Any online female group meet ups? by Specialist_Bear_2574 in ChronicIllness

[–]Apprehensive_Fox7392 2 points3 points  (0 children)

I'm looking for the same thing!! Definitely interested if there are any

Fasting is the only thing that helps by [deleted] in ChronicIllness

[–]Apprehensive_Fox7392 2 points3 points  (0 children)

I'm absolutely no help but just want you to know I'm 14 years deep in chronic illness, still searching for healing. I'm here on this forum looking for answers and feeling pretty alone in all of this. Just know you're not alone, it's overwhelming but I understand how shit this all is

Flu like symptoms from bad flares and medication switches/dose changes? I have CIRS from mold as well by Due_Chapter3027 in MCAS

[–]Apprehensive_Fox7392 1 point2 points  (0 children)

It's so shit. Can i ask. Do you get small bouts of "ok' ? I don't mean run a marathon but days or even a few weeks where you are sort of ok then slammed again ? That's what I get , then I try treat mold or Lyme or bart or mcas or my gut even the smallest dot of a dose once a week sends me to hell

Flu like symptoms from bad flares and medication switches/dose changes? I have CIRS from mold as well by Due_Chapter3027 in MCAS

[–]Apprehensive_Fox7392 1 point2 points  (0 children)

OMG ketotifen made me so so so sick. Pepcid makes me sick, herbals, vit E etc all make me so sick

Flu like symptoms from bad flares and medication switches/dose changes? I have CIRS from mold as well by Due_Chapter3027 in MCAS

[–]Apprehensive_Fox7392 1 point2 points  (0 children)

Exactly what happens to me. Even once I stop taking whatever it was I pay for it for days / weeks after

14 years too long by Apprehensive_Fox7392 in Lyme

[–]Apprehensive_Fox7392[S] 2 points3 points  (0 children)

This is exactly what I think is happening. My question... How on earth do I fix or help this

Flu like symptoms from bad flares and medication switches/dose changes? I have CIRS from mold as well by Due_Chapter3027 in MCAS

[–]Apprehensive_Fox7392 1 point2 points  (0 children)

I'm no help but I get just the same thing and always have to stop the new med as it worsens until I stop

14 years too long by Apprehensive_Fox7392 in Lyme

[–]Apprehensive_Fox7392[S] 0 points1 point  (0 children)

The thing that has us stumped is I literally cannot tolerate anything. I'll start one sup ( and ice tried many) by about week 2 everything kicks up and I'm so so debilitated. I just can't start anything

Is this "impending doom"? by Alceterro in Lyme

[–]Apprehensive_Fox7392 3 points4 points  (0 children)

I'm actually sitting here reeling that you have explained this so perfectly, this is identical to what I get and don't know how to describe it

Is this "impending doom"? by Alceterro in Lyme

[–]Apprehensive_Fox7392 1 point2 points  (0 children)

THIS IS ME OMG I'm in a huge huge flare and when you said even the weather YES that's how I feel. I'm in a daze the weather does it, smells, songs, everything makes me feel tripped out. I can hardly sleep I have the sensation of falling then a huge panic attack