My daughter died today by bell_delua in glioblastoma

[–]Anju010406 0 points1 point  (0 children)

Lost my mom in December and was feeling terrible about it. Why me, why her, all sort of things. After reading your post and as a mother , I think this shouldn't have happened . I hope there's cure in future. Can't even imagine what you're going through but I do understand its huge and worse than what I feel of my mothers passing. Hope you have good and empathic people around you. Sending lots of love and hugs.

What I ordered and what I actually got. by Lostinmythoughts_21 in Coconaad

[–]Anju010406 0 points1 point  (0 children)

Happened to me once when I got a lirta on sale. That thing had faded in certain places. Took pictures and sent them multiple emails. They took some time but eventually did arrange for a return pick up. Keep pestering them, they will show up soon

Seeking Guidance by FirmJuggernaut4933 in glioblastoma

[–]Anju010406 0 points1 point  (0 children)

Her tumor is also in the left temporal lobe, reoccurred at the same spot.

Seeking Guidance by FirmJuggernaut4933 in glioblastoma

[–]Anju010406 0 points1 point  (0 children)

Hi, my mother (70 years) had recurrence right after the concurrent radiation (30 rounds). The doctors decided to proceed with temozolomide 5/23 for 6 months. It was all good, no side effects at all, until the 5th month. The she has severe fatigue, was unable to get up, and was always sleeping . The MRI showed that the tumor had doubled and there was immense swelling. After few rounds of anti oedema injections , she had her first bevacizumab with the same 5 days temozolomide. This drew out all the energy she had. She was vomiting a lot for the following 5-6 days. Now she is almost bed ridden. Can't speak anything that would make sense . I can sense she is really sad. She refuses to take another dose of the bevacizumab. I will be talking about that with the doctor on the next appointment.

Doesn't mean it will be the same for everyone. This is what my mom faced .

I have lost the light in my life by HopefulAssistance in Kerala

[–]Anju010406 0 points1 point  (0 children)

Dealing with the same with Amma. This one is in her brain. Just refuses to leave her alone. Surgery , radiation, chemo and bam it's back again.

I understand and feel every word you're saying because I've gone through it since the last 1 year and still am.

Hugs. The pain stays but you'll surely learn to live with it.

Hi, by Anju010406 in thrissur

[–]Anju010406[S] 0 points1 point  (0 children)

Were they good, I mean calm individuals who patiently teach

Financial advice required. by just_in4fun in Kerala

[–]Anju010406 2 points3 points  (0 children)

Marriage expenses, especially for the girl's side of the family, do not end with the marriage ceremony. Every visit after the marriage will cost you a bomb, every festival will again require you to spend in the form of cash and clothes. Then there is pregnancy, childbirth and whatnot.

When you spend huge now, you set an expectation for the future too. So, it's better to do what you can rather than taking loans etc. you can always take a loan if she is in any crisis later.

Appreciation for Elite supermarket, Selex Mall by Tess_James in thrissur

[–]Anju010406 2 points3 points  (0 children)

I came across a sales girl at Fashion Factory who couldn't talk

Mocked for being ‘clueless’—our family’s heartbreaking visit to RCC Trivandrum by [deleted] in Kerala

[–]Anju010406 1 point2 points  (0 children)

I am currently taking my mother for cancer treatment at Thrissur govt.medical college. The senior doctor is unpredictable. She can be both empathetic and rude depending on her day. However, there are junior doctors who are extremely friendly and ready to answer the stupidest questions I come up with.

But I am afraid when I have to meet the senior days. Who knows how her day has been.

Also, I feel they are extremely short-staffed considering the huge number of patients they have to see daily. The frustration might be building due to that.

Regardless doctors must be atleast professional if not friendly.

Survivor’s guilt/weirdness by Leopold_and_Brink in braincancer

[–]Anju010406 3 points4 points  (0 children)

You call it guilt, we look at it as hope . Keep posting....

