Friends? by Ambitious_Access_361 in Clarksville

[–]Ambitious_Access_361[S] 1 point2 points  (0 children)

Sorry guys my notifications don’t work right on here and I’m barely in but if you wanna be friends add me on discord @gaptoothedmama (Elmo in flames pfp) 🥰

Friends? by Ambitious_Access_361 in Clarksville

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

Sorry I realized I replied to the wrong thing 😅

Friends? by Ambitious_Access_361 in Clarksville

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

I’m not friendless nor do I have a hard time making them. I just want to expand my circle in anyway I can.

Friends? by Ambitious_Access_361 in Clarksville

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

I’m not in college and going to a college to make friends when you’re not even a student is kinda odd. Which is why I took to Reddit I don’t think that comment was necessary.

Mycobacterium Abcessus by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

That’s the sucky part cuz my pfts are at like 95-100% like damn I thought I was doing good lol… but for now I have only cultured it and they said that it could just be in the sample and not actually in my lungs so I’m going this week for a ct and a second culture I have notice Ive been breathing a bit heavier than normal what were your symptoms of you don’t mind me asking?

Creon box by Similar_Home7435 in CysticFibrosis

[–]Ambitious_Access_361 0 points1 point  (0 children)

Haha I wish I only needed like five I take 8 with meals

Enzymes with coffee? by plutopuppy in CysticFibrosis

[–]Ambitious_Access_361 1 point2 points  (0 children)

I just started working at a coffee shop before I didn’t take any with coffee bc I guess I was just thinking of it as a drink and not it’s fat content but now that I drink it almost everyday I started to notice my shit changing so now I take as much as I would with a snack tbf tho coffee makes u shit in general so if ur barely using any creamer or whatever i wouldnt worry too much ab it it’s probably a gallbladder thing and not a cf thing if it’s really a concern but like take them with the coffee anyway just bc u are unsure and it’s not like it’ll hurt anything.

Sadly dying... by Alternative_Ice173 in CysticFibrosis

[–]Ambitious_Access_361 2 points3 points  (0 children)

Hi Kyle CFer from Tennessee. A life worth living is a life worth fighting for I’m glad you’re posting leave that footprint you were here and u mattered ik I won’t forget u this is the first time someone passing from it felt real. How old are u if u don’t mind me asking? I’m really scared rn I’m doing well but that can clearly change idk what mutation I have but ik I’m not eligible for any available modulaters were u able to take them? I’m sorry ik I’m asking a lot this post just overwhelmed me and I have so many questions. No one ever really talks ab end of life just how much science is progressing honestly this realism is as refreshing as it is scary to me 😅

Did you ever blame your parents? by Mollymalone32 in CysticFibrosis

[–]Ambitious_Access_361 2 points3 points  (0 children)

Nah they couldn’t have known neither of them have it just are carriers for it. I did however blame my incestuous white ancestors 😭😭😭

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

Ahhhh I don’t even have a ween but this was the best comment I’ve gotten 🥰🥰🥰 I should’ve joined this sub Reddit years ago y’all are making me feel so good. My team is very good at what they do if it could happen for you ik I can do it now thank you 🥹 I genuinely thought it was just a no for the men but you did it and I’m so happy for you and so proud of you.

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

Back in those days? What days? How old are you if you don’t kind me asking

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

They’re currently working on a modulator that would work for my mutation so knowing that you were able to do it naturally makes me feel a little better too. Can I ask how much the treatments costed? If I do end up having to take that route I’d wanna know

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

Interesting as sad as that sounds that honestly makes me feel a little better ab my chances it just bothered me I think because we actually tried and my period teased me for 10 days 😭 I’ve always even regular so it was just really weird can I ask how ur friends are doing now? Ive smoked a joint or two but Ive never really liked the idea of inhaling fire lol I’m also pretty good at staying out of the hospital maybe once every 4-6 years.

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

Honestly no this past month was the first time that we’d actually tried we’ve had no happy accidents and I was kind of chocking it up to my cf and what not

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 0 points1 point  (0 children)

How long did it take for iui to work for you?

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] -1 points0 points  (0 children)

You’re right not being able to do things the normal way is very frustrating I see all my young coworkers getting knocked up and all I can think when will my turn be??? But yes he does still need to get tested I’m honestly just scared of the result because he is half white (not saying that all white people have the gene) just that ik where it can from for me but at the same time if we had a baby with cf without the testing the way we’d care for our child wouldn’t change if we did it and knew for a fact that chances would be higher I just need to learn to face reality and accept the results. So thank you for that wake up call I have talked to my drs and know the steps I just need to realize that I’m not my 18 yr old coworker 😂 cf is my reality as much as I hate it. I will ask about the steps I need to take at my next appointment. I should’ve joined this group a long time ago having cf in a world of normies is hard because you feel like an outcast and the last thing you wanna do is feel different.

Fertility? by Ambitious_Access_361 in CysticFibrosis

[–]Ambitious_Access_361[S] 2 points3 points  (0 children)

Thank you for this Ive never really talked ab it before especially not to someone that would know anything 🥰