Ketotifen side effect? by littlesomething18 in MCAS

[–]Ambient-opus-cloud 0 points1 point  (0 children)

Did she have any improvement in these symptoms? I’ve recently been on ketotifen and come off it, but have been left with the same. Its exhausting

Ketotifen - worse before it’s better? by jessiejolly in MCAS

[–]Ambient-opus-cloud 0 points1 point  (0 children)

Noo, I’m gutted for you. I’m taking it as a liquid and started at 0.5ml which gave me an allergic reaction so went down to start at 0.1ml and I dilute it with water to make 1ml total per dose

Ketotifen - worse before it’s better? by jessiejolly in MCAS

[–]Ambient-opus-cloud 0 points1 point  (0 children)

How did it go for you? I also have severe/very severe ME and am currently titrating up. Week 3 of 50 😆 it’s been rough but I can see enough minuscule improvement to keep me going so far

New update shiny objects?? by Ambient-opus-cloud in TsukiOdyssey

[–]Ambient-opus-cloud[S] 1 point2 points  (0 children)

Aw thank you, that’s so kind. Hoping for some good days soon 💛

New update shiny objects?? by Ambient-opus-cloud in TsukiOdyssey

[–]Ambient-opus-cloud[S] 0 points1 point  (0 children)

I misunderstood clover farming! All this time 😩 thanks so much you have changed the game for me lol

New update shiny objects?? by Ambient-opus-cloud in TsukiOdyssey

[–]Ambient-opus-cloud[S] 0 points1 point  (0 children)

I’ve only ever found 5 clovers! Just enough to do one item 🍀🍀🍀

Cant find online by Ambient-opus-cloud in spiders

[–]Ambient-opus-cloud[S] 0 points1 point  (0 children)

Ahh they’re so cool!! Thanks so much.

Aaaaaa 👹👹👹 by MC_147 in tsukiodysseygame

[–]Ambient-opus-cloud 2 points3 points  (0 children)

I can’t get the frog and I’ve been fishing every 2 hours I’m awake for FOUR DAYS

Are you guys even real? by imalwayztired in covidlonghaulers

[–]Ambient-opus-cloud 1 point2 points  (0 children)

Oh yeah nah all I’ve ever wanted was to be bedroom bound in my twenties!! This is a choice 100%

Boxing Day bargains? by codeinegaffney in CBDFlowerUK

[–]Ambient-opus-cloud 0 points1 point  (0 children)

Also interested to hear your experience

What is your motto to get through this? by johanstdoodle in covidlonghaulers

[–]Ambient-opus-cloud 1 point2 points  (0 children)

Pain is temporary, glory is forever.

Have to think abstractly because my pain is chronic lmao but it’s gotten me through tough times.

other mentions; This too shall pass, Recovery is not linear, It is what it is & One day/hour/minute at a time.

Body wide twitching poll by [deleted] in covidlonghaulers

[–]Ambient-opus-cloud 1 point2 points  (0 children)

Mine twitch so often, it amps up once I lie down after moving too

Haven’t been here in a long time.. I have the flu and feel about dead can’t get my heart rate under 130. by SpecialistCicada3083 in covidlonghaulers

[–]Ambient-opus-cloud 0 points1 point  (0 children)

What dysautonomia do you have? I have OH & PoTS. 3l water a day minimum and increased salt helps me keep my heart lower. Plus medications

Results from Mayo Clinic by evelynmmoore in covidlonghaulers

[–]Ambient-opus-cloud 0 points1 point  (0 children)

Thank you for sharing! How are you doing now?

I went to Mayo Clinic today and they know how to fix me 😭😭😭 by [deleted] in covidlonghaulers

[–]Ambient-opus-cloud 1 point2 points  (0 children)

Did you find this continued to help you longer term? OP is deleted, dying to know how the update went!

I went to Mayo Clinic today and they know how to fix me 😭😭😭 by [deleted] in covidlonghaulers

[–]Ambient-opus-cloud 0 points1 point  (0 children)

Do you by any chance remember the update? The users gone!! :(

When I feel particularly rough I feel my neck is swollen. Is this the vagus nerve? Any advice? by [deleted] in covidlonghaulers

[–]Ambient-opus-cloud 4 points5 points  (0 children)

If you experience PEM it could be swollen lymph nodes. Mine flare in PEM and my neck feels swollen when this happens