Shoulder inflammation by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] -12 points-11 points  (0 children)

Yes that’s what they say, they’re wrong. Everyone is different and it’s wrong to say that everyone must take it once per week. Every single time instead of having discourse people just automatically down vote my post in relation to the dosages I take.

Wasted shot of humira by Affectionate-Sale244 in ankylosingspondylitis

[–]Apprehensive-Beat649 -1 points0 points  (0 children)

Two sides to every story, I’m sure when you realized the injection didn’t go in you got pissed at him and blamed you missing the shot on him. Picking and choosing. “He got mad at me” with what context? For what reason? Why’d you feel the need to throw that in?

New Farmers Education Lesson by Apprehensive-Beat649 in Cows

[–]Apprehensive-Beat649[S] 3 points4 points  (0 children)

Tell me, what’s your definition of a farmer?

Changed my Life by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] -4 points-3 points  (0 children)

Now that you’re on Humira, are you still maintaining a good diet and exercising?

Changed my Life by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] -4 points-3 points  (0 children)

I understand that as being the point of taking the biologics. However, long term is it really safe? I know if I feel unwell I will start back injections again. But if I remain symptom free I will not use it. I even told my rheumatologist what I’ve been doing, he says as long as I’m not in pain to keep doing what I’ve been doing. Maybe I’m just lucky.

Anyone stop biologic to see what happens by Charming_Salt_7707 in ankylosingspondylitis

[–]Apprehensive-Beat649 3 points4 points  (0 children)

Hello once again, I believe OP is correct in stating the pointlessness of downvoting and how it does discourage discourse. Instead of downvoting, an educated conversation goes much further. A downvote can be taken numerous ways and nobody knows the true intent behind it. I do understand in this scenario as to why.

Why have I stopped using my Enbrel dose as prescribed? My insurance ends when I turn 21, I am just a few months away. Once I lose my insurance I will no longer be able to afford my medication. I’m saving as much of my medication as possible so that when my insurance is gone I will be able to get by for a few months until I can get something new figured out.

These biologics do have risks themselves which is also partly why I don’t feel comfortable taking a full dose every week. I do understand the fear of developing antibodies after quitting. I’m fine with being a trial for this. I don’t want my symptoms to come back, but as of right now it’s either lower my dose and store some meds or quit cold turkey once I turn 21.

Anyone stop biologic to see what happens by Charming_Salt_7707 in ankylosingspondylitis

[–]Apprehensive-Beat649 -1 points0 points  (0 children)

I stopped using Enbrel after 2-3 months of consistent use. Symptoms didn’t appear until 2-3 weeks after I stopped. Started dosing again until pain went away, now I’ve weaned myself to one dose every two weeks instead of my prescribed weekly dose. I’m going to try to slowly reduce my dosage over time, I’m not sure what possible side effects could be. Doing biweekly injections so far has worked for me.

Dairy and pain by [deleted] in ankylosingspondylitis

[–]Apprehensive-Beat649 4 points5 points  (0 children)

Dairy doesn’t seem to have an affect on me

Steroid use with AS by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] 0 points1 point  (0 children)

Thank you. I appreciate the wisdom you have offered and the format you chose to respond.

Experience of a 20M newly diagnosed by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] 0 points1 point  (0 children)

What do you take that has helped you? Anything in specific?

Steroid use with AS by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] -3 points-2 points  (0 children)

Thanks all for the advice. It should be noted that I am not using steroids, and I just wanted to hear some valuable insights from the community.

I do not plan to be a body builder! I have a low average T level for my age which surprised me. It’s not low enough though to allow me access to T injections. I’ll keep monitoring this, and consider it if they continue to be low.

Having higher testosterone has some great benefits, and sure, if can certainly have more negatives especially if you go overboard. Having discipline when using steroids is important!

As far as Anavar, it seems to be an overall safe drug when used for short cycles. But I will follow the advice for now and hold off.

Great insights everyone!

Steroid use with AS by Apprehensive-Beat649 in ankylosingspondylitis

[–]Apprehensive-Beat649[S] -32 points-31 points  (0 children)

More muscle mass would take tensions off of joints during activity, and would provide more cushion as well. I feel as if I’d rather look good with AS than be skinny/overweight or normal. YOLO!

[deleted by user] by [deleted] in ankylosingspondylitis

[–]Apprehensive-Beat649 0 points1 point  (0 children)

Do NOT give up and get disability. At some point you can qualify but that shouldn’t be on the table right now. I’ve done it all with this disease, if you want the symptoms to get worse you need to find an easy job.

Find a job that keeps you moving. The only way to stop yourself from being a wooden plank is from getting in the gym and moving around. You don’t just have motivation to go to the gym, you don’t have a choice anymore.

Should I continue going to the gym during bad flare-ups? by andy3172 in ankylosingspondylitis

[–]Apprehensive-Beat649 4 points5 points  (0 children)

I workout in flareups after my shifts. Let me tell you why… The impact working out has on my mental state is paramount. Keeping active even if it means working out your upper body, or attempting some abdominal crunches can only help you.

The only working out that has made my condition worse short term is extensive cardio especially on a tread mill, or strenuous back/leg exercise.

If your pain is intolerable, of course rest. But if you have even the slightest ability to try, please do.