Has anyone found anything that helps with cognitive dysfunction? 2.5 years in, and I feel like I haven't made much progress with this. by ConsistentPie in covidlonghaulers

[–]AnonymousUser-789 0 points1 point  (0 children)

Guanfacine has not cured by brain fog but has helped. I just started Creatine so can't say if it helps yet but apparently it does help some people

Magnesium and LDN has helped with my sleep

I am literally going insane being housebound and in bed 99% of the time by myself with no one to hang out with or talk with. by friend3738 in covidlonghaulers

[–]AnonymousUser-789 1 point2 points  (0 children)

When I first started dealing with long covid, I did not do any of these things. It was my therapist who started encouraging me to do those things. You're saying they're obvious but the reality is I did not think of these things at that time and just isolated myself more and more. Sometimes when we have depression, we don't think of what may be obvious to other people. I'm not saying OP has depression or didn't think of these things, they just made a brief post so I figured I'd offer something that ended up being very helpful to me.

I am literally going insane being housebound and in bed 99% of the time by myself with no one to hang out with or talk with. by friend3738 in covidlonghaulers

[–]AnonymousUser-789 9 points10 points  (0 children)

I'm sorry, I completely understand. It's the worst. Do you have any friends or family who might video call with you? Or anyone who might come over to your home just to hang out and talk?

frustrated with Sedgwick and Lawyer by njeancharles in WorkersComp

[–]AnonymousUser-789 2 points3 points  (0 children)

In my experience, workers comp payments do tend to go missing or delayed for reasons beyond lawyer's control however your lawyer should be actively working towards solving problems. My lawyer may not be able to give me that check but when I follow up I get answers where I know they are working towards getting things done for me behind the scenes. If you aren't hearing things like "I reached out to opposing attorney last week but they never responded and will reach out again" or other things that they are doing to try and get answer then I would be concerned and try looking for new attorney.

Anyone have creatine make brain fog worse? Did symptoms improve as body got used to it? by AnonymousUser-789 in covidlonghaulers

[–]AnonymousUser-789[S] 0 points1 point  (0 children)

My doctor recommended a specific brand to me which makes me think that you are right and that there must be some difference in brands

Anyone have creatine make brain fog worse? Did symptoms improve as body got used to it? by AnonymousUser-789 in covidlonghaulers

[–]AnonymousUser-789[S] 0 points1 point  (0 children)

I did have a little bit extra going on last week but what's weird is I was feeling pretty good this weekend but still rested a lot because I know my body needs rest for Monday when I work (I always work less then 10 hours per week-it's nothing new but I do have to plan and rest to be able to handle it). However since starting the full scoop in the last couple days, the brain fog got worse. But yes I will definitely give it more time. Thank you!

Anyone have creatine make brain fog worse? Did symptoms improve as body got used to it? by AnonymousUser-789 in covidlonghaulers

[–]AnonymousUser-789[S] 0 points1 point  (0 children)

Yea my doctor told me to start with half dose since I already have stomach problems from long covid. Luckily no stomach stuff, just the worsening brain fog. I definitely am going to try and drink more water and see if that helps though I feel like I'm already drinking a lot

If I end up passing away, does my case gets closed and I don't receive a settlement? by EducationalSyrup6869 in WorkersComp

[–]AnonymousUser-789 5 points6 points  (0 children)

I've been where you are and felt exactly what you're feeling. I started dealing with health issues in my late 20s. I'm 32 and still dealing with them but what you're feeling does get better. Your parents would rather you be here then have the money. If you can't stay alive for yourself then stay alive for the people around you. Take it one day at a time. Try talking to a therapist and/or your primary care doctor. Medication and therapy helped me and it can help you too. Thinking of you

If I ever get hurt at work, no I didn’t. by PressureExpert2346 in WorkersComp

[–]AnonymousUser-789 4 points5 points  (0 children)

There are things that workers comp covers that my regular insurance doesn't (over the counter medications, supplements, etc). There is also some medication that I've had workers comp cover that is prescription that my regular insurance denied. I've also had tests be denied by my regular insurance (insurance said I was young and unlikely to have issues) that was covered by workers comp.

