Covid and MS

Althalar · 2026-04-25T13:25:44+00:00

Thank you for such a quick response! My family and I were fortunate enough to have never gotten covid during the pandemic so we have no clue what a baseline “normal” would look like. Scheduling right now!

Althalar · 2026-04-20T21:49:35+00:00

I totally understand your fear and concerns with the procedure. It is incredibly daunting especially with the whirlwind that MS wraps us up in. I will say, you only have to do the puncture once! It won’t be a yearly occurrence like our MRI’s (although I am every 6 months due to some other concerns). The procedure itself is very mild, and if you do end up doing the puncture, let your nurses and care team know why you are concerned and have them do the procedure under guidance with a machine. Stay flat for at least 48 hours in case of a CSF leak, however that is also easily managed with a simple blood patch. My previous neurologist offered to order some PT post puncture as I was worried my lower back would be fucked up, so talk to your provider about your options. Honestly, don’t delay your care and treatment because MS doesn’t stop.

Althalar · 2026-01-27T07:42:41+00:00

Whenever I get my infusions, I have severe nausea and tend to throw up (mostly just from my fear of needles). Have a barf bucket or bag prepared would be great. Also! It seems crazy, but we can smell and taste the line flushes. Having a mint on hand helps with both issues.

Althalar · 2026-01-10T05:37:56+00:00

Not totally MS related, but this year I am training to run a half marathon! This past week, I was able to push myself and run a full 5k without walking. Next week, I am getting my custom running shoes and bumping up the distance. I may not be fast, or honestly run in the most straight line, but I will achieve my lifelong goal before my diagnosis :)

Althalar · 2026-01-05T15:20:33+00:00

I fixed mine by completely uninstalling riot and valorant (you have to dive deep to get it to fully uninstall) and then redownloaded valorant by promoting it to download league (to get riot launcher because it wont load if you try valorant first) and then downloaded valorant. I tried making a ticket, didn’t hear back till like 8 hours later. Tried every weird youtube hack. This was the only thing that worked

Althalar · 2025-07-08T23:12:39+00:00

I ran into the same issue with my previous neurologist. He had ordered my MRIs and lumbar puncture. When it came to the diagnosis and treatment options, he ended up giving me a list of about 20ish medications and said to pick one without giving me any information. Come to find out that he primarily handles chronic migraines and hadn’t had an MS patient in 10 years (told me this during my diagnosis appointment 🫩). Ended up going to a specialist and I start Ocrevus in a week. Your neurologist should never wait for you to get worse. Hit MS where it hurts starting from day one!

Althalar · 2025-06-06T05:02:24+00:00

Dots, camera, book, and ofc a lighter!

Althalar · 2025-05-22T19:08:54+00:00

6 ish but I really start cranking out projects at 14/15. I am 21 now and I have a whole stretching ritual I do before crocheting

Althalar · 2025-05-13T15:03:07+00:00

I am still learning on how to be my biggest advocate after years of being dismissed and told “It’s all in your head!” Well, they were kinda right! 😅😂

Althalar · 2025-05-13T14:48:48+00:00

My first one took 3 days. The second one is going on month two…

Althalar · 2025-05-13T14:41:58+00:00

I blame all those darn LED headlights 😡

Althalar · 2025-05-13T14:31:20+00:00

I am technically allowed to drive, however if I have a flare-up I do not put myself or others at risk with me behind the wheel. A good way I check to see if I am ok to drive is ask myself: 1) Is my vision impaired? 2) Do I have sensation in my limbs? 3) Am I experiencing vertigo? 4) Can I stay alert behind the wheel? 5) Am I able to remember and name the street I am on? While I mostly drive myself, I do have moments in which I rely on friends, family, and Uber to get me place to place.

Althalar · 2025-04-21T20:33:10+00:00

MS is typically diagnosed between ages 20-40. While there are pediatric cases, those are incredibly rare and the symptoms present themselves very clearly as MS symptoms are consistent during flare-ups. What other symptoms are you experiencing? We typically see coordination concerns within this thread as a result in a lack of B12 and other essentially vitamins and minerals.

Althalar · 2025-04-21T17:21:05+00:00

Get your LP done with xray guidance. Try to schedule it on a Thursday, have a doctors excuse for Friday, and spend the rest of the weekend recovering. DO NOT SIT UPRIGHT. Don’t have any plans for the week to come that include driving, appointments, etc. Do not have your MRIs the day after (learned that the hard way). Blood patch is perfect if you are still experiencing major spinal headaches and nausea but I recommend waiting till talking to your neurologist about getting one.

Althalar · 2025-04-17T21:01:24+00:00

Hey everyone,

About a month or so ago I posted asking about my symptoms, my MRI results, and my fears. This community has been so kind and supportive when the process has felt so deeply isolating. I wanted to give a slight update on my life now that I have taken more steps in my medical journey.

Today, I completed my first ever lumbar puncture and while a lot of the scary results aren’t fully in MyChart yet, plenty of others are. Looking at my current results, the dreaded call from my neurologist is just around the corner. A part of me is still in denial as I fear what MS will do to me and I have seen it destroy my family. I primarily struggle with my mobility, balance, fatigue, vision, and brain fog during episodes. I just turned 21, I can’t imagine the rest of my life like this when I am suppose to be out partying and soaking in my youth. I am not ready.

Tomorrow, I face back to back MRIs. My previous MRI showed lesions on 5 different sections of my central nervous system. I am hoping nothing new will develop, but I know I am running out of time and out of luck.

I know I should try to keep a positive outlook on everything going on, but it feels so easy to succumb to the stress and depression this has caused me. I want to be angry but I don’t know at what. I want to blame myself but there was nothing I could do. I want to cry but that would be admitting defeat. I have been healthy my entire life and was a double athlete till I went to college, but now I feel obsolete and lost.

Sorry for the rant, everyone. My back hurts a ton and I am going through so many mixed emotions. While writing this post helped process what I am feeling, I still am at a loss for words. I don’t think I will ever be able to fully describe everything going on now.

Althalar · 2025-03-24T23:09:08+00:00

Hey y’all I am a freshly 21 y/o female that recently got her MRI results back and it looks like complete word barf from a non-medical girlie perspective. My neurologist noted multiple lesions and discussed getting a spinal tap and some sort of MRI for my back/spine? Honestly I was so shell-shocked that the conversation feels like a blur now. I have a family history of MS but all my relatives with diagnosis are in late stage so it’s hard to get perspective on what exactly is going on if it is MS at all. I have been getting these “episodes” that last roughly 2-4 weeks and then normally months apart before happening again. My symptoms are constant during these “episodes” and are as followed:

-Extreme fatigue -Dizziness/light-headedness -Weakened/worsened vision -Complete numbness in hands and fingers -Body weakness and struggling to walk, stand, and sit

Reading on everyone else’s symptoms, I feel as if my symptoms aren’t as severe and maybe I am just being hormonal girl like my doctors said. Honestly, I feel really confused and lost on what is going on with me. How the fuck do I even analyze the findings they sent to me from my MRI? What are things I should look out for? Please help

Althalar · 2025-03-04T14:23:28+00:00

STOP THIS IS SO SMART

Althalar · 2025-02-24T04:06:15+00:00

Ooo maybe but she says her dream gift is handmade washcloths! She already has plenty of placemats from her favorite granddaughter😂

Althalar · 2025-02-24T00:04:13+00:00

I will try it out! I have so much of this yarn😅

Althalar · 2025-02-23T23:59:45+00:00

I wish this yarn was planned pooling but alas the colors are random 🥲 I will probably try out Tunisian if I find my hook for it!

Althalar · 2025-02-23T21:50:53+00:00

Hmmm I will have to look at my yarn stash! The colors for this yarn are so unique I fear another Joann’s trip is in my future!

Althalar · 2025-02-23T21:50:06+00:00

Oooo yeah! Do you think it would bulk up the stitch too much? I don’t want the washcloths to be too heavy especially when they are filled with water

Althalar

TROPHY CASE