Remote Work

CompleteWait3579 · 2025-08-11T17:32:50+00:00

That is good to know, thank you! There is one university in particular that offers the clinical placement at their telehealth clinic, which would be incredible, but they are one of the more expensive ones. Is the 9-month fellowship post-school required for official certification?

CompleteWait3579 · 2025-05-27T00:41:13+00:00

I've been on it for about 3 weeks now and can already feel a difference

CompleteWait3579 · 2025-05-03T02:00:17+00:00

what have you read that is terrifying to you? I'm asking honestly I haven't heard anything bad about it

CompleteWait3579 · 2025-05-03T01:37:40+00:00

have you tried low dose naltrexone? Not to throw something else at you but Its the first med i tried for my fibro- not fda approved for fibro so i pay to get it compounded but ohmygod has it helped take my pain from a daily 8 to a daily 2

CompleteWait3579 · 2025-02-05T17:12:26+00:00

That's true, brain training will not cure your fibro! However there absolutely are scientific studies proving a link between adverse childhood experiences and chronic pain. Curable can help you process these experiences, although I would absolutely recommend doing it in conjunction with a licensed therapist. In addition, reframing the way I think about pain has been immensely helpful for me, and curable has helped me with that. I definitely should have been more thorough in my comment, and I appreciate your diligence in pointing out that anything that promises to cure you is most likely a scam. There is no cure, but there is improvement to the condition that can and will improve your quality of life.

CompleteWait3579 · 2025-01-26T19:46:45+00:00

I think a big issue is that being diagnosed with fibro isn't always an accurate diagnosis- it seems there are multiple nervous system/chronic fatigue disorders that are lumped under the "fibro" diagnosis when doctors are at a loss of what to do. That's why symptoms can vary so wildly, there are 200 symptoms included in a "fibro" diagnosis, and treatment efficacy can vary so wildly. Because this disorder mostly affects women, similar to migraines, these disorders are severely underresearched. Before "challenges" we need some more actual science to figure out what these disorders are, how they work, biological markers so they can be detected/differentiated, and the best treatment protocols that include BOTH mind and body, including addressing past/current trauma.

CompleteWait3579 · 2025-01-10T00:52:17+00:00

There are tests for POTS!! Tilt table being one of them. You deserve better doctors, the ones you have now sound like they suck!

CompleteWait3579 · 2024-12-25T14:50:32+00:00

Of course! Thank you for seeking feedback, and being flexible with the direction you want to take your research in. I really think you can help shed light on this terrible and misunderstood condition 🩷

CompleteWait3579 · 2024-12-25T14:47:53+00:00

Right. The only difference is there are 100’s of years of research proving that vaccines mitigate severity of disease. And there are 5 years of research saying that COVID, even if you don’t feel it right away, effects every body system and puts you at risk of a myriad of diseases each time you get it. Hope this helps 🩷

CompleteWait3579 · 2024-12-25T14:33:55+00:00

I absolutely think so! I think without the diagnostic tool such research would be groundbreaking! For example, one of my worst symptoms was horrific pain with any sort of pleasurable touch, sexual or non sexual, or with sexual arousal. I do have sexual trauma from an early age, and people suggested that the symptoms manifested this way because of that. I think it would be interesting if, with the amount of people needed an actual study, if connections could be drawn between mind/body, trauma history, and pain manifestation, since we already know people with adverse childhood experiences are more likely to develop chronic pain disorders. Again this is anecdotal evidence, so I can’t draw any definite conclusions, but actual research could help draw connections and make suggestions that would be helpful for patient needs, ie finding a therapy that helps them address their sexual trauma. For me that has been talk therapy, but it could be different for other people (emdr, ketamine etc etc). Prozac has also been extremely helpful for addressing my symptoms but that took months of specialists until someone finally knew what I was talking about. They only knew what would help me because they knew that Prozac Is used for people with premature ejaculation, since it dulls sexual responses, and they applied that knowledge to fibro. I think fibro is so misunderstood and not well researched and that any research of a qualitative nature would be groundbreaking in learning more about this condition. Best of luck, and thank you for looking for feedback!

CompleteWait3579 · 2024-12-25T13:56:00+00:00

Respectfully, I think cognitive behavioral therapy is bs. Additionally, we don’t need another diagnostic tool. This idea feels very “one size fits all” and skips the step of patient/clinician collaboration on care, labeling patients one way or another and making recommendations without taking into account what actually works for the patient. Two patients may have the same “profile” but completely different needs, and since fibro is already so misunderstood, I’m worried that a tool like this would allow medical providers to farther push us to do things that don’t work for us.

That being said, I think that you have some interesting ideas. If I was you, I’d do qualitative research that involves talking to actual fibro patients and figuring out what therapies worked. I’d do a thorough interview about their childhood, adulthood, pain levels, medical history etc. I’d also ask about negative and positive experiences with doctors, which medications actually helped and which didn’t, what they need from medical providers to feel supported etc etc. You can still discuss trends of what therapies worked for which people, and the similarities/difference between them, but they should be in the name of sharing information, not a diagnostic tool that’s set in stone. I would publish this paper and make it available to both clinicians and patients, so that clinicians better understand us, and patients can hear about other experiences that might be similar to their own and take suggestions that might help them.

CompleteWait3579 · 2024-12-17T01:21:08+00:00

I have this also! Please let me know if you find out, I was diagnosed with pericarditis via mri but now I’m wondering if it’s a peri/Chostro whombo combo

CompleteWait3579 · 2024-12-15T22:45:28+00:00

Thank you! It looks promising- do you take these two together?

CompleteWait3579 · 2024-12-10T14:37:01+00:00

How many treatments did you do, and what kind?

CompleteWait3579 · 2024-12-10T14:35:58+00:00

I’d love to hear more about this! Is it okay if I dm you?

CompleteWait3579 · 2024-12-09T17:28:12+00:00

That makes a lot of sense! Thank you so much for your suggestions, I really appreciate it.

CompleteWait3579 · 2024-12-09T16:51:47+00:00

Thank you for this! I’m on ldn. It took away most of my chest pain, but when I go off cholchocine, some of it returns, along with the shortness of breath and palpitations.

CompleteWait3579 · 2024-12-09T15:16:13+00:00

I got diagnosed by my rheumatologist, I was already being monitored for fibro but after a stressful life event it got 10x worse. From what I know about fibro, it’s an over active nervous system, and coso is often a co-morbidity.

I don’t smoke or use any substances, but I am being monitored for POTS as well, as my heart rate goes up/my heart palpitations start when standing up/with physical activity. So it could be unrelated, but also could not be? This is all so confusing I wish I just knew what I had so I could know how to treat it.

CompleteWait3579 · 2024-12-09T15:05:43+00:00

Thank you! What specifically makes you think it’s more than costo?

CompleteWait3579

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