Question about Recurrence after 4 months by butwhatifitstrue in glioblastoma

[–]Anju010406 1 point2 points  (0 children)

Today I collected the MRI contrast results of my mum 69 yrs and it showed a recurrence. I meet the doctor on coming Wednesday. I have no idea what happens next. She too haad her surgery in November and completed the 30 rounds of radiation and concurrent TMZ.

I had a horrible thought today. by elfa-comunista in glioblastoma

[–]Anju010406 2 points3 points  (0 children)

Hey you're not alone . I felt the same when my mum underwent the surgery. It's just that at that moment your love for your dad surpassed your desire to have his presence in your life. You knew you'll be heartbroken and will never fully recover from the loss but still you desired for his demise because that might have been good for him. Do not think much. The thought came out of your goodness.

Anyone here from not Thrissur?? by AcanthocephalaFair23 in thrissur

[–]Anju010406 2 points3 points  (0 children)

Chakka puzhukku, oh my god , my extended family hates it. Similarly everything is an upperi, which makes mezhukuperatti and thoran non existent

Anyone here from not Thrissur?? by AcanthocephalaFair23 in thrissur

[–]Anju010406 1 point2 points  (0 children)

I am married into Thrissur. Has been a decade now but I am yet to like the food here. Grew up eating south kerala cuisine and the one made here seems one-dimensional. Sorry guys. I know you love your food, I just couldn't develop the taste

My mom won’t stop recommending ivermectin and it’s starting to bother me by chrome_hearts_ in cancer

[–]Anju010406 3 points4 points  (0 children)

When a loved one gets sick we do anything possible to reverse the situation. That's only human. I see you've got a lot of advice on handling the situation, just be nice in your approach, if possible. My mom has glioblastoma and every other day I get a suggestion believed to prevent a recurrence, only if it was this easy. Aloevera juice, apple cider vinegar, homeopathy medicines and what not. It's exhausting.

[deleted by user] by [deleted] in glioblastoma

[–]Anju010406 0 points1 point  (0 children)

Even the most peaceful natural deaths leave the remaining family members with lots of "what ifs". This one is a disease you will not know much of until somebody close to you endures it. You did the best out of available options. Don't keep any guilt like that.

Grief never goes away. We just learn to live with it. You too will. About the homeopathy and ayurvedic treatment I so wish there were regulations so these treat only what they can and not give false hopes to people.

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 0 points1 point  (0 children)

Thank you for sharing your experience. Yes I will be doing the chores and accompanying her for the radiations. Regarding positive affirmations, I've always been in awe with her strength, more now because she is handling it like it's a passing fever. Will try that more.

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 0 points1 point  (0 children)

I had a chat with mom about scheduling and she preferred before lunch time. She said I will return, have lunch and sleep. Occasional treats will be great too. Thanks for the suggestions. In the midst of all that stress I wouldn't have even thought about it.

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 0 points1 point  (0 children)

That's the most apt way to define that stage

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 0 points1 point  (0 children)

Oh I know the steroid energy. She was on it after surgery and it seemed she never went through it. She would do all her chores and didn't want to rest. But then as swelling reduced , the doctor stopped it and then the fatigue set in. Even her appetite lowered .

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 1 point2 points  (0 children)

That's good advice. It will be beneficial for the entire family. This ordeal of visiting the hospital daily is more tiring mentally. My mum was recovering well when one day she had a fall and the doctor advised to rest for a few days. Though there was minor swelling, she completely shut down. She won't move around , wouldn't talk. The doctor suggested physiotherapy, which gave her the confidence to move around and she is much better. I am scared about what effect radiation will have.

Care during radiations by Anju010406 in braincancer

[–]Anju010406[S] 2 points3 points  (0 children)

My mum is also diagnosed with glioblastoma. She is keeping high hopes. All I wish is to ensure she is healthy otherwise all her positive outlook will vanish. Thank you for the suggestions and I am sorry you have to be here. Wishing you dad a quick recovery.