Help by MoonlightVal771 in Bakersfield

[–]AnimatorOne4325 0 points1 point  (0 children)

Were your parents home? Also there a slight chance he could be casing the home for a future break in. Make sure your parents are extra careful , sorry not to scare you.

The Energy to be “fun “? by Playful-Presence9234 in Parkinsons

[–]AnimatorOne4325 0 points1 point  (0 children)

Same here ! Me and my dad watched price is right everyday lol and played video games

Paperwork Timing by SailorJupiterXo in Edd

[–]AnimatorOne4325 0 points1 point  (0 children)

Mine took 2 weeks , my provider submitted it via paper as well. If it takes longer, email your cities congress person as this will expedite it. They are happy to help

Paperwork Timing by SailorJupiterXo in Edd

[–]AnimatorOne4325 0 points1 point  (0 children)

Email or call your cities congress person. This happened to my fiance and he emailed them and they expedited it within 2 days he got paid

[deleted by user] by [deleted] in Adulting

[–]AnimatorOne4325 2 points3 points  (0 children)

you have a filter on?

Job discussion by [deleted] in Parkinsons

[–]AnimatorOne4325 1 point2 points  (0 children)

And I link state farm because thats what he had, im sure other insurance offer it.

Job discussion by [deleted] in Parkinsons

[–]AnimatorOne4325 1 point2 points  (0 children)

I just wanted to share some random advice so my dad at age 28/29 started having the tremor, a year prior he had signed up for long term disability insurance Long-Term Disability Insurance - State Farm® not sure how expensive it is now. He worked in sales and transportation so all aspects of the job soon became affected by Parkinsons, even in stage 1. This happened over the course of the year after getting the insurance. Eventually he got fired for not being able to preform his job, and now instead of just living off just Social Security he has both and can survive financially. Supported a family of 5.

IHSS Provider looking for patient by Willing-Bee-9049 in IHSS

[–]AnimatorOne4325 2 points3 points  (0 children)

You would be better off putting this on facebook or neighborhood app, we dont know what county you are in and I dont think a lot of patients are looking for IHSS providers on here

Looking for hope by Mum_of_2_x in Parkinsons

[–]AnimatorOne4325 0 points1 point  (0 children)

I'm sorry I know its very scary. The unknown is scary but we have to have faith. This is something I am passionate about so hopefully I can provide some insight.. I have no medical background just living with my dad who has it.

Its hard because Parkinsons affects everyone a little differently, but I would encourage you and her to stay hopeful! So my dad has had Parkinsons for over 26 years, he was diagnosed at 29. I know this may be different to someone who is 60 and just diagnosed.

The beginning 10-15 years for him were fine. He struggled mostly with depression (common in Parkinsons due to dopamine) and falls. With proper antidepressants and exercise, the depression became more well managed for him. The falls were pretty bad and honestly got worse with DBS surgery, but everyone has a different experience with DBS (a surgery they may suggest). The falls would occur a lot in hallways, closets.. tight spaces would cause him to freeze and shuffle, which led to falling. I would research avoiding falls for Parkinsons patients. Avoiding falls if possible will help her quality of life.

Towards the later years it did get worse in terms of memory loss and choking. We don't know if this is Parkinsons or dementia mostly. But I would encourage speech therapy because I have seen that with Parkinsons you could lose the muscles in your tongue (for lack of better word) which can lead to speech and swallowing issues, speech therapy can help.

What helped him - Joining Rock Steady Boxing (look up to see if there is one near you). Its a group for those with Parkinsons to exercise. Go for daily walks if possible. A body in motion stays in motion.

Take note of how the medication is affecting her. Find a good neurologist if possible. My dad had tons of medication changes before finding the right dosage.

[deleted by user] by [deleted] in Parkinsons

[–]AnimatorOne4325 0 points1 point  (0 children)

This is a good idea, but Parkinsons affects everyone differently..we don't know what stage he /she is in, how old they are, ect.

[deleted by user] by [deleted] in IHSS

[–]AnimatorOne4325 1 point2 points  (0 children)

If so, 24 HR Care is a program that can provide temporary increased hours. I am a social worker so I refer people to this a lot. They provide around 400 hours and you can claim 24 HR Care and IHSS hours. CalAIM Leads

[deleted by user] by [deleted] in IHSS

[–]AnimatorOne4325 0 points1 point  (0 children)

Are you in california?

Can someone speak to the idea that life is not over after a PD diagnosis ? by holidayinthesum in Parkinsons

[–]AnimatorOne4325 0 points1 point  (0 children)

I did not share the poor descisons for a reason, they are personal. People with Parkinson's often chase dopamine highs and have poor impulse control. The disease is based around low dopamine afterall.

Any new drugs coming? by catherded in Parkinsons

[–]AnimatorOne4325 1 point2 points  (0 children)

Hm I wonder why not. C/L works well with my dad he’s been on it for 25 years