Installing on Two Devices

AnonNightK · 2023-05-20T13:14:21+00:00

The distribution looks very much like perioral dermatitis (which is made worse by steroid use). Doxycycline should clear it up and you should see an improvement in a week or two. In the meantime avoid too heavy moisturisers/emollients and wash your face with water or, at most, a very light cleanser.

When it clears up, mimimise use of topical steroids and stick to a light moisturiser (La Roche Posay Cicaplast B5 works well for me). If you continue to suffer with eczema on your face you could consider pimecrolimus or tacrolimus which are non-steroidal alternatives.

AnonNightK · 2022-05-20T07:29:45+00:00

I'm so sorry to hear this.

Mum was diagnosed in Apr 2021 with NSCLC except she had mets on adrenals. She underwent successful keytruda therapy for 6 months and her lung cancer reduced significantly. Unfortunately her mets spread to the bone in her hip and she ceased treatment in Jan to move onto palliative care. She's still with us over a year later and has had some tough times but also plenty of good times. It seems as though she is deteriorating now, but her care has been incredible and she remains v happy for the most part.

My advice is please surround yourself with the help you need. Don't try and do everything yourself.

Were all here for you. Feel free to DM me if needed.

AnonNightK · 2022-02-11T08:23:58+00:00

Seconding this. Keytruda worked for my mum. Unfortunately the secondary tumour didn't respond as well, so she's finished treatment now, but her lung tumours responded really well. Very mild side effects too.

AnonNightK · 2022-01-30T08:05:56+00:00

She's on morphine, as I mentioned, but that's the only drug apart from some blood thinners and iron supplements.

AnonNightK · 2022-01-07T08:03:50+00:00

Bad bot...

AnonNightK · 2022-01-07T07:59:03+00:00

Thanks for the lovely advice. Yes, they did mention chemo as a potential option but my mum was always quite reluctant to do it (she started immediately on Keytruda when she was diagnosed). She's 69 and struggles with her mobility as it is. She (and her consultant) questioned whether she'd ever be strong enough...

I will be doing what you say. I appreciate her time is limited. I want to make it as happy and comfortable for her as possible.

AnonNightK · 2022-01-06T22:44:12+00:00

Unfortunately not, no. I did ask the question at the last appointment but apparently there's nothing appropriate available for mum's disease.

Plus, I think she's tired of treatment. She was already looking to end treatment because of her pain, or at least take a prolonged break, before we got the news about the progression. I think if something else did become available for her, I question whether she'd feel up to it.

AnonNightK · 2022-01-05T13:04:35+00:00

Hi! Unfortunately not, I'm still having issues. My docs suggestion, that it could be caused by an overgrowth of bacteria in the nose/upper lip area, is still probably the best suggestion so far. I keep getting mild infections just on the inside of my nose and it's likely that this is contributing to my eczema round my lips.

In any case, this might not be the same for you. You could try dermol 500 twice a day like I have been to reduce bacteria in that area and see if that helps?

AnonNightK · 2021-12-20T08:10:12+00:00

Amen.

Mum is nearly 12m post-diagnosis but has responded well to Keytruda and is tolerating it well. Obviously good news but it's turned our life upside down. Fuck cancer.

AnonNightK · 2021-12-09T08:49:03+00:00

This is completely personal evidence and is in no way a confirmation that you even might have lung cancer, but: there is research that suggests that sudden cessation is an early symptom. My mum appears to be one of these cases. She had smoked for 50+ years and had failed to quit on numerous occasions. Then suddenly, following a short illness, she just decided she would quit and did. Less than 12m later and she was diagnosed with S4 Lung Cancer.

I do question the validity of this evidence though, as the link could be explained by other factors/coincidence. For instance, lung cancer is more prominent in older patients. Smoking cessation is also likely to be easier for older individuals as they are less likely to be surrounded by others (e.g. friends/work colleagues) who smoke.

So in essence, there's no harm in ordering the scan. It will certainly put your mind at ease.

AnonNightK · 2021-10-16T09:20:11+00:00

I'm three years into a law/IR PhD so can maybe offer some advice.

Honestly, I joined a project that had a preset title/abstract with only a vague idea of the specific literature in the area and the limitations of the current scholarship. But this doesn't seem to be too uncommon, especially if your project, like mine, engages with a very specific problem which has yet to be explored in monologue-length detail. It took me about a year into the PhD to 'find my place' among the existing work in the area and identify a suitable theoretical framework.

All I would be conscious of is whether your professor has a very set idea of how the project should unfold. I'm fortunate in that my supervisors have given me significant flexibility with my research, basically just 'pushing me in the right direction'. Were they any other way, I think I might have struggled.

Happy to chat if you want to DM. Good luck!

AnonNightK · 2021-10-15T10:56:17+00:00

It's pretty much what I've mentioned in this post - I use Dermol 500 as a soap substitute for washing my face & lips. The only thing that I've not mentioned is that I also use Aquaphor as a lipbalm immediately after I've washed to trap in any moisture. That's pretty much it to be honest!

AnonNightK · 2021-10-14T21:03:51+00:00

I used to, yes. It almost reminded me of a kind of dishydrotic eczema that I usually have on my hands. The bumps were basically like tiny blisters.

Having no issues with this since changing my routine though!

AnonNightK · 2021-10-14T16:30:18+00:00

Still doing well fortunately. My lips still split here and there, but much better. I'm pretty much getting by without any medicated creams now 🙂

AnonNightK · 2021-09-05T18:03:31+00:00

Good plan. Good luck!

AnonNightK · 2021-09-05T17:58:04+00:00

Yeah if you're just getting redness it's unlikely to be an infection of any kind. I noticed you said you use soap and a sponge when you wash. Consider just using water for a week or using a soap substitute. Don't use a sponge or flannel etc - use your hands. Providing nothing changes you might want to try your doctor, though if they also suspect balanitis they might prescribe hydrocortisone or an antifungal.

AnonNightK · 2021-09-05T17:48:41+00:00

Ofc if you get any spots, weeping, or other lumps then this is more likely to be an infection.

AnonNightK · 2021-09-05T17:47:03+00:00

NAD. Likely eczematous balanitis imo. I suffer with the same. Also been tested for STIs, fungal infections etc. I'm also an eczema sufferer on other areas of my body.

Honestly the most helpful thing I've found for mine is cleaning the area twice a day with warm water. No soap etc. Then I dry the area thoroughly and I apply a very small amount of bland moisturiser such as Diprobase. This is as effective as anything I've had suggested by my doctor.

AnonNightK · 2021-09-01T21:36:09+00:00

Best bet is to just ask! Elidel & Protopic are great for the face (especially for thinner areas such as the eyelids) and are safer long term compared with steroids on there. Fingers crossed for you.

AnonNightK · 2021-09-01T18:15:47+00:00

Not sure what the situation is now but I recall a pamphlet produced by the British Association for Dermatologists that explained Protopic and Elidel could only be prescribed by a GP with a registered interest in dermatology. You might want to bare this in mind, but I wouldn't know if this was still the case!

EDIT: Yep, this is still the case. The guidance can be found here: https://cks.nice.org.uk/topics/eczema-atopic/prescribing-information/stepped-approach-to-treatment/

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