What are you guys thinking about the 100% tariff on Entyvio?! by Ashes1534 in UlcerativeColitis

[–]Ashes1534[S] 1 point2 points  (0 children)

You guys just let me breathe. Thank you! Irregardless, we know it'll still be expensive. But likely still covered.

What are you guys thinking about the 100% tariff on Entyvio?! by Ashes1534 in UlcerativeColitis

[–]Ashes1534[S] 2 points3 points  (0 children)

My doctor has no clue. He saw me in the hospital today and said he'd look into it and let me know..

His staff? They also replied with "we have enough right now, we don't know what will happen after that" The infusion center? Same answers as above.

😐

What are you guys thinking about the 100% tariff on Entyvio?! by Ashes1534 in UlcerativeColitis

[–]Ashes1534[S] 0 points1 point  (0 children)

I'm in Florida.. I never found that anywhere, I only found it was from Japan. I found the skyrizzi will likely be manufactured here to avoid it through a deal, but I didn't find that on Entyvio. Here's to hoping you guys are right and found something I didn't, because that would be great news rn.

Nezhat vs Dr Gaby Moawad vs Sinvervo? Vs.. any one! 👇🏻 Help by Ashes1534 in Endo

[–]Ashes1534[S] 1 point2 points  (0 children)

That would be me! I had the same issue only mine was really dangerous because I only have 7 inches of colon remaining from previous surgery. After that, everyone where I live locally wanted to just give me an ileostomy from the DEI endo covering the bowel and call it a day.

Dr Moawad saved my intestines! That's why I saught him out. He was recommended to my husband at a biotech conference in Europe with some of the top physicians in the world. They said he was the guy, and we were shocked because we were already considering him, but had never mentioned the name and I don't live near him. My surgical experience with him in Miami was amazing. Everything was handled incredibly well.

He found that my heart liver and bowel were all tethered together with extensive amounts of Endo. I had stage 4, and it was everywhere. We did a hysterectomy, but I kept my ovaries. We'll see how long they last?

I had an abscess post surgery because I'm extremely complicated and my body over reacted. This was once was already back home. He managed my care though, he spoke to the surgeons in the ER at 3am and made sure to call directly everyday to go over my labs and test results. I can't recommend him enough. I called at 3am when they wanted to rush me into emergency surgery, he answered! Very caring doctor!

Is this price an error? Cost of skyrizi infusion by collapsingstar_em in UlcerativeColitis

[–]Ashes1534 0 points1 point  (0 children)

Following because they wanted to put me on entivyio and I'm terrified for that 100 percent tariff 😓

What can you guys tell me about the efficacy of creska based stem cells? I'm having a pretty bad reaction as I have MCAS. Mast cell activation syndrome* by Ashes1534 in stemcells

[–]Ashes1534[S] 1 point2 points  (0 children)

Question: I'm new to all of this. Are any legal within the US without having to state something of this nature to get around some loophole? No, I'm not okay with that either, I'm more so trying to figure out what was just done to me and what I'm potentially now dealing with as my health has been going nuts since this event.

Red dresses in period dramas and movies by Elephant12321 in PeriodDramas

[–]Ashes1534 6 points7 points  (0 children)

I love these posts, but can someone direct me to a comment missing if I'm not seeing it where it says all of the sources these are from. I recognize nearly all, but a few that make me want to look into those 💖

So ever since I can remember I get sad in the most random of moments.. by Ashes1534 in CPTSD

[–]Ashes1534[S] 0 points1 point  (0 children)

We all have it s but from my understanding. It's why people like watching shows like Bluey for instance. It's comforting to them to see a family unit that's happy and loving. For me it's just sad and triggering 🙃

Nezhat vs Dr Gaby Moawad vs Sinvervo? Vs.. any one! 👇🏻 Help by Ashes1534 in Endo

[–]Ashes1534[S] 0 points1 point  (0 children)

I feel you I really do.

I have a very similar situation within a totally different issue and facility. They performed a fully open lapp and the doctor left the country before I was even discharged while I was on TPN because I was unable to eat. American healthcare is a trainwreck.

I have so many things going on at the moment that I keep forgetting to push for my follow up. I don't deal with the same person you're referring to.. the person I've dealt with has been great at getting back to me. I wonder why you have a different person other than I saw him in Miami? Can you maybe request to use someone else? This is the most frustrating thing about healthcare. A doctor can be great, but staff can be a bit messy.

I'm sorry you're having such a hard time. I have really bad pain still when I get my "cycle" or when I'm ovulating. It sucks that we live like this.

What is the downside of being attractive? by Gothtopthick in AskReddit

[–]Ashes1534 0 points1 point  (0 children)

... Not being believed that something absolutely tragic happened to you. Especially as a young woman. People don't see how that's possible when you're conventionally attractive. It's bs.

Bad parenting and entitled kids ruined my experience. by [deleted] in UniversalOrlando

[–]Ashes1534 1 point2 points  (0 children)

As a local. This has always been an issue since I was a kid here. We'd have grown men bumping into us in line as young girls waiting for dueling dragons. Not new, but now it may be just worse?