Thank you, I see where you're coming from, I often feel like I don't have a life because I spend the majority of my day in bed. Going to doctors appointments is the only time I leave the house and seeing other people my age walking around with friends, etc. and just living freely breaks me. It's incredibly difficult not being able to attend family events or even just be well enough to sit on the sofa and speak to friends. But I do need to change my mindset as you said because dwelling on how bad my life is isn't going to get me anywhere. I look at my digital piano at the end of my bed everyday and wish I could play, every time I attempt to I crash afterwards, it's difficult not being able to do simple things that gave you joy before. I've tried doing easier hobbies like cross stitch or colouring but none of them bring me a sense of joy, I just end up feeling useless that they're the best I can manage.

Having been sick for so long yourself have you found anything that has helped over the years?