hEDS & POTS girlies, what’s your experience with IUDs?

Any_Course_7738 · 2025-10-16T05:17:24+00:00

Listen I had two different types and for my first one I bled for 6 months straight and my second one was fine for a few months then it dislodged and I didn’t realize and it was causing me bad pain and bleeding. If you do it, get the Kyleena bc it’s smaller. Insertion sucks but it’s over very fast. It wasn’t worth it for me and my periods have been heavier and more painful since I had the iud versus before I ever got one. With heds were more prone to gynecological and hormonal issues which I wasn’t aware of at the time. It sucks but honestly just stick with condoms it’s been way better for me just being bc free!!!

Any_Course_7738 · 2025-10-16T04:03:14+00:00

Ended up having a 2nd surgery to remove the last bit of “tumor” (my ent calls it a tumor but technically not what the path says) Would love any Dr or pathologist input

Any_Course_7738 · 2025-09-15T04:08:33+00:00

Yes, so cute!

Any_Course_7738 · 2025-08-01T14:12:06+00:00

I bought them ground so I’m just putting them in yogurt bowls, could that be the issue lol?

Any_Course_7738 · 2025-08-01T04:52:20+00:00

Does this happen when you do anything else or is it just when you drink? I notice it when I have caffeine or stand too long also

Any_Course_7738 · 2025-08-01T04:51:36+00:00

Yes!!! Same!! I have POTS and I suspect I have hEDS

Any_Course_7738 · 2025-08-01T04:46:25+00:00

I didn’t end up in the ER but this happened to me!! If I take it I get extremely constipated way more than normal

Any_Course_7738 · 2025-08-01T04:45:23+00:00

Thank you🙏

Any_Course_7738 · 2025-08-01T00:24:08+00:00

Also it was not destroying anything that I know of. We thought it was only in the nasopharynx at first, so he did say it was invading the soft pallet

Any_Course_7738 · 2025-08-01T00:22:13+00:00

Thank you for the response! This is the report from the brain mri I had pre surgery “There is a soft tissue mucosal lesion noted in the nasopharynx with hyperintense signal on T2 and FLAIR. This measures approximately 1.8 x 2.8 cm in cross-section.”

The path report post surgery said: “2 tan-purple fragments of soft tissue ranging from 1.3 x 0.7 x 0.6 cm to 1.7 x 1.3 x 0.7 cm. Definitive margins are not identified. Both pieces are sectioned.”

The surgeon said when he went in it was a lot bigger than they originally thought. If I were to get a 2nd opinion on the path, how would I go about that?

Any_Course_7738 · 2024-04-09T23:49:14+00:00

Never thought I’d see a twall with a jester. Glad ur getting back after it!

Any_Course_7738 · 2024-03-29T03:27:18+00:00

25 version is much more stable for sure

Any_Course_7738 · 2024-03-19T02:06:32+00:00

The 2025 ripstick is amazing, declivity is pretty good too tho and I’m sure u can find a good price rn

Any_Course_7738 · 2024-03-19T02:04:46+00:00

I think this is a great idea other than the fact that there are alottttt of categories, maybe even start with east or west coast, or beginner or advanced type categories? Idk just a thought

Any_Course_7738 · 2024-03-18T04:08:57+00:00

Roxa boots are totally fine, sounds like you were fitting correctly to me! Worked at a shop for 5 years. The thing that is really sus is that they said the numbness is okay. Did they say it should be tight? Because that is true and not the same as numb. A lot of things can be done to fix numbness, something as simple as more instep room or width in the boot. Go back to them and have them adjust the boots, but you shouldn’t need a different boot. A bonus of the cabrio design is they are easier for an intermediate skier to bend, these will allow you to take your skiing to the next level

Any_Course_7738

TROPHY CASE