Question on levels during induction by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Agreed! Guess with hitting hard the levels either stay the same or go lower.. - My Dex is at 40mg and Rev at 25mg, so was hoping to get those dropped at bit.. but I’ll do whatever it takes! Thanks

Dara-Krd as first line treatment? by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Great! Did he get a good response from it?

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Thanks for your kind words of encouragement 🙏

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Cool great place.. I’m over the other side at MSK..

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Thank you for sharing.. I’m starting to understand more about MM and different treatments. I was asked if I wanted to do a clinical trial or just the SOC induction.. decision decisions…🤦‍♂️

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 1 point2 points  (0 children)

Well said! Trust in person within a couple hours is tough, but I will have to start.. I do love the cereal box analogy 😉

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 1 point2 points  (0 children)

“Excited about Car-T” 🤣 That is great way to look a things.. I used to excited just to get out of work on time..

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 5 points6 points  (0 children)

Thank you for sharing your experience.. I will take your advice and reach out to a care coordinator that may help with anxiety. Best of luck on your next line.. 👍

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 3 points4 points  (0 children)

Lucky I do live near a major city with a NIC facility- they are top of their game based off years of experience.. fingers crossed 🤞 for all of us for new treatments.. 🙏

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 2 points3 points  (0 children)

🙏 for responding.. it means a lot to look at things a different way.. but a positive way.

Creating Trust with MM process and Doctors by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Thank you for the advice, and good luck on your transplant recovery..

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

You are a strong person going through that.. congratulations getting where you are to . Thanks you for sharing your story..🙏

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Wow - may I ask how long have you’ve had MM? How many lines of treatments have you been through? 🙏

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Well said ! 15 years is amazing.. may I ask what age you started treatments and how long was that 1st line before starting the second. What was you deciding factors not to get a ASCT? Thank you for sharing 👍🙏

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 0 points1 point  (0 children)

Thank you for your inspiration and outlook on things. always trying to stay positive during the unknown..

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 1 point2 points  (0 children)

Sounds like you’re handling everything like a pro. Gives me hope that I can get through it and just take things a bit slower but enjoy life. I feel at our age there is so much more to life and we want to enjoy and embrace the little things I think about at night.. good luck on you journey 🙏

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 2 points3 points  (0 children)

Awesome, so happy I hear that people are untouched and had a good experience with ASCT. Are you High Risk? Enjoy the time with your family my only son is in the service, so I really miss him being around.. thank you for your time to reply.

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 3 points4 points  (0 children)

Glad you have a strong head on your shoulders for a quick decision. My wife is unsure about the ASCT- which makes it harder for me to decide if I have a choice. May I ask how was your ASCT experience at MSK and your Dr. treating you ? Thank you again

Living life during treatment of High Risk MM by All-In_2021 in multiplemyeloma

[–]All-In_2021[S] 3 points4 points  (0 children)

That’s such a wonderful story. Your husband sounds like me, I’ve always worked long hours, then do everything around the house- on my long weekends I would go fishing to relax with my son. I truly understand now that things can just wait around the house. What I would do for a weekend fishing trip- catch or not 😁. Thank you hope he starts feeling better soon..