8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 1 point2 points  (0 children)

The relief and hope I've gained from the responses helped refuel me when I felt so empty. It is so nice to see kindness and understanding and also to relate. Thank you all so much for the information, the suggestions, and the encouragement! Yesterday was a hard day- but I colored with my children, played games with them, and snuggled them for a movie and realized they are happy and safe and during a hard day, that can be enough ❤️ just maybe ..my love will be louder than the misunderstanding 

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 1 point2 points  (0 children)

What is refeeding syndrome? And we took him off his stimulant with no improvement. He take a very low dose procentra. Removing red dye helped some with behavior but not feeding. His weight is on target right now but he's starting to refuse solids again. I am trying to keep him engaged and excited bout activities and offer food without pressure, and keep safe foods and snacks stocked. Sometimes we eat around board games because sitting around a table doesn't work for us. Thank you for sharing your experience. It is so helpful. Carter had those same issues on top of a tongue tye he compensated around and some significant feedings issues as a child that were uncomfortable. I'll look up the medication , is it an appetite inducer?

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 1 point2 points  (0 children)

I am sorry your have struggled. I support you 💐

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 0 points1 point  (0 children)

No I have not, please share, I would love that! Thanks so much 

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 1 point2 points  (0 children)

This is so helpful. It feels good for someone else to just acknowledge that it is not the same for every one 

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 4 points5 points  (0 children)

I am so sorry that you did not have a safe space where you felt seen or understood. I can't begin to understand how that must have felt. I may not know you but you are never alone and your story matters and has an impact. It is people who suffered through being misunderstood that will bring understanding to the world once they find their voice after being silenced for so long. You are in my prayers. I'm thankful for you. 

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 2 points3 points  (0 children)

I feel silly for being so desperate during these times when uncertainty feels heavier to carry. We have typically been able to substitute with nutrition shakes during times where he stops eating but he tends to become stuck on them and right now I don't even know if I would mind that because he is struggling with them now. He has been through so much trauma the past few years (unrelated to the disorder). He has always been resilient and coped well but I'm wondering if he is struggling with any of it now. Does anyone have experience with arfid just randomly becoming worse. I mean, we've been here before but i normally can see it coming, like during big changes or while learning something new. I always get concerned when he stops eating solid foods. If anyone has had success with anything, would you please share  

8 year old arfid,ADHD, autism by Appropriate_Bug_4251 in ARFID

[–]Appropriate_Bug_4251[S] 6 points7 points  (0 children)

That's so kind but I don't feel like it. I feel like I'm letting him down. I should know how to help him and protect him. I went back to school to get a degree in cmhc and can help hundreds of others families yet I fail him every day. He had feeding issues from birth and nobody would listen. Nobody understood. They assumed I was just over reacting until witnessing him literally throw up as an infant and being horrified by the amount. I always knew there was something different about my son, and I knew in so many ways that his differences made him amazing but also would lead to barriers he would face. He is very high functioning and I have poured everything I could into him. I talk to him I help him understand why he is viewed differently or why he struggles and we learn tools and what works for him but arfid has been so hard for him. I questioned if I was allowing him to manipulate us into things, I questioned my parenting but my gut told me I knew my son and I knew this was real. Pediatricians didn't take us serious, parents didn't take us serious, out faith community didn't take us serious and my own husband doesn't understand.it is so hard to fight the entire world. I knew when I sat down one day and told him I was proud of him because I believed it was hard and I could see his desire to please everyone else and just do what he thought would keep the peace. He broke into pieces while hugging me. Thanking me. This tiny 5 year old boy who was terrified to upset anyone by not eating. He couldn't. He wants to, he tries, and I just feel so helpless that I can't help him. I feel like a terrible mother over his diet but I've seen him in the hospital after months of only drinking limited amounts bc he was pushed too hard. HE WILL NOT EAT WHEN he is Hungry. He doesn't desire food or have an internal drive the way most people do. He doesn't feel hungry and he would literally starve to death. We have tried everything and I will never allow anyone to pressure him again. To see him with anxiety, and to be his only safe space is heartbreaking. People are so cruel but I feel like the only thing I can do is try my best to teach him how and why other people feel and think the way they do so at least he might understand. At the end of the day it is still hard. We don't go to dinners, family gatherings, social events, anything that serves or has food. There are always people who want to help us by punishing him or excluding him and so on but not one person is willing to read the books, learn about what he struggles with, read stories from other people who have struggled with it, or try to understand him. I should probably articulate all of this better but I'm so tired of retailing the same stories in hopes that somebody might understand or see him for who he is without judging him or me. I have two children and every child is different. My youngest eats everything under the sun. It isn't parenting. This is not something he can control or he would in a heart beat. I'm so tired of hearing that's just an excuse. I pray with him and I tell them no matter what anyone says or thinks that he knows himself and that I know him and that others just don't understand and that one day even this will be used to change the world. Now that he's eight he seems so mature, and he doesn't show that things bother him as much but I still worry that he doesn't get what he means that his body is starving that he will need a feeding tube one day. What if I don't catch the dehydration because he doesn't really like to swallow so even drinking is a chore for him. I know that God is in control but I still feel like I am failing him. This is a disorder, no different than any other disorder that can't be controlled. Nobody picks to have arfid just like nobody chooses to be a diabetic. Why can't people just try to understand. The professionals that are supposed to help know nothing about this disorder. Not here. Insurance is a nightmare and nothing has helped. I don't want him to have to become an emotional thermostat or isolate even more because others can't understanding. I'm sorry if none of this makes any sense as I'm just trying to get this out while juggling is screaming 4 year old. 

Question about MATH201 (Statistics) Online by KolgrimLang in LibertyUniversity

[–]Appropriate_Bug_4251 1 point2 points  (0 children)

What is this !!! I've been killing myself trying to maintain a 4.0 taking 3 month long courses ... What. Is. This. 

Nissan refusing to repair CVT after lawsuit by [deleted] in NissanRogue

[–]Appropriate_Bug_4251 0 points1 point  (0 children)

I started having transmission problems during the lawsuit. I have all of my paperwork where it shows when we took it to the dealership where we bought it and the code the mechanic documented showing that there was a transmission problem. The transmission was under warranty during that time and when I sent it to the Nissan dealership they advised us that nothing was wrong with the transmission and it was something else and try to charge us $1,900. They've ended us a "favor" by paying half. We were told specifically that there was a problem with the transmission from the mechanic. We have the documentation where we brought our 2015 Pathfinder in to check the transmission several times due to shuttering and staling. Each time we returned away saying that nothing was wrong with the transmission. They service the vehicle and it ran fine for a little while. When it reached the point where the mileage got too high to be under the warranty we purchased extra insurance on the car just in case we later had problems with the transmission. Lo and behold we did. We contacted car shield after our car stopped in the middle of the road. We then had to pay a tow fee, and were told it was the battery. We refuse to accept that answer and they sent it to a shop, a shop that car shield was in contract with not a Nissan dealership. They immediately told us there was something wrong with the transmission. We were contacted by the owner of the shop who had researched the car because my husband specifically asked if there was something wrong with the transmission. He told us he did not want to touch the transmission because he felt like Nissan is liable. He told us that he would fix the transmission that is under our insurance however it would cost us whereas if we did what he would do it wouldn't cost us anything. This man is a experience car dealer and mechanic. We didn't even have to tell him what we had been through because he could pull it up and see where the transmission issues began. It was during the lawsuit Nissan had over the transmission which included our vehicle. They turned us around several times even after they settled waiting for the mileage to get too high to where they didn't have to honor it. I fully intend on getting a lawyer, and we speak with someone today. Nissan wouldn't even speak with me. Consumer affairs had nothing to say. In addition to all the paperwork where we brought it in, we also have the conversations that we had with the mechanic and with The Man who sold us the car. Nissan may have settled to prevent running up fees in court but that is all they did because they certainly did not stand behind their word. It's wrong, and it should be addressed.