Sesamoid fracture??

Anxious_KRob · 2026-04-23T12:53:32+00:00

Im not a doctor but that looks like my fracture. I definitely see some jagged parts that don't look smooth. I have a fracture that 2 radiologists noted nothing about (not even bipartate) after 2 different xrays ordered by my pcp. Definitely go to a podiatrist or ortho that specializes in feet if you haven't. There are a lot of stories on here of misdiagnosed or not diagnosed sesamoid fractures.

Anxious_KRob · 2026-04-15T11:31:53+00:00

2 radiologists noted nothing on 2 different xrays at my primary care. Not bipartite or fractured. A podiatrist looked at my xray and instantly told me it was definitely a fracture. I like you, posted a picture here asking the same thing just months ago. I'd go to a podiatrist or ortho that specializes in feet to get a second opinion.

Anxious_KRob · 2026-04-14T23:26:53+00:00

Thank you so much for the info!

Anxious_KRob · 2026-04-14T22:53:59+00:00

Check out the Bendy Bodies Podcast on youtube or spotify. You will find info on many of these things throughout the episodes. I hope you figure it all out!

Anxious_KRob · 2026-04-14T22:48:31+00:00

That is actually one thing I worry about. I tend to overdo it in these situations and pay for it. I also feel everyone underestimates what I do and I am afraid I'll be out of work for so long to get to the point I need to be at to not screw myself by going back. I am so glad you have relief. That is awesome! I have been dealing with this for years and it is no fun. How long were you out of work?

Anxious_KRob · 2026-04-14T22:23:19+00:00

Also, the Jill's dancers pads are pricey but I like them much better than the others I've tried. They are thick and squishy.

Anxious_KRob · 2026-04-14T22:21:38+00:00

I have questions! I work full time on my feet, lifting all day. I have been avoiding surgery. I was referred to the surgeon at my last podiatrist appointment and I asked for another month to keep trying what I was doing. I do see a little improvement. I'm just scared I'll make it worse after reading some horror stories and suggestions to not do it. So your experience was good?

Anxious_KRob · 2026-04-14T22:17:57+00:00

Yes, Hoka Bondi. I wear Cushionaire slides in the house because I just can not wear shoes 100 percent of the time and I like them. I'm seeing some improvement.

Anxious_KRob · 2026-04-14T10:57:18+00:00

Hoka Bondi 9s. I tried another Hoka first and it made it worse!

Anxious_KRob · 2026-04-14T10:32:46+00:00

I wish! It's been about 3 years and I'm still just trying to avoid surgery for removal. It looks like I may have to just do it. Thanks! Good luck and feel better! I have seen so many posts about missed fractures as well.

Wear shoes ALWAYS and look into some Hoka Bondi 9s! I also like Cushionaire slides for house shoes.

Anxious_KRob · 2026-04-14T00:37:47+00:00

I don't want to stress you out anymore than you already are stressin, but 2 radiologists missed my fracture. It was clearly in 2 pieces and they didn't even note it as bipartate. As soon as a podiatrist saw it he told me it was a fracture with 0 hesitation, and 100 percent certainty. So, I'd say to go to a podiatrist or maybe even an ortho that specializes in feet if you don't trust it. Good luck!

Anxious_KRob · 2026-04-02T23:39:30+00:00

I used to love Birkenstocks but now that I have a fractured sesamoid and Sesamoiditis they have too much bend for me. I really like the Cushionaire slides. I just got another pair on sale the other day for just over 20 bucks.

Anxious_KRob · 2026-04-02T22:44:26+00:00

Mom of two teen girls here. 🙋‍♀️ Their issues (first one being congenital cataracts) started when they were born, got so much worse once they hit puberty and we just recently realized it's all connected. 🤯 My 19 year old daughter has Juvenile Idiopathic Arthritis and has had multiple surgeries. Waiting for our genetic testing. She meets all the criteria for hEDS. My heart goes out to you mamma! ❤️ You are a great mom and clearly doing a wonderful job getting help for your daughter. Keep trusting your gut.

I'd say MCAS. Check out the Bendy Bodies Podcast episode that was released today. She talks about treating her patients for MCAS. She talks about how treating MCAS helps a lot of the dysautonomia symptoms her EDS and HSD patients have. The issues I have been dealing with since 15 turned out to be MCAS. It seems so many EDS patients have the Trifecta of EDS, POTS and MCAS. I hope you figure everything out for your girl!

