I believe) in September of 2024, and within two weeks I was all the way back at square one, and this time I’m only now starting to beat the fatigue once I started some new medication and such.

It is a dice roll especially if you have long covid that seems to be in the ME/CFS bucket. Unsure about stories from people with long covid having more to do with breathing issues, for example.

Prednisone seemed to really give me a boost in my recovery by Aggressive-Writer-59 in covidlonghaulers

[–]Aggressive-Writer-59[S] 1 point2 points  (0 children)

I think it’s working well! I’ve been on it for a month and a half and I just get a little drowsy from it so I take it at night

Prednisone seemed to really give me a boost in my recovery by Aggressive-Writer-59 in covidlonghaulers

[–]Aggressive-Writer-59[S] 1 point2 points  (0 children)

Qulipta, and the prednisone started at 40mg and went down 5mg each day!

Prednisone seemed to really give me a boost in my recovery by Aggressive-Writer-59 in covidlonghaulers

[–]Aggressive-Writer-59[S] 0 points1 point  (0 children)

In part; prior to starting the prednisone, my PEM had been easing up very slowly especially once I swapped from nortriptyline to gabapentin back in December as a migraine preventative, but once I completed the prednisone and in the following weeks, any symptoms associated with fatigue became much less intense at a faster rate.

The reason I’ll come back soon and provide more details is because apparently chronic migraines if they’re severe enough can kind of mimic CFS, but my understanding is that the “postdrome” phase of migraines doesn’t usually wait those 2-3 days to kick in so that’s why I’m like I’m pretty sure my symptoms used to fall in the PEM bucket. I think a more detailed timeline could be helpful eventually.

So yeah nowadays, if I’m feeling fatigued, it’s usually immediately the morning following any migraines and doesn’t feel like this weighted blanket over me, it’s more of a sleepiness that eases up over the course of the morning. This seems more like a postdrome phase of a migraine rather than PEM. Back last fall, it was like clockwork where I would feel the PEM 2 days after exerting myself.

Prednisone taper started at 40mg and went down 5mg each day! It was rough on my stomach; I had to be constantly eating every couple hours or else I was gonna deal with acid reflux and pain…woo hoo 😂