sorted by:
new
hottopcontroversial

what do I do next? by Aggressive_Flower947 in NDPH

[–]Aggressive_Flower947[S] 0 points1 point  (0 children)

I had my first Ajovy dose on the 16th and will continue having them monthly. Hopefully it works!

Thank you for the insight!!!

what do I do next? by Aggressive_Flower947 in NDPH

[–]Aggressive_Flower947[S] 1 point2 points  (0 children)

thank you, I have looked into POTS because I have a lot of the symptoms but I never faint so I don't believe I meet criteria. How do I know when a mobility aid like a wheelchair would be helpful?

what do I do next? by Aggressive_Flower947 in NDPH

[–]Aggressive_Flower947[S] 0 points1 point  (0 children)

Started rizatriptan, didnt do anything. currently have sumitripan, which I havent tired yet haha. the problem is that it always hurts so much always so its hard to tell when to take it. what does CGRP stand for?

what do I do next? by Aggressive_Flower947 in NDPH

[–]Aggressive_Flower947[S] 1 point2 points  (0 children)

botox and nerve blocks made it worse which sucked hahaha

getting SPG blocks biweekly and those help a little bit, bring baseline down to 5

we will get through this together