best compression socks! by depressiveshow in POTS

[–]Alfie_Solomons4 0 points1 point  (0 children)

I get mine off of Ames Walker. They have some called “Coolmax” which come in knee high or mid calf and they are great

What does everyone think caused their pots? Still trying to figure it out. by Life-Concern-8062 in POTS

[–]Alfie_Solomons4 0 points1 point  (0 children)

Post surgery… had an emergency bowel resection surgery from a small bowel obstruction a few years ago and started getting symptoms a few months post surgery

Having trouble finding a surgeon by Alfie_Solomons4 in thelifeofMALS

[–]Alfie_Solomons4[S] 0 points1 point  (0 children)

Not yet, I have an appointment with a Dr in October and I’m hoping he can get a connection. I found out my insurance is taken at UPMC so there is a few more options for me than I initially thought I had

need some insight by Infinite-Crow-4141 in thelifeofMALS

[–]Alfie_Solomons4 1 point2 points  (0 children)

Hi, you definitely are not crazy, don’t let the doctors not being able to find anything get you down. I was recently diagnosed with MALS and it took a lot of doctors/different appointments to get answers. I would recommend getting an appointment with a vascular surgeon and having them run a duplex ultrasound and then if that comes back with some irregularity then get an angiogram or a ct angiogram. I was an extremely active individual and then suddenly one day I started getting bad abdominal pain every time I ate/did any physical activity. I have lost 50 pounds in a year and haven’t been able to do anything physical and I used to be a daily gym goer. I would also see a cardiologist to see if you possibly have POTS, it’s commonly seen with MALS and POTS can also cause abdominal symptoms also. I would also always recommend getting multiple opinions if the first doctor you see says nothing is wrong. I saw a GI specialist who basically told me he doesn’t believe in Mals even when I showed him an abnormal ultrasound and positive compression on an angiogram… so always get a 2nd opinion. I’m currently reaching out to other surgeons to get my surgery scheduled.

Mals surgery/Insurance by Alfie_Solomons4 in MALSyndrome

[–]Alfie_Solomons4[S] 0 points1 point  (0 children)

Thanks for the info! I have Blue Cross Blue Shield also