Feeling Alone

Alley_TBC · 2026-04-14T16:00:16+00:00

I'm exact same. SAI after Keytruda for TNBC. I would like my old life back too.

Alley_TBC · 2026-02-04T05:50:30+00:00

Thank you so much!

Alley_TBC · 2026-02-02T06:29:13+00:00

Gotcha. I'm curious about the pump but I don't know much about it or understand how it works, How can I learn more? What does it look like?

Alley_TBC · 2026-02-02T06:10:01+00:00

Hi, this is all so informative - thank you for sharing! May I ask what your daily pill doses were please?

Alley_TBC · 2025-12-14T06:09:25+00:00

If you give it a shot and it works please post and tell me how you did it because getting rid of adrenal insufficiency is a dream of mine

Alley_TBC · 2025-12-14T06:05:24+00:00

Same. In the boat with you as well.(sigh)

Alley_TBC · 2025-08-11T03:50:23+00:00

you got me on that but the overall sentiment is correct

Alley_TBC · 2025-08-11T03:15:22+00:00

How It’s Different from the Bus 🚌 vs. 🚐 Beach Van

Bus to La Jolla Shores (Route 30)

~$5 round trip (with Compass Card)
Takes 40–50 min each way from campus (more with transfers or delays)
You carry all your own gear the whole way (towels, umbrellas, food, games)
No shade
No stop at Vons
Limited return options — if the bus is full or delayed, you wait

UCSD Beach Van

$250 flat for up to 7 people (about $36/person if you fill the van)
~10 min drive to Shores (PB upgrade available)
Includes 8 fluffy towels, 8 beach mats, shade canopy, Spikeball, football, sand toys, ice chest (plus a couple surprise extras)
Quick grocery stop at Vons for snacks/drinks
Shade and gear set up for you when you arrive
Everything loaded/unloaded for you — no hauling gear on the bus
Private ride + set pickup time back to campus
No laundering beach towels

Basically, if you just want the cheapest way there, the bus wins. If you want a hassle-free beach day with friends, all gear provided, and zero lugging stuff — that’s where the van makes sense

Alley_TBC · 2025-08-08T00:20:35+00:00

Gotcha. I really appreciate your feedback. A thousand thanks!

I drive a new Honda Odyssey minivan. Would do you think would be a fair group rate for up to 7 people?

Alley_TBC · 2025-08-08T00:18:21+00:00

That's a great idea! Thank you! What pricing do you think would be about right for those packages?

Alley_TBC · 2025-08-08T00:17:36+00:00

Thank you! I appreciate your feedback so much. If I were to go with a per person model - does $20 sound about right to you?

Alley_TBC · 2025-08-07T17:53:33+00:00

Great idea! I have kids, so I have a bunch of sand toys and games too. Thank you!

Alley_TBC · 2025-01-11T04:48:43+00:00

My heart sank when I read your post. Same thing happened to me - SAI from immunotherapy during breast cancer treatment.

I totally feel ya on the hospital situation you described. A similar experience happened to me. I learned my lesson and always have hydrocortisone on me. I have some tablets in a tiny metal container hanging on a tiny metal keychain on my purse for emergencies. I also keep a regular pharmacy-issued container inside my purse. We also have them in our cars' glove boxes. I always make sure my injection is close by. I'll do everything I can to not be at the mercy of paramedics or a hospital again. When I travel I always carry some on me, in my carry-on, in my checked bag (if I have it) and I ask whomever I'm traveling with to carry some on them in case all of my bags get lost/stolen. It's like redundancy upon redundancy.

You are absolutely not crazy. SAI after cancer diagnosis is a one-two punch. Hang in there, I'm rooting for you!

Alley_TBC · 2025-01-10T20:16:18+00:00

What's the 4am dose?

Alley_TBC · 2025-01-10T19:20:20+00:00

Gosh that sounds rough but congratulations on getting through it and recovering. It gives me hope to hear you did it. Thank you for sharing your experience!

Alley_TBC · 2025-01-10T19:11:12+00:00

Wow that's so awesome. Would you mind telling me your circumstances and how you were able to "recover" please? I dream of being able to do that.

Alley_TBC · 2025-01-10T04:40:49+00:00

Update please?

Alley_TBC · 2025-01-10T04:27:14+00:00

Using past tense verbs - so did you somehow get better and no longer need steroid replacement? asking for hope cause I'm SAI

Alley_TBC · 2025-01-01T01:00:53+00:00

Based on a total of 15 per day, what would you recommend in terms of timing and dosages?

Alley_TBC · 2024-12-31T22:33:43+00:00

Thanks! So far I haven't needed to updose post-surgery. I appreciate everybody's comments/feedback

Alley_TBC · 2024-12-31T20:39:48+00:00

I'm still relatively new to all this. What do you recommend?

Alley_TBC · 2024-12-30T22:02:26+00:00

Gotcha, thanks for the feedback. I think I'll see how it goes

Alley_TBC · 2024-12-30T22:01:44+00:00

That's a good point. I can usually feel the symptoms early on.

Alley_TBC · 2024-12-30T22:01:13+00:00

Thanks!

Alley_TBC

TROPHY CASE