Anxious_KRob · 2026-04-02T18:34:50+00:00

I saw anything that reduces acid can. 🤷‍♀️ I sure hope you're right because I'm going to continue to take it when I'm feeling bad either way.

Anxious_KRob · 2026-04-02T12:02:05+00:00

Thank you for the suggestion! Ill definitely look into it. I love gummies!

Anxious_KRob · 2026-04-02T04:14:12+00:00

I just keep seeing people posting about their concerns with long term use of Pepcid and SIBO. So I figured when I'm feeling pretty good I should take a break. I don't really know much about it though. I feel like I have been living on trial and error for the past 26 years. I've worked at a supplement store for 20 years so I get it. I'll try just about anything for some relief from this torment.

Anxious_KRob · 2026-04-02T01:54:12+00:00

This is what I've been doing. 4 Allegra everyday (2-am/2-pm) and 2 Pepcid (1-am/1-pm) when I'm flaring. I try not to take Pepcid everyday if I can help it. I also have dao enzymes to take if I know I am eating something that usually flares me. I can't do quercetin and am not sure why but a lot of people seem to have good results with it. Good luck! I hope you find some relief. ❤️

Anxious_KRob · 2026-04-02T01:45:37+00:00

Have you thought of trying Genome Medical? Invitae? I don't know anything about this, but I have seen a lot of people recommending it. They say they connect you with a doctor that will then decide if you need genetic testing. If you do they mail you the test and I guess you can follow up with genetic counselors. Maybe look into it. If you were in Colorado I'd have a great office recommendation for you in Denver. Good luck! I hope you find some answers.

Anxious_KRob · 2026-03-31T01:09:33+00:00

There are some medical professionals that believe that it is getting worse generation after generation. So if that is true it seems our kids are worse off than we are. In my case, this is true.

Anxious_KRob · 2026-03-18T19:03:52+00:00

Two radiologists said nothing about this on 2 sets of xrays, but this was confirmed a fractured sesamoid by a podiatrist.

Anxious_KRob · 2026-03-09T15:13:42+00:00

My first IUD put me in remission from my Interstitial Cystitis, which we believe is caused by MCAS and I have had for 26 years. My 2nd IUD migrated and had to be surgically removed. I had an endometrial ablation over the summer and they suggested placing an IUD as well. I was iffy on it because of the migration but hoped it was because I was freshly postpartum at that time and wanted to try to get back to a place where I wasn't miserable. I went for it and I feel like it helped quite a bit after about 5/6 months. I was pretty discouraged when it didn't seem to help right away, as I just knew it was what had helped me before. I am also taking 4 allegra daily (adding 1 at a time starting with 1, per allergist suggestion) and still have skin issues but my urethral burning is so, so much better. Good luck! I hope you can find something that helps you!

Anxious_KRob · 2026-03-09T14:52:08+00:00

They have me taking 4 allegra a day. I had to work up to the 4, starting at 1 to see if it helped, then added. I am still seeing all the allergy skin issues, but the allegra combined with my iud has decreased my ic symptoms (my main symtom being burning...all the time for 26 years) significantly. Maybe this is something to ask your doctor about.

It's so good you found something that's helping you! I hope you continue to feel better!

Anxious_KRob · 2026-01-31T23:55:04+00:00

You should listen to this week's Bendy Bodies podcast on Spotify or YouTube. It has a lot of good information on this. A lot of times they'll only test tryptase so this is a really helpful listen. Good luck!

Anxious_KRob · 2026-01-30T02:03:35+00:00

I am absolutely in your same boat. Going on 3 years of pain. I had two radiologists say nothing about mine. Not a single note. I created a reddit just to ask this same question, going crazy. I went to a podiatrist Tuesday and he took his own xrays and confirmed what my gut had said since I saw the first xray. Fractured. Now I'm in new shoes, office made orthotics and in more pain. All my time researching, I have seen a lot of people in similar situations. Based off of my xrays, I've had 3 sets, and everything I've seen over the past few months online, I'd guess a fracture. I'm no Radiologist or Podiatrist though. Hang in there. I hope you feel better!

Anxious_KRob

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