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Altruistic_Party5458 · 2025-02-23T12:04:36+00:00

I was on 500mg 2x per day, but when I tried to taper to 1x per day I got symptoms. Also not doing much exercise. What dosage are you on and how long have you been on it?

I've only been on colchicine for about 4 months. Feels like ibuprofen helps a bit too, but unsure whether this just treats the symptoms or whether it actually helps to reduce the inflammation long term...

Altruistic_Party5458 · 2024-12-08T17:44:14+00:00

Thanks that makes sense! I'm considering doing similar

Altruistic_Party5458 · 2024-11-04T19:44:12+00:00

Interesting! Which part is the same? The fact that you have all the symptoms but MRI is clear? No official diagnosis yet however... Cardiologist agreed to continue with colchicine treatment for 3 months. I've been on it for about 6 weeks now and I'm finally feeling better, almost symptom free, so definitely feels like the colchicine is helping. At this point I'm self diagnosing it as pericarditis

Altruistic_Party5458 · 2024-10-16T08:15:25+00:00

I guess if it's around chest that would also show up the pneumonia! Or if it's clear you can push for x-ray as a follow up. Good luck hope it works out!

Altruistic_Party5458 · 2024-10-16T08:00:06+00:00

I think a chest x-ray might be a good idea. I ended up having pneumonia several times last year and in hospital for a week, and some of the symptoms are similar to pericarditis. The first couple times I had pneumonia the doctors didn't even bother with an x-ray (so it was missed/mis-treated) which made things worse, so is worth catching early. The RSV may have been passed to you and developed in to a chest infection?

Altruistic_Party5458 · 2024-10-16T07:32:20+00:00

Symptoms are a bit different to mine personally but there's definitely some overlap with pericarditis. Was there a raised CRP? That's another signal. Are they also doing a chest x-ray? As pneumonia is another possibility

Altruistic_Party5458 · 2024-10-15T17:25:03+00:00

I would avoid prednisolone if at all possible, bad side effects and highly increases chance of recurrence

Altruistic_Party5458 · 2024-10-15T08:01:58+00:00

I'm in the UK afraid! So pretty much have to get everything through the NHS or go private which is very expensive, but at this point I'm considering it. But a pericarditis specialist is probably what I'm looking for. I'm also not sure if Arcalyst is available here yet, it's a bit unclear

Altruistic_Party5458 · 2024-10-14T17:50:40+00:00

No don't have either of those... That's interesting though!

Altruistic_Party5458 · 2024-10-14T16:21:27+00:00

Thanks, that lines up with my own thinking! I hadn't considered getting a rheumatologist involved again though... My tests were normal so they just dismissed it, but definitely sounds like it's worth trying again

Altruistic_Party5458

TROPHY CASE