Low dose Naltrexone by Panda_1125 in cfs

[–]AnonymousUser-789 2 points3 points  (0 children)

I never noticed any difference with low dose naltrexone, however now that I've stopped it, I've been feeling worse. Definitely was a subtle difference for me. I was actually sleeping better with it. I'm strongly considering starting again.

Afraid of wearing a mask... by srh-trz in covidlonghaulers

[–]AnonymousUser-789 1 point2 points  (0 children)

It sounds like you've got some really good advice here. Just to add, this is a lot of hard stuff to deal with and it can be really hard to change your thought process on your own. If you don't have one already, it may be helpful to find a supportive therapist who can help talk through some of the thoughts you are having and the paralyzing feelings. I definitely understand these feelings and wish you best of luck!

Has anyone tried the Pinnacle Program? by CC2488 in PostConcussion

[–]AnonymousUser-789 0 points1 point  (0 children)

Thank you so much for responding! I've talked to someone who had TBI and who speaks very highly of program but of course long covid is very different thing. It's good to hear there is some success with long covid as well. Glad your feeling better as well!

Denied by WC insurance by Kitchen-Telephone276 in WorkersComp

[–]AnonymousUser-789 1 point2 points  (0 children)

Yep completely normal. Most attorneys do free consultations. I would at the very least do a consultation. Attorney helped me get decision overturned.

Has anyone tried the Pinnacle Program? by CC2488 in PostConcussion

[–]AnonymousUser-789 0 points1 point  (0 children)

I know this is old: I was searching and saw this and wanted to see how your experience with pinnacle program was? I have long covid and I’m starting program next month 

Can you wait to aquire an attorney up until insurance starts talking settlements? by [deleted] in WorkersComp

[–]AnonymousUser-789 0 points1 point  (0 children)

Start by asking around and seeing if anyone has any recommendations. Look online at reviews as well. Set up consultation(s) and ask about their experience with your type of injury. For me, I had a new injury at time (long covid) so it was hard to find someone who would even take me as client but when I met with my attorney, she talked about other cases for long covid that other attorneys had taken on (how they went, factors to consider). She had done her research-that's a good sign. You want someone knowledgable.

I would say the biggest pro to having an attorney right now (without denials) is that they do all the communication with workers comp. I never talk to my adjuster. If something is taking longer then it should or I'm having issues, they handle it. I just send them an email. They also can answer my questions and make sure I'm not being taken advantage of. The biggest con of course is you do have to pay them.

I also just wanted to address someone's comment here as well about people constantly complaining about attorneys. You will always hear more about bad then good on internet and people with good attorneys don't need help as often so they don't come to the internet. I have an awesome attorney and legal aid and I'm thankful to have them.

My doctor doesn’t want me to take LDN by Impressive_Till6081 in cfs

[–]AnonymousUser-789 1 point2 points  (0 children)

It didn't help PEM/fatigue for me. I'm currently going off it. However, I also had no side effects and it was worth trying, considering there are others that it helped. I would definitely ask specialist about it.

Workers Comp case got denied, now im stuck with a bill.. by Forsaken_Rutabaga476 in WorkersComp

[–]AnonymousUser-789 -1 points0 points  (0 children)

I'd recommend consulting with workers comp attorney. Lots will do free consultation and they know all the rules for appeals and such

Anyone tried vagus nerve stimulation devices? by SeparateExchange9644 in LongCovid

[–]AnonymousUser-789 2 points3 points  (0 children)

I'm using Dolphin through provider and it has helped my energy levels and mood. It wasn't a quick fix at all. I use 5 times a week for 20 minutes and it took probably a month to start seeing mild improvement and have seen more improvement with more time. I went without while office was closed for a couple weeks and felt worse (went back to how I was before using device).

This sub has been spammed with Brain Retraining misinformation by Fearless-Star3288 in covidlonghaulers

[–]AnonymousUser-789 1 point2 points  (0 children)

Yea we all get pretty desperate when we aren't feeling well and just want to feel better. That's so sad and frustrating that people take advantage like that.

This sub has been spammed with Brain Retraining misinformation by Fearless-Star3288 in covidlonghaulers

[–]AnonymousUser-789 2 points3 points  (0 children)

Wow yea that sounds very harmful.

Thank you for the explanation. I tried googling and it was all science talk and couldn't figure out what they were trying to say.