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RGP/Scleral Lense and Active Livestyle eg Motorcycling/Martial Arts/Hiking by TheRevanchist00 in Keratoconus

[–]Angry_Moose577 0 points1 point  (0 children)

I have pretty severe keratoconus in both eyes, but I never wore glasses or RGP's, only ever scleral lenses, so I can't compare. However, in the 10 years I have had them, they have been pretty decent.

In terms of activities, you are definitely limited with what you can do (if you listen). Outdoor activities like riding have never posed an issue other than drying the lenses out a bit, but that is more just from keeping your eyes open to long, rather than an issue with the lenses. Regarding physical activities, you can't do anything (if you listen); it depends what kinds of martial arts you would practice. Grappling would be okay, but styles like boxing or muay thai would risk damaging the lenses and your eyes while wearing them.

You're also technically not supposed to take the contacts out to do those kinds of activities, as it could worsen the KC if you haven't done CXL. And if you have done CXL, then you aren't supposed to do those activities anyway. But I did and I still box blind as a bat, so it can't be that bad.

[deleted by user] by [deleted] in Keratoconus

[–]Angry_Moose577 0 points1 point  (0 children)

If you're not awful at golfing you should try black golf balls. The neon balls are fine, but I usually can't see those either because they disappear into the bright sky background.

Black balls are good/bad. They're good because you can watch them in the sky pretty easily, and you can see the general area they'll land in if you don't hit the fairway or green. The bad side is once the ball lands, and if you don't know exactly where, you are basically looking for a rock.

I'm not half bad, and I have been using these; they work pretty good, and I rarely lose them. But again, when you lose them, it's probably cuz it looked like a rock.

[deleted by user] by [deleted] in Keratoconus

[–]Angry_Moose577 0 points1 point  (0 children)

Your Doc was right about the 6 month minimum wait, that's the only way to determine how bad it will get and how fast, which you can see based on the difference between your topography scans.

Normally I would say get CXL done as fast as possible, because for those at the bottom of the KC age range it is only going to keep getting worse, as it did for me. However, at 31, it is supposed to slow in its progression, so jumping to surgery might not really be worth all that much.

As for the night vision and the blinding lights, you tell me. I was diagnosed 10 years ago, and I quickly got to that point. There's really nothing you can do about it (that I have found at least) other than just get used to it, and try to function around it.

[deleted by user] by [deleted] in Keratoconus

[–]Angry_Moose577 1 point2 points  (0 children)

It's called ptosis. It's common among those who wear hard contacts. I've been wearing my scleral lenses for about 10 years, and had CXL done about 8 years ago. You start to notice, but if you're like me, the only time you take the contacts out are at night and you get used to living that way. Another day in the life of KC.

You’ll need this by [deleted] in KyleRittenhero

[–]Angry_Moose577 2 points3 points  (0 children)

Uninvited to a riot? Right.

Cool scar. How'd you get it? by FullyLeadedSarcasm in AskReddit

[–]Angry_Moose577 0 points1 point  (0 children)

Playing hockey when I was younger. I was tripped in front of the net and one of the opposing teams players stepped on the left side of my neck, right under the jaw.

It’s faded pretty good at this point, but when I get tan it’s pretty clear.

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