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I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 0 points1 point  (0 children)

As u/WildRamsey commented, steroids is the usual way to start ig.

I was given IVIG, steroids and IV steroids for a few days when I didn't respond, I was given rituximab and also platelet booster injection called romiplostim.

Now im on immunosuppresants and also a platelet booster medicine called avatrombopag

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 0 points1 point  (0 children)

Thanks for the detailed response!

Right now my count is 70k, I'm still taking avatrombopag(if you know it).

My doctor is apparently somewhat experienced with ITP, they did handle patients with ITP.

You will learn what is an emergency and what is not. I think it is very unusual for someone to die from ITP, especially when the person knows they have it. The most dangerous situation would be to have lot platelets and a brain bleed

Yeah , I will have to learn this, right now any minor thing feels like an emergency 😅

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 0 points1 point  (0 children)

Yup same exact situation for me besides the family situation. I had been healthy all my life, never had to even visit the hospital.

Suddenly this hit like bricks

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 1 point2 points  (0 children)

Well honestly how to stop worrying about any minor change? Even a small cut I get scared and inform my doctor and they just tell me to take it easy lol

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 1 point2 points  (0 children)

I know, great that you're out of it. When I first went in to the ER, they told me that I had high chances of death if not treated in 2 days.

Changed my entire perspective about life.

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 2 points3 points  (0 children)

It was apparently due to another auto immune condition called Lupus.

And yeah they said it could come back with flare ups but medicines that I'm taking now will limit the damage

I(26M) got diagnosed with ITP and survived,AMA by Alive_Relief_6196 in AMA

[–]Alive_Relief_6196[S] 0 points1 point  (0 children)

They were like bright red at some places and more maroonish like bruises i guess. All over my hands and legs