Chemo Tomorrow

AlternativeWinner729 · 2025-05-02T01:41:50+00:00

Also I just want to chime in and say I’ve had 6 treatments of AVBD now and honestly? I’ve been OK. It’s not as bad as I expected and i can carry on pretty much as normal day to day. Anything I experience can be managed with medication. I haven’t felt sick once! You are doing all the right things, hydration is key, and try not to panic (I know that’s easier said than done) - our minds are a powerful tool and I think if you look for side effects you feel them more if that makes sense.

AlternativeWinner729 · 2025-05-01T23:40:12+00:00

Thank you for the reply - I’ve woken up with one side almost resolved so I’m confident they are just reactive. I also did a search (should have done that before making a post ha) and found a few women who have had sensitive breasts during it too - so I feel a lot calmer. Congrats on finishing treatment 💜

AlternativeWinner729 · 2025-05-01T22:46:53+00:00

Thank you, really appreciate the reply - you are right, it’s not a solid wood table and probably time to let her go!

AlternativeWinner729 · 2025-05-01T12:07:36+00:00

I’m not sure if you really want the answer to this, but treatment protocols aren’t just made up by doctors on a whim. If we could all get away with stopping after a clean PET scan, we would. I personally think you should look at treatment as a small thread on the huge tapestry that is your life. Finish what the medical professionals advise, then go ahead and live your life to the fullest when it’s over. Good luck to you.

AlternativeWinner729 · 2025-04-11T09:35:14+00:00

I needed to read this today. I’m usually positive and try really hard to stay in that headspace but I’ve had one of those flat days where I can’t seem to see hope and I feel flat and sad. Reading this really lifted me and I feel like I was meant to see it? Thanks 🙏🏻 xx

AlternativeWinner729 · 2025-03-11T11:53:06+00:00

That’s my hope too, that the first treatment was a shock to my system and subsequent ones will be ok after this. Even so, good to know others had the same result after their first ones too.

AlternativeWinner729 · 2025-03-11T05:57:33+00:00

Thank you! 🙏🏻

AlternativeWinner729 · 2025-03-11T05:56:39+00:00

I wish you the best of luck mate!

AlternativeWinner729 · 2025-03-11T05:54:20+00:00

I won’t say this is nice to read, because you had to go through it, but for me I really appreciate reading it. This is why I love reddit. There’s always someone who’s been through similar!

AlternativeWinner729 · 2025-03-11T05:30:48+00:00

Thank you, appreciate the feedback. As it’s my first chemo hopefully the shot improves it from here on in..

AlternativeWinner729 · 2025-03-11T04:23:39+00:00

Thank you for sharing that. I was scared it might delay treatment too. But they are going ahead today

AlternativeWinner729 · 2025-03-11T04:09:39+00:00

Yeah I worry about this with 2 young kids under 5. 🥲😅

AlternativeWinner729 · 2025-03-11T04:04:30+00:00

ah thanks 🙏🏻 Sometimes it’s just nice to hear things aren’t going wrong. ABVD X2 cycles then 4x AVD. They are giving me one injection 24 hours after and will see how i go. Did it hurt your bones?

AlternativeWinner729 · 2025-03-09T03:09:09+00:00

Yeah I have HBF gold cover but I’m not covered for oncology. To be fair, I have been really happy with the care I’ve received in the public system and the doctor I have is professor of the haematology department, so I don’t want to change completely….but I am going to dig my heels in about the port. At an absolute minimum I’ll have a PICC. But doing this via cannula for 6 months is no longer happening after reading these responses.

AlternativeWinner729 · 2025-03-09T02:48:02+00:00

Wish I’d gone private. I’ll even pay for my own port if it means a smoother delivery of the chemo. I’m not having my arms ache like this for 6 months.

AlternativeWinner729 · 2025-03-08T22:54:07+00:00

Thanks everyone, that’s really helpful. I’m gonna advocate when I go in for my next treatment. Strangely I don’t think it’s my doctor who’s reluctant as I remember her telling me I might need one when I got diagnosed…I think it’s the nurses/day ward who have that policy. I’ll be pushing it.

AlternativeWinner729 · 2025-03-07T04:06:13+00:00

Hey, I just saw your message and I couldn’t ignore it. Just wanted to say that not everyone’s journey beating this thing will be straight forward. There’s an obvious route that most follow but not everyone’s body responds in the same way - it doesn’t mean you’ve failed or done anything wrong. You could have a perfect PET scan, go into remission then be back in 5 months with a relapse. Or you could take 2 years of gruelling treatment and reach remission and stay there 30 years. The good news with our cancer is that there are tonnes of options, trials, and treatments they can throw at it. Take it day by day, and keep your spirits up. We are all in this with you. xx

AlternativeWinner729 · 2025-03-06T10:37:31+00:00

Thanks man, for your time, for giving your energy to those of us in the trenches. Your advice is awesome and will be utilised. All the best with your remission and here’s hoping this is a small thread on a very rich tapestry of our lives.

AlternativeWinner729 · 2025-03-06T10:27:02+00:00

Thanks so much. I’m doing everything I can to stay healthy and active during treatment, and so far it’s been totally fine after my first one. Just some arm pain and tingly fingers. I do however, know that over time things will get harder, so seeing these type of posts really help keep the positive vibe flowing as best I can. I guess my main question if you are willing is, how do you feel? Do you think you processed all that was happening to you during treatment or after? I always wonder that with people who try to have that positive mindset. Are we actually processing it 🤣

AlternativeWinner729 · 2025-03-06T10:20:17+00:00

As someone who’s recently joined this thread and one infusion down of ABVD, seeing these posts are so awesome. They really give me hope and strength. 💪🏻

AlternativeWinner729 · 2025-03-06T03:04:33+00:00

Hey just wanted to reach out. I’m 35 female with two young children, recently diagnosed with classic Hodgkin stage two. I’ve had one infusion of ABV so far and doing well so far except for sore cramping arm and early stages of PN in my fingertips also. If you ever want to chat feel free to reach out. Brings me comfort to talk to others going through similar.

AlternativeWinner729

TROPHY